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Posts Tagged ‘acceptance’

Memory is more indelible than ink. (Anita Loos)

My friend C gets an A+ in the inspiration department. Several weeks ago she shared some of the challenges she faces caring for a disabled husband. Then she added a delicate and beautiful twist to her story. She added the sunshine known as gratitude and then rain fell—from my eyes. I haven’t forgotten that Tuesday morning circle with my friends.

C’s husband was once a brilliant, actually super-brilliant architect, who could play bridge or design one. Then, several years ago he developed a rare, bizarre condition. He has gradually lost the strength in his muscles as well as the strength of his mind. C cares for him night and day. Dialogue, true conversation, belongs to the past.

While C lives with complications, distractions, aggravations, and opportunities to scream-into-the-sky-about-the-injustices-of-life, she is one of the most balanced individuals I know. Perhaps this is because C gives because that is who she is. Sure, she would probably admit that life with someone who is becoming-a-child-but-doesn’t-know-it is something like trying to tame a rabid wolverine. But she maintains a sense of humor.

She watches her husband and sees the past, knows that those years are a real, tangible part of who they are now. Some of those times were serious, some tender, some humorous. It would not be fair for me to share those moments in a public forum, nor would it be necessary. Finding the human in all three categories isn’t difficult.

In my life some events were tragic, but something good happened later that never would have occurred if I had not walked that path. Moreover, the next oasis became sweeter. Then again some situations I thought would stand forever lasted as long as a puddle after a summer storm.

As I write these words and think about C, I mentally make a gratitude list. Okay, maybe that should be a written list so that the next time my own opportunities to scream-into-the-sky-about-the-injustices-of-life appears it won’t take as long for my stress level to decrease.

That need becomes amplified when another friend, J, stops by with a load of stuffed animals and children’s books for my grandchildren. J and I are almost the same age, born two weeks apart. Her husband has always been a kind, intelligent man. I enjoy being around him. A fellow writer. He is eleven years older than she is—no longer old from my point of view. He has been diagnosed with dementia. It is in the early stages. Hopefully medication will slow the inevitable process.

In the meantime he is focusing on his garden, creating something alive and beautiful in his own back yard. He knows, in time, he will recall nothing about it. He doesn’t know when. Perhaps snows this winter will cover more than ground next year. So J takes videos, savoring each dig, each bulb… each flower.

“Memory is more indelible than ink.” For some, not for all.

Both C and J celebrate life on a deep level. Not the kind of celebration that calls for the clicking of glasses and loud music, the kind that calls for a wonder about the past and an awareness of the sacredness of the present.

ever had a memory Words of Wisdom

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Health is the greatest gift, contentment the greatest wealth, faithfulness the best relationship. (Buddha) 

Ella’s daddy wants her to have a nap today. The stitches on her chest became infected. They had to be surgically repaired last week. She needs to catch up on her sleep and recover. Ella, however, has a different plan. I lie down next to her because we don’t have a bed for her. Napping at our house is not part of time-with-grandparents routine.

I had told her it was time to sleep and she told me it wasn’t dark out.

“Nap, Ella, not nighttime.”

She grins. I know what tactic she is forming so I open the book we just got from the library and begin to read. She decides she wants to tell the story.

This is a ploy, but I want to hear her version. She flips the pages back and forth and makes faces at me. Yep, I was right. Our granddaughter wants me to laugh, actually outright giggle. This will stop the possibility of sleep in the middle of a perfectly good day for play.

Oh, why was I made out of malleable wet sand when it comes to my grandchildren? I try to keep my lips set into a serious straight line, something like holding back the water from a burst pipe with a paper bag.

“Okay, sleep time,” I say.

“Night, night, Mawmaw,” Ella says, at least a hundred times—in different tones. “I love you,” she finally says.

“I love you, too,” I respond.

Then she makes a tent of the book over my face. I finally laugh. She has won. She giggles and I want to hug her forever.

You are ornery and sneaky, little girl, I think. But I wouldn’t change anything about you—even if I could.

“Uh, the nap was a bust,” I tell my husband and see disappointment in his face. We didn’t follow instructions. Okay, I didn’t follow directions. But they required willingness from another participant who didn’t want to miss one minute of the day.

I am so glad Ella’s heart is now working properly. Her spirit has always shone, even with a blocked valve, and her ability to find contentment in the simple inspires me.

Chances are I won’t seek employment as chief disciplinarian anywhere. This story wouldn’t fit well in the resume. But the position of Grandma, also known as Mawmaw, works just fine for now.

Actually, I feel somewhat honored.

listen to your heart

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Life isn’t about getting and having, it’s about giving and being. (Kevin Kruse)

 As I’m dusting the windowsill I see the note Kate wrote to Ella, probably several years ago. I saved it because it reflects who Kate is. Ordinarily I choose to publish only quotes and pictures that include correct spelling and grammar. However, there are times when perfection can ruin the beauty of the moment. The sincerity of my eldest granddaughter’s wish blasts out from her innocence. She wants the best for her young cousin. I can’t fault that.

However, no one experiences a perfect life. Our Ella probably understands that better than many people do. She approaches a quarantine time. Her open heart surgery has been postponed twice. Now, so that she can move forward, we must keep her away from crowds and lots of germs. Of course she has no fear of infection. Saturday she dropped a vending machine M&M on a restaurant floor and then picked up the candy and chomped on it. Fear of another sick day does not govern her life.

I would like to delete fear from my own life. I would also like to send a message like Kate’s to a few other folk I know, to wish safety, health, and simple joys.

There is a young woman at a place I visit frequently who has recently had a recurrence of cancer. She is frightened, as anyone would be. She says she does not expect to recover this time.

She shows me the site from her biopsy, just below her throat. We share a few tears. I hug her. This is all I have to give. She says six words that scream a lifetime of experience: “I have always been the oddball.”

We are standing in front of a public bathroom mirror. I want to turn her toward the glass and point out what I see—a beauty that isn’t superficial. Tenacity and willingness to serve don’t appear in a flat reflection. Yet, I can’t find an opening in her spirit to explain that different is not a synonym for inferior. She is devastated, too broken for words to seep in yet.

I recall how I was the taunted kid through twelve grades of school. And I never understood why, except for the innate inferiority theory. After all, my parents never told me that I had gifts of any value.

This young woman has struggled through developmental handicaps. She has gone through chemotherapy. She volunteers. Daily. With a smile. She is in too much pain to understand more than a hug. Moreover, my recent accomplishments can obscure the realities of the past. She doesn’t see a future. Now is not the time for me to talk, but to listen.

Then I see her again this morning. She wears a pink fighting-breast-cancer scarf. She readily accepts my embrace and tells me she is taking her driving test on Tuesday. I grin. She talks about her nervousness. I think about facing tons of steel on the road. I envision this young lady approaching a 32-wheeler on the expressway and crushing cancer in the passing lane.

Perhaps enough people have listened to this volunteer. Maybe she is beginning to see her own worth, prayer answered before it was barely begun…

May that power continue to grow.

 

Dear Ella

 

 

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All I ever really want to know is how other people are making it through life—where do they put their body, hour by hour, and how do they cope inside of it. (Miranda July)

Snow falls and covers bushes, grass, streets, and parked cars. My tiny church community cancels services for the third week in a row. We had decided on a Lenten theme, “Be Still and Know I am God,” based on the psalm. That phrase repeats in a song I wrote for my community. My guitar remains in its gig bag; I imagine the instrument telling me it wants to stay in a thermal-underwear environment. The stillness in the verse feels held under snow, the next moment frozen, hidden without discernible answers about what to do next, or the nature of the whole of life. A plow or shovel touches only the surface of the issue.

I find myself wanting to adjust and re-adjust the day’s plans as if they were mismatched place settings at a large table. Since my mother-in-law’s memorial service was yesterday, out-of-town family is visiting. I have a few promised projects to complete. Moreover, my oldest granddaughter has a basketball tournament this afternoon. My growing frenzy lets me know choosing option-all is not going to work, especially with March bursting in like a frosty albino lion.

Pause, I tell myself. Be mindful of what you are doing. I have been working at the computer for a minute or two, and then stopping to do a household chore, talking on the phone, looking for items I don’t need until next week…trimming a sharp-edged fingernail. I behave like a moth following a flashlight with weak batteries.

I think about my mother-in-law, about the impact she made on everyone she met, how she cared about how other people made it through life, day by day, hour by hour. And I decide that perhaps that is the key. How do other people live? What are their stories? If I am involved in caring about someone else, my concerns find edges that take shape, unlike my shaggy, broken fingernail. And so does my writing. Most of the time I discover that other folk and I share the same core feelings. Everyone doesn’t necessarily express them in the same way. But inside the individual, when the self-protection and personal issues are stripped away, identical needs remain.

The day my mother-in-law died I remember feeling a sudden, inexplicable moment of peace. It was followed by the sense that she had a message for me although it did not come in her voice or have any other-world tones. It did appear to be direct, which was her style: You have never been confident, but you will be now. You have the strength you need to succeed. Something good is about to happen and you will be ready for the challenge.

The next day I was offered a book contract for a fictional work. Since this is a new development I will simply reveal that the tale is fantasy about an eleven-year-old boy. The book was written for kids about that age. The premise, however, is universal enough to engage an adult. (At least I hope it will.) Chase, the main character, thinks he isn’t even good enough to be ordinary. Yet, he has gifts he doesn’t know about that include magic. None of those gifts appear at the touch of a magic wand. First, he needs to break a curse…when he has a broken leg and his best-and-only friend was just killed in an accident.*

I’m not sure anyone is ordinary, or that anything great happens without effort.

*further info about publisher and publication to come

early morning view from our back window, my learning center until the snow stops…

contrast plant with snow

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Friends are those rare people who ask how we are, and then wait to hear the answer. (Ed Cunningham) 

My mind is in my usual run-faster-than-the-clock mode even as I browse through Facebook, something I do for relaxation. I see a message from my new friend, Cecelia. How was your day?

I envision my invisible to-do list, the one that doesn’t place chores and goals in tangible order. It lumps them together, landfill style. I frequently need to stop and re-think my next step. Sure, I have occasionally created lists. However, I tend to lose them or leave them on my dresser while I am on some phase of the day’s plans, miles outside the reach of that paper.

Yet, as I read CeCe’s message I smile. My day has been good, touched by both minor accomplishments and everyday blessings.

Our chat begins with ordinary-life talk, slips into the sublime, and picks up laughs along the way. We travel through the past, present, and future. I notice how the lag between each bubble-of-talk creates comical miscommunications, misplaced antecedents, confusing new topics. They can be easily explained, but are nevertheless humorous. I wish that these misunderstandings could be settled as simply in the real world.

Chat is new to me. Sure, I’ve used Messenger on Facebook—for one-time statements. It is simple on the computer because I am familiar with the full-sized keyboard on my laptop. Besides, my cell is a  basic flip-top. No Internet service. As Cecelia and I tap sentence after sentence I ease into a new age. We will meet in person again. Soon. I hope. However, for now the wrinkles around my neck fade and her fresh twenty-seven years move closer to my sixty-eight. She is wise beyond her age. Our spirits understand one another. She is beautiful both inside and out. And I am blessed by her openness.

Seconds advance into minutes… a half hour… I will save some of my impossibly vague list for tomorrow. Other tasks need to be crossed off my invisible agenda today. For example, a shirt left in the dryer for an hour may be wrinkled; overnight the cloth could resemble a salt-dough-map of the Himalayas. Boiling eggs explode to the ceiling when the water in the pot evaporates.  I only needed to do that once to learn not to do it again.

Eventually I write, Good night. Talk to you later.

Then, we chat just a little bit longer, a few extra words, one more shared smile.

Some gifts need to be savored.

how awesome you are

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When you are loved, you can do anything in creation. When you are loved, there’s no need at all to understand what’s happening, because everything happens within you. (Paulo Coelho)

Preschool and kindergarten-aged boys and girls in mismatched socks to designate left and right leg movements, sit facing a mirror with their instructors and occupational therapists. The kids’ families watch ballet class begin—this is recital day.

A couple of the class members react to the rhythm of the music. Others move to their own inner melodies. Some seem shy; others outgoing. One little girl runs as if the polished floor were a glossy playground. A man, probably her father, repeatedly brings her back into the group. All of the children have Down syndrome; none of them fit a pre-cut so-called handicapped pattern. They are unique individuals.

I watch and take pictures that are too fuzzy to save. Perhaps for me this moment can’t be held in a square frozen in time anyway. The program continues as Ella takes the hand of the girl who has been running freestyle and they explore movement through large, pastel-colored hoops. I envision the imaginations of these almost-dancers explode.

No, this isn’t ballet in the traditional sense—it doesn’t need to be. Actually, I need to control a perfectionism I see in myself. I begin each day with enthusiasm, carpe diem all the way. Then my eagerness morphs into frenzy. By noon my energy frizzles. I often jump through self-imposed hoops without enjoying the current moment.

Perhaps it is the perfectionism in me that sparks annoyance when someone needs to give every detail about her son or granddaughter’s perfect SAT scores. “That’s nice.” But if that story began with a struggle that has a survivor element in it, my interest rises. I’d rather hear about the child with a disability who made it despite the odds. Or the tale about how a loving home changed the life of a troubled teen. Sure, a natural ability is good, but what is being done with that talent—besides a claim to superiority?

These children in the ballet class and their families don’t make I’m-the-best statements. They don’t apologize either. In a poem I had published in “For a Better World 2012″ edited by Saad Ghosn, one stanza begins with:

My granddaughter has Down syndrome, I say.

I’m sorry, the reply.

I’m not, my answer.

As I read those direct-not-metaphorical lines at the public library in April I saw eyes widen, some with surprise, others with a smile. The folk with a smile either knew my little girl or they knew someone like her. They understood resilience, possibilities, not an extra chromosome.

Love has enormous power. Unfortunately it doesn’t come packaged in a neat Hallmark card. If it did utopia would be as common as MacDonald restaurants and ants at a picnic. Ella knows the word no and says it clearly. She can be as stubborn as any other child. However, she has a lot to offer the world, and so do the other children in this class.

I don’t need to understand what is happening as I relax and enjoy the moment; I only need to know that it is good, and that my first Christmas gift is in the form of a queue of children. They move in an awkward oblong shape while holding streams of white ribbon, grins escaping like sunshine through the inevitable solstice.

how awesome you are

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Most of us spend too much time on what is urgent and not enough time on what is important. (Stephen Covey)

 My husband, younger son, youngest granddaughter and I have traveled across two states to visit my 94-year-old mother-in-law. Daylight has barely replaced darkness as Ella climbs onto the foot of her great grandmother’s bed. Nana is awake; she greets her, and then closes her eyes again. Ella leans toward her. “Wake up!”

Great grandmother shows no sign of hearing. She sleeps most of the time. After Nana rouses she complains that the little girl was something of a pain. However, she doesn’t seem to hold a grudge. The two adore one another. I have no doubt that Ella sees into the older woman’s spirit and recognizes a need for a laugh or two before she moves into another dimension, whenever that time arrives. Nana was in hospice care, and then improved. She is one tenacious lady.

I have heard that people in the last stages of life appear to be unresponsive, but they hear every sound. I decide to be quieter as I work in the kitchen, bang fewer pots as I dry them, raise my voice only when absolutely necessary—or when I share something uplifting about Nana’s life.

I feel the spirit of late Midwestern autumn during this visit. The wind blows the last of the tenacious don’t-wanna-let-go-yet leaves from one yard to another. Most deciduous trees are bare, or sparse. The red and yellow patterns have already turned to a crisp brown, ready to be crushed underfoot, dissolving along with the experiences of past seasons. Winter is inevitable. Nothing lasts forever.

In Nana’s room Ella pretends to be a bear, growling as Nana responds with feigned fear. “Save me! I’m so scared.”

Wild Woman has replaced Wild Man, my name for her daddy as he was growing up. And we celebrate both past and present, even as time moves on an inevitable course. I wonder if time were unlimited how much of it I would savor, how much I would waste. At age twenty-five my youth seemed invincible. My head knew clocks don’t travel in reverse except in fantasy. But the days until my next vacation seemed as uncountable as slender grains of rice. Old age lived in the next century, an era beginning in the year 2000—as far away as Jupiter or Mars. Now that year has passed. I’m not sure when I will embrace the term old. But I know each moment is important and must be used well.

So I tell my mother-in-law that I chose to spend more time with my grandchildren because she had chosen to spend time with my children. She showed me how beautiful and strong the bond with a young person could become.

Ella smiles and reaches for me. We will be sitting next to one another during the drive back across two states. I couldn’t ask for a better traveling companion.

decorate life with colors

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You cannot create experience. You must undergo it. (Albert Camus)

As I get into the car to pick up my number-one granddaughter from school I wonder how much energy I have left in this sixty-eight-year-old body. Hopefully, I’ll last through the hour and a half before Kate’s music lesson. However, Kate’s enthusiasm is contagious. She continues in high gear to tell me about school events, and she doesn’t soften the blow about the difficult moments. I am grateful for my new hearing aids and for a restaurant that isn’t exceptionally noisy as she tells me about unfair situations that affect other kids and how she discerns her part in helping. Her wisdom shows restraint as well as concern, the ability to know when to jump in and when to wait for a safer, more effective moment.

Every freckle on her face glows and I revel in her fresh beauty.

I am now awake, aware; chances to learn surround me. Sometimes those moments are pure gift, the opportunity to simply say thank you. My most recent short story at Piker Press, Return of the Goldfinch, was published one day before a long-time friend’s brother died. Judy had taken care of her brother in her home during his final days. The story comforted her. While I can be grateful for that, the greater gift is my awareness of a friend who gave her home to a brother who could give nothing of material value back. Judy gives because she is Judy. I am blessed because I know her. My spirit awakens as I think about her. She gave her brother the opportunity to fly from a weakened body. In peace.

My youngest granddaughter, Ella, has led me toward the narrower, higher path since the day she was born. I had the notion that I would spend my day writing to my heart’s content. Page upon page would pour from my spirit because I had just retired. Time could now be mine! A divine higher power had other plans. Ella was born seven weeks early, with Down syndrome; she would need two surgeries before leaving the hospital. A giraffe bed in an intensive care unit was her first home. Since her parents needed to return to work I was among the chosen caregivers. Not only did my spirit deepen so that I could write on a more effective level, I made a new friend—an infant who would become my teacher.

In fact, when Ella was barely crawling, my husband was watching a movie too violent for me. One scene came painfully close to my own experience. That long-ago incident does not need to be relayed  here, but as the drama unfolded I gasped as if I were the young woman on the screen, as if time had removed almost fifty years of my life in the flash of a movie frame. Ella climbed into my lap. She looked directly into my eyes as if to say, Look at me, not into the past. And I saw such beauty and compassion in my granddaughter’s eyes that I knew wisdom lived inside this child. I felt blessed to be in her world.

Yes, the narrow road ahead that involved her care would be difficult. Not everyone would understand that a child with special needs gives more than the cost entails.

Easy isn’t always better.

I suspect that if I had taken a nap instead of spent time with my oldest granddaughter on this ordinary Wednesday afternoon, I would have awakened groggier than ever. And this train of thought would have never begun.

I wonder what opportunities tomorrow will bring. But that is on tomorrow’s agenda.

conquer fear beginning of wisdom narrow bridge

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When you set sail for Ithaca,
wish for the road to be long,
full of adventures, full of knowledge. (C.P. Cavafy )

My husband, younger son, our youngest granddaughter, and I have set sail for St. Louis in a Toyota. We decide to stop to eat. Customers surround the building at our first choice. Sure, this could bring an adventure, but not the one we had in mind. Our little one doesn’t sit still long. Besides, my husband’s mother, Ella’s great grandmother, is waiting for us.

The next restaurant looks much better, especially since I have a gift certificate for this place in my purse. We get a table without a wait.

“Mom, look, isn’t she cute?” comes an animated voice from the table behind me. A teenaged girl with bright eyes and neatly styled dark hair sits with her mother. The girl points to Ella.

“Come on over and say hello,” I say.

The two girls have something in common: they both have Down syndrome.

The teenage girl’s mother and I talk. Before long I realize that we have been visited by a celebrity. The girl with the dark hair’s name is Karrie Brown, easily found on Google. She dreamed of becoming a model. And she did. She has 31,831 likes on her Facebook page as of this moment. (correction, 31,834: I am now one of them.) The following link is only one of many sites that follow her journey: http://www.glamour.com/fashion/blogs/dressed/2013/09/karrie-brown-is-17-has-down-sy.htmlhttp://www.glamour.com/fashion/blogs/dressed/2013/09/karrie-brown-is-17-has-down-sy.html

Karrie’s determination encourages me to keep going after my goal. Age does not need to stand in my way. Too old is a poor excuse. I will not use it. Besides, I have two novels ready to go, and I have had more short stories and poems published this year than I have ever managed previously. I am a late bloomer in the extreme. Okay, Grandma Moses was older.

Ella smiles through bites of chicken. She has possibilities, too. Her speech may be limited, but she loves words—and she sounds them out. She works to capture them. As we continue on our travels Ella goes over the same printed cards with a level of concentration that makes me smile all the way through. Moreover, our youngest granddaughter doesn’t complain about the trivial. She has larger visions in mind. Who knows what adventures she will discover? I’m with her all the way.

People with Down syndrome are as individual as everyone else. They may be likely to display certain characteristics, but these actions don’t describe every person with Trisomy 21.  I notice that my little girl doesn’t need to dominate or be superior in any way. She is who she is. We could all learn to have her level of acceptance. We could all learn from Karrie’s stamina and positive attitude.

I don’t think meeting her was an accident. Some higher power led us to the table behind her and her mother. Her sister just happened to be our server. What a blessing!

Keep up the good work. Karrie. This world can use your positive and beautiful example.

Photo from Karrie’s Facebook page: Karrie Brown Modeling the Future

Karrie Brown - Modeling the FutureLove can’t always be perfect, but it can certainly be sincere. Ask Karrie. It’s her way of life.

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 Stop acting so small. You are the universe in ecstatic motion. (Rumi)

When I create characters and put them on a page they take more space than I give them. They woo me as if they were real, and I begin to resent time spent on the mundane got-to-do tasks. When the phone rings I am grateful to see on Caller-ID an out-of-state number I don’t recognize. After all, I don’t need a condo in Outer Mongolia; free offers rarely are. Let the ring come to a natural end.

However, sometimes the interruption is my work.

Yesterday I planned to finish the final edits on a novel. It didn’t happen. I needed to babysit for my two younger grandchildren. Six-year-old Rebecca and I turned my ’97 Toyota into a taxi while she presented plans for the afternoon with her younger cousin, Ella. I listened. Miss Rebecca’s enthusiasm is contagious. It fills in the creases in my marionette-lined face and lets me know I’m alive—outside the margins of a printed page. I can easily become a hermit. Heaven to me means hours creating fiction or editing real life into my own point of view. Actually, heaven and earth, also known as the profound and the banal, or the uplifting and the detrimental, live together somehow.

Grandma’s taxi turned into a plane. We flew into a cloudless sky while the trees budded within view. We belonged to the universe, and I realized my metaphorical cave, even if it had a hundred windows, could soon grow dark and shrink into light and shadow.

“Where should we go next?” I asked my granddaughter.

“To the park.”

“By taxi or plane?” I ask.

It isn’t very far. She decides we can go by car as we join the universe in ecstatic motion.

a smile from God

 

 

 

 

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