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Archive for the ‘positive thinking’ Category

Successful people keep their eye on the goal. If they encounter obstacles, instead of focusing on the obstacle, they find a way around it by keeping their goal in mind. It is a mindset of courage which makes it easier to pursue success. (Dr. Anil Kumar Sinha)

Meet Diane Grover, mother of five, a beautiful person inside and out. Diane founded the International Down Syndrome Coalition. She also started the Grand Strand Down Syndrome Society. Now she has created Dreamers Merchants.

This is no ordinary business.

Most employers look at appearances when hiring, even if that bias is subconscious. Somewhere between 17% and 20% of people with disabilities are employed. Diane’s mission is to change that statistic. She does more than hire—she gives these individuals a living wage and recognizes their dignity. In Diane’s blog, Cheerful Persistence, September 2015, she celebrates the definition of dignity.

I applaud people who realize that dignity is innate. It is not the exclusive property of the genius, the wealthy, the gifted, the privileged… In fact, sometimes the educated individual teaches biased info. My friend, Bethany Brianne Hall, helped to clarify some of that misinformation with one of her college professors.

“Genetics and Statistics show that all people with Down syndrome will not attend college. It is nearly impossible for them,” he stated in the context of his lecture.

Bethany did not sit still and fume. She responded with statistics. After class. Bethany was fortunate. Her prof heard her out.

“Do you know who Angela Bachiller is?” she asked. Knowing the question was rhetorical, Bethany continued. “She was the world’s first person with Down syndrome to hold public office. She lives in Spain. Tim Harris owns his own restaurant. And Sujeet Desai, a musician, went to college. He earned a 4.3 average. These are only a few examples.” Bethany suggested that he update his statistics. Perhaps if she had appeared confrontational in front of the other students he may have been defensive. It is hard to say in hindsight.

Then she shared her experience on Facebook. I smiled the width of my face. Perhaps wider. The links in the previous paragraph lead to these persons’ stories. Desai mesmerizes an audience with his music. Tim dances his way to his restaurant. Angela Bachiller’s photo shows a woman either patronized or ignored in public settings. Wrong! She is a public leader and servant.

I smile again now. Diane Grove is destroying the myth that the handicapped are poor workers and less-than individuals.

Di’s youngest daughter, Mary Ellen, has Down syndrome. She calls herself ME. Me! The same pronoun we all use to refer to our inner selves. And that self is incredibly beautiful—no matter how many chromosomes it carries.

Seven of Diane’s Dreamers Merchants stores opened on October 5. There are now eight stores. Freshly ground coffee can be ordered online. A great gift.

“Maybe, just maybe,” Diane says, “the world is hearing us.”

dreamers coffee10072015_0000

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I remind myself every morning: Nothing I say this day will teach me anything. So if I’m going to learn, I must do it by listening. (Larry King)

Rebe, my soon-to-be-eight-year-old granddaughter, loves to play any game that involves mommies, dolls, and the lives of families. My role changes at her whim. And I am okay with that. My pretending stays within the realm of fiction. Reality intervenes, even in fantasy. Plot, grammar, logic, and a reasonable timeline are required. Even an insane character requires motivation, albeit skewed.

Play doesn’t come naturally for me anymore. Unless it includes humor. Then it isn’t really pretend; it’s called drama. Too much time has passed since I wanted toys for Christmas. Sometimes I act the part of Rebe’s offbeat daughter.

“Mommy, can I drive your car to kindergarten? I won’t smash it into a tree this time.”

That makes her laugh. Or, she tells me I’m in fifth grade not kindergarten, and the event never happened. Another reason why following Rebe’s imagination is impossible to follow. For the most part however, I listen, and discover who my young descendant is.

At first she is the mommy. Then she takes her baby with the soft tummy to the doctor. And she assumes the role of pediatrician. I’m not sure whether I am the sit-in for the mommy or an older child as she examines baby with makeshift instruments: a plastic spoon and knife, a key chain, a puzzle piece.

Her expression turns serious. “Most babies are normal,” she says. “And that is good.” Then she pauses after more pokes and probes and faces me. “But this baby has special needs. And that is good, too.”

She hands me the doll. My jokes have disappeared. I am in awe of a second-grade girl who speaks with wisdom. The softness of the toy and the softness of her words sink into me.

I have nothing to say.

doll

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Life isn’t about getting and having, it’s about giving and being. (Kevin Kruse)

Our friend, Tom, likes homemade soup. So I am making several varieties for his birthday gift. Unusual? Maybe. But I went to college with Tom’s wife, Linda. The four of us have grown through both joy and trials. We now have grandchildren; an off-the-shelf purchase doesn’t seem adequate. So, I’m sending him healthy food, a tangible wish for long life and tomorrows filled with celebrations.

My husband and I did buy a one-hundred-percent-practical item, an insulated Tervis cup. He will be happy with it because he is a grateful person. But soup takes time to create flavor. It sends out a wholesome scent throughout the house.

Homemade soup is symbolic of the time a friendship takes to build, to develop into something unique. Linda and I were part of a larger group in college. My mother told me that another relationship I had would eventually fizzle out. We didn’t have a lot in common. But that Linda and I would be friends forever. Mom and I were not close, but she recognized quality when she saw it. And Linda’s capacity to give seemed to have enormous potential. Mom was right-on.

When Linda met Tom I knew the mix was right. My husband Jay liked Tom, too. Friendship soup was about to brew.

Usually when I make homemade soup I use our small crock-pot. Then I go to exercise class, shop, clean, or write, and let a low electrical setting do the work. Today I fill the largest pot I have with meat and seasonings and simmer the mix on a back burner. I watch the pot to make sure the boil is steady and that the mixture doesn’t burn or overflow.

Since utopia is fantasy everyone’s life sticks to the bottom or boils over. Eventually. I had a pulmonary embolism. Tom and Linda have experienced crises in their lives as well. Our strengths have survived.

Tom is the consummate teacher. He retired and then returned at the same high school under the public school system—not because he needed to do it—because he loves to teach. He earns less yet works as much if not more than he did before.

Tom’s love of teaching does not appear in his classroom as soft and fluffy. In fact the students see him as a hard-liner. He prepares them for real life. Although they may not have the maturity to recognize it. Yet. To a kid, homework seems pointless. Good teachers know the outside-the-classroom exercise gives the instructors even more to do. The work is for the student’s benefit. The world is not necessarily forgiving. Even in the wild, the animal that decides to skip a day of hunting will go hungry that night.

To continue to persevere despite an atmosphere of apathy shows integrity. I applaud Tom for it.

The soup takes hours to boil, cool, and then boil again into tomato, cheese, vegetable, or rice varieties. But I enjoy every minute of the process.

Giving and being, that kind of success is possible for almost anyone.

soups for Tom

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You build on failure. You use it as a stepping stone. Close the door on the past. You don’t try to forget the mistakes, but you don’t dwell on them. You don’t let them have any of your energy, or any of your time, or any of your space. (Johnny Cash)

Somewhere around two in the morning I waken with a throbbing right hand. Did I roll over onto it? Did my sleeping body drift into the past and forget that arthritis rules my right thumb. Inflammation tells each movement what it can do and what it can’t. And it is a strict taskmaster.

Of course I rebel. I have writing projects to complete, and the cooking, cleaning, and laundry don’t do themselves. Fantasy appears only in story form. Even on the written page reality intervenes. Sure, I can invent a character, a girl who floats into the air at will. However, if she levitates at the local Seven-Eleven havoc will appear, unless, of course that is part of the plot.

A cold compress helps my hand. It tells it to stop complaining for a few minutes anyway. Somewhat. So does calming thought. But sleep does not return. I get up at four and begin to write, trying to embrace the silence as a gift. I add a page to my next novel, then another. This does not mean they won’t be backspaced later. A story has progressed. The missed sleep will demand to be repaid later. For now I take advantage of the moment.

The ache reminds me that I am alive. Fully. In this moment. I’m told this is the most common form of arthritis. Osteoarthritis. As my parents, aunts, and uncles told me: “It won’t kill you. You’ll just die with it.”

Finding someone with more serious problems is easier than I would like. I’ve been praying for a young friend who is expected to be in intensive care for longer than the two weeks originally expected. She, too, is a writer. And a reader. Her security is a book resting on her chest along with the ambiance of IVs, monitors, and an existence where pain owns the building. She has had two surgeries. Complications continue. So far her miracle begins with survival.

A child close to me has a friend who died of a rare inherited disorder; her sister has the same disease. My little friend is reluctant to talk about her grief. So I cannot reveal her identity. Life and joy do not circumvent difficulties. They travel through them.

The sun peeks through the window of my office, also a toy room, the place where my grandchildren and I play. The rays will find family pictures, disorder, my half-empty coffee cup, and possibilities I don’t see yet.

Sure, I would like to take the brace off my hand post-miracle. But I’m not going to count on it. However, I haven’t typed the ending to my story yet. That choice isn’t mine anyway.

 

seeing the inside brightness

hand brace09212015_0000

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The voyage of discovery is not in seeking new landscapes but in having new eyes. (Marcel Proust

Ella is scarcely buckled into her car seat after kindergarten when she dumps out her backpack. “See,” she says opening a black binder. “My homework.”

“This is mine,” she adds showing me a page with squiggled lines of crayon. “I color.” Papers fly all over the back seat. I grab them. My juggling skills need practice. Jay is driving. I am sitting in the back seat with Ella—not to spoil my granddaughter, but to spoil me.

She turns to an earlier page. The paper clip sealing those completed pages flies off. I have no idea where the clip belongs, even if I could locate it on the dark floor. Chances are her mommy will know what to do. For now I gather the loose items into Ella’s backpack and ask our granddaughter to pretend to be the teacher. I will be the student.

She points to numbers one through ten and identifies them in a clear, I-know-this voice. If I ask her to repeat the lesson she will refuse. Either I catch it the first time or lose. Ella will not perform. She has been reading phonetically for over a year. On her own terms.

See-what-I-know is not in her repertoire.

Eventually, perhaps, she will learn how to play the going-to-real-life-school-game. For now I try to discover what she understands from what I can discern. Not from what I assume.

I kiss her on top of her white-blond head. “Want to go to the park?”

“Playground,” she answers.

I smile at an even-better-than-yes answer. She has chosen a synonym.

“You’ve got it!”

Our little girl may carry an extra chromosome, but she sure isn’t a syndrome. Yes, it may be easier to say Down syndrome child—but it isn’t accurate. She doesn’t fit into a category, a label. She has blue eyes, a winning personality, straight blond hair, the flexibility of a wet sponge, and Trisomy-21. She has the syndrome, but it is only one small part of who she is.

And I wouldn’t want her to be anyone but Ella. She reminds me of life’s priorities. They live in her spirit. Because of her I have the opportunity to become a better person. A little bit at a time.

We learn together, taking turns as teacher and student. Student and teacher…Graduation isn’t on the agenda. We both continue to grow.

at West Fork park September 14, 2015

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The art of life is a constant readjustment to our surroundings. (Kakuzo Okakaura)

“Are you hot in here?” Jay calls from the living room.

I’m not. But warm air rises and my body doesn’t reach that far off the ground. Besides, my short frame doesn’t want to leave the frame of a bed. I spent two hours in the deep end of the pool at the Y and then went out to dinner with some of Jay’s family. My idea of a great vacation day. Now I am ready to revitalize—from a horizontal position.

“Well, the thermostat reads eighty degrees,” Jay announces.

I’d like to say he needs new bifocals; his vision is A-OK.

This is not a good sign. My headache, the one that develops at four in the morning, doesn’t help. The heat inside my skull battles with the heat in the air. So far, no winner.

Hours later we discover our cooling system has a leak. So does the checkbook. Service calls on a holiday cost extra. I have grown so accustomed to comfort that I didn’t realize how old the system was. It will make it this year. Probably. Next year? Maybe.

I have an incredibly blessed life. Sure, I’ve experienced trials. I didn’t think I would make it through some of them. But, that was yesterday’s vision. I don’t live there. Nevertheless, remembering what it was like during the ugly times helps me empathize with people who walk through them now. Sometimes they barely breathe from one moment into the next. Walking isn’t necessarily an option.

So I guess trials have their purpose, too. Comfort from someone who has existed on cushioned silk is empty.

Cool air flows around me. It is a gift. I celebrate the luxury and at the same time wish I could spread it around, extend the temperature control into a troubled, ugly, world. I pray that I stop taking what I have for granted. Give more. Complain less. A constant readjustment. At least until I reach perfection. And that isn’t on my to-do list. Even into a fantasy world like the one I created in “The Curse Under the Freckles.”

Even in magical realms there are limits.

Readjust…readjust…readjust…

having what you want, wanting it

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When will you learn that there isn’t a word for everything? (Nicole Krauss)

Ella has had enough play for the evening. Daddy is playing in a softball tournament. His team won the first game and the second is in progress. She doesn’t even want my iPad, usually a sure thing. She eases into my lap as we sit in the concession area and asks for her friend Nona. I didn’t see the little girl during the first game.

Nona is years younger than Ella. But our granddaughter doesn’t limit her friendships to children her age. Nona has a sparkling personality. And she has inherited artistic skills. I suspect that she and Ella communicate on non-verbal levels, through action, color, play. Little people see more than adults realize.

artwork by Nona Adams-Jones

artwork by Nona Adams-Jones

Ella puts her head on my chest. I straddle the hard bench and I’m amazed at the length of time my senior body remains still without stiffening into one four-foot-eleven-inch cramp. Something innately beautiful in Ella softens me.

Simultaneous loud conversations merge into a rumble. Ella’s arms are covered with dirt from the playground area. Her hair could use a brush. At the table across from me someone spills a beer into peanut shells on the concrete-slab floor. The noise and distraction don’t stop my granddaughter from falling asleep. I can’t take off her glasses without waking her.

This frozen-grandma scene would not appear to be pleasant. Nevertheless, I choose to remember it—every detail. I have no desire to join the laughter surrounding me. I would rather savor holding this blonde little girl, recognizing the trust she has in me, basking in her unconditional love. Another kind of artistic moment.

Soon she will awaken, sleepily, and see Daddy. He is her world. She is excited to give him her coloring page from daycare. I will give up this moment soon enough. For now there is no need for words. I remain still. Privileged. The grandmother of a girl with Down syndrome and up gifts.

Art comes in all forms. Sometimes words fail when they try to capture gifts that develop and change as this moment eases into the next.

shirts from past celebrated Buddy Walks

My husband and I wear these often as we watch our Ella grow.

Buddy Walk shirts

 

 

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Life is like a prism. What you see depends on how you turn the glass. (Jonathan Kellerman)

The four-syllables in mortality sound less harsh than the one-syllable, no-coming-back word, death. I roll both terms through my brain. I may be a senior citizen, but at age 69 I play on the floor with my grandchildren. And I get up again without complaints from my knees. I can tread water for well over an hour before my bladder says it is time for a break.

In many ways my success in life has just begun. “The Curse Under the Freckles” is available online. I just found out that it is also available at Barnes and Noble. As soon as I receive copies I will schedule local signings.

But the finality notion arises because my husband and I sit in a cemetery office—as we make our own funeral arrangements. We are choosing the greenest options, as well as the cheapest-possible. Something like trying to find a bargain at a high-scale store without gasping at the sticker price. Green burial may be our choice, but green cash is disappearing from our savings.

However, we do not want our sons to add hassle to their lives. It comes to everyone and more is unnecessary. I’m amazed at how comfortable I feel. Maybe it’s the outgoing personality of our planner. Maybe I’ve learned to savor life now.

I’ve never organized a party where I knew I would not be invited—well, except this last one where I will wait on the sidelines for incineration. (Hopefully only the earth version, as if I had the slightest vision of the surprises on the other side. Although I choose not to anticipate bizarre visions.)

This moment is not morbid. In fact, I send a message to my sister to tell her she needs to keep her gorgeous voice intact. When she is in her late eighties and I am about one-hundred and something I expect her to sing at my memorial service. I leave the message with a vague reference saying that I will keep in touch. About what? The funeral or my next grandchild story? She catches the humor.

The sun shines and a gentle breeze has pushed the August heat out of the way for a while. Our lives are not perfect; no one’s is. But the grounds at Spring Grove are beautiful. I savor the lines in my skin the way I celebrate bright flowers contrasting gray rock.

I’m not sure I could honor beauty if I had never seen its opposite.

Peace upon all wherever this moment leads you. I pray that it leads you into a more powerful life.

life before death the optimism revolution

 

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“What makes the desert beautiful,” said the little prince, “is that somewhere it hides a well…” Antoine de Saint-Exupéry

As I study Philip R. Rogers’ powerful rendering of my main character in “The Curse Under the Freckles” I recall the bottomless well when the story began, and the empty buckets that came to the surface. “The Curse Under the Freckles” can also be found at Joseph Beth online.

When Chapter One appeared in my first draft the tale had a different title as well as an older audience. I wanted to take a third-grader’s vocabulary and write a book for seventh graders. Although my granddaughter with Down syndrome was already showing an interest in every word in her story books, she opened my eyes to the larger world of kids with special needs.

Older children with limited reading abilities do not want to pick up a story about bunnies and kitties. Yet, the adventures prepared for teens and preteens contain too many words, too many syllables.

As I put together scenes, however, I felt as if I were trying to build a believable fantasy with stale super-sweet mini-marshmallow bricks. The plot reflected it, as predictable as an alphabetical listing and twice as boring. No subplots, insufficient conflict.

Bottom line—I wasn’t ready to serve. Many people believe that writing for children is easy. It isn’t. The editor and publisher’s expectations are higher for the author of children’s material.

Stories need to be fresh and entertaining yet stay within the realms of a young person’s understanding as well as the limits of respectability.

I don’t remember when I knew that giving up on my original goal was no longer an option. But I do know that is when the story took off—with plenty of hurdles of course.

Chase Powers, my hero, lost a few years. He became eleven instead of fourteen. He developed a sense of humor. His foes grew mightier. Some of my critique partners began comments with, “I don’t get this at all. But then I don’t even like fantasy…”

Oh well! Oh, very deep, what-the-heck-is-down-that-imagination-of-yours well?

One of my magical characters says, “It takes no courage to climb a steep mountain when you have been lifted to the top.” Sometimes this writer needs to listen to her own creations.

In the future I hope to help kids who have difficulty reading by writing in a style that is super-easy to read. This book travels through a 560-660 Lexile measure, fifth to sixth-grade reading level.

Perhaps, if I work hard enough I can tell a story with small words that touch and capture the wise. I know it can be done. My grandchildren have shown me that route. Often.

I’m not there yet. In the meantime I plan to have a signing at our local YMCA, and give a portion of my earnings to their autism program. These young persons have a lot to give; the program helps them to find those gifts. I have no idea how much water I can bring to the desert. But those extra drops aren’t noticed in the ocean.

One drop, one word, one action at a time…

back cover the curse under the freckles

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You must have chaos within you to give birth to a dancing star. (Friedrich Nietzsche)

Perhaps I have too much chaos within me because I feel crowded in water aerobics class—actually there are only about twelve participants. Not exactly a mob. But the instructor directs us to continuously travel back and forth. The possibility of bumping into someone seems high to me.

My energy feels almost electric. I’m more than busy at the moment with babysitting duties and preparing for a newly published book to appear. In the water that electricity seems dangerous even if it is only a metaphor. So I swim into the deeper water and tread through the moves. I love the feel of suspending. And I see another benefit: a tall friend is here today. She buoys me with her spirit.

She and I look as different as a mountain and a valley. I need to stand on a step stool to get sufficient pressure at the locker’s swimsuit spinner. At six-foot tall she is at the deeper end of the indoor pool, but doesn’t need to kick to stay afloat. I look up to her physically—and as a person.

This lady talks about her dedication to family with the same offhandedness a person would use when counting loads of laundry. She gives because the need is there. She is not aware of her own beauty.

As we talk I sense similar teen experiences. When adolescence hit I would have pronounced angst with an accent on every letter if sharing feelings had been permitted in my home. Since they were not, the not-good-enough notion imploded and almost destroyed my spirit. Changing that attitude has taken time and effort. But I don’t regret the past. Because of it I am less likely to judge someone else. I also have  a storehouse of great fictional characters, all based on a confused, normal young girl—me.

My friend shares a current difficulty she is facing. It sounds familiar. She has a family member in hospice. Cookie-cutter supportive care doesn’t work for everyone. Sure, it would be great if so-and-so would play the let’s-have-fun-while-we-can game. But, sometimes the individual wouldn’t have played when he or she was twenty-three.

Later, I see my giving friend helping someone else. Her gift delays her departure when I know she has other tasks to perform, a long agenda for the day. I would like to give more details about that moment, but don’t want to break this woman’s anonymity.

Instead, I simply shout-out thanks into the electronic universe and hope treading water with her has brought some positive energy into me. I am thinking about her now with the hope that my words serve as a mirror reflecting the goodness I see.

It is contagious, in a positive way.

garland of beautiful deeds

 

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