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Posts Tagged ‘appreciation’

No matter what he does, every person on earth plays a central role in the history of the world. And normally he doesn’t know it. (Paulo Coelho)

As usual, I’m eager to move to the next chore on my must-do-today list as my husband, Jay, gets a cup of coffee and continues to chat with fellow Y members. I sit quietly only when I am intent on an edit—or when complete weariness has almost knocked me over. He needs to socialize. My need to accomplish does not necessarily preempt his mission to celebrate the company of fellow senior citizens. I know my agenda needs flexibility, more smell-the-roses time. However, wind-up-and-go is my natural mode.

I intentionally breathe in and out slowly: breathe in to a count of five, out to a count of ten, a soul-cleansing effort. My list seems jumbled anyway. I’m not sure what I planned to do next, or what I have forgotten. I’m on auto-pilot and the plane may or may not have enough gas to get to my destination.

Then I notice Jay is talking to Nora, director of the senior programs at the Y. Nora has an attitude that brightens everyone around her. She is carrying a package. Jay motions to me to come and see it. I’m glad I didn’t insist that we leave the Y as soon as our class ended. The package is a present from Nora to Ella, a hand-made doll with a bright red crocheted dress and wrap. Nora and Ella are good friends. Our little girl has impressed Nora. Ella affects people without realizing it. Last month a young girl bought Ella a present at a rummage sale, because Ella had been charming. I think our youngest granddaughter’s extra chromosome has been misnamed; she has Up syndrome.

As I place the gift in the trunk of the car and prepare for our next errand, I sigh. My oh-so-essential list may or may not get completed. It does not matter. Have I made anyone smile today? Have I pointed out something good about a person that he or she hadn’t noticed? Have I spread a little sunshine, like Nora or like Ella do? Maybe those are the items I need to put first on my list.

To all, have a wonderful holiday.

 

A photo of Ella’s first printing, taken by another of her grandmothers, Alice. Maybe the E isn’t really backwards. It could be facing toward someone on the other side of where she stands.

Ella isn’t leaving anyone out!

Thanks for the photo, Alice!

first printing

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When you are loved, you can do anything in creation. When you are loved, there’s no need at all to understand what’s happening, because everything happens within you. (Paulo Coelho)

Preschool and kindergarten-aged boys and girls in mismatched socks to designate left and right leg movements, sit facing a mirror with their instructors and occupational therapists. The kids’ families watch ballet class begin—this is recital day.

A couple of the class members react to the rhythm of the music. Others move to their own inner melodies. Some seem shy; others outgoing. One little girl runs as if the polished floor were a glossy playground. A man, probably her father, repeatedly brings her back into the group. All of the children have Down syndrome; none of them fit a pre-cut so-called handicapped pattern. They are unique individuals.

I watch and take pictures that are too fuzzy to save. Perhaps for me this moment can’t be held in a square frozen in time anyway. The program continues as Ella takes the hand of the girl who has been running freestyle and they explore movement through large, pastel-colored hoops. I envision the imaginations of these almost-dancers explode.

No, this isn’t ballet in the traditional sense—it doesn’t need to be. Actually, I need to control a perfectionism I see in myself. I begin each day with enthusiasm, carpe diem all the way. Then my eagerness morphs into frenzy. By noon my energy frizzles. I often jump through self-imposed hoops without enjoying the current moment.

Perhaps it is the perfectionism in me that sparks annoyance when someone needs to give every detail about her son or granddaughter’s perfect SAT scores. “That’s nice.” But if that story began with a struggle that has a survivor element in it, my interest rises. I’d rather hear about the child with a disability who made it despite the odds. Or the tale about how a loving home changed the life of a troubled teen. Sure, a natural ability is good, but what is being done with that talent—besides a claim to superiority?

These children in the ballet class and their families don’t make I’m-the-best statements. They don’t apologize either. In a poem I had published in “For a Better World 2012″ edited by Saad Ghosn, one stanza begins with:

My granddaughter has Down syndrome, I say.

I’m sorry, the reply.

I’m not, my answer.

As I read those direct-not-metaphorical lines at the public library in April I saw eyes widen, some with surprise, others with a smile. The folk with a smile either knew my little girl or they knew someone like her. They understood resilience, possibilities, not an extra chromosome.

Love has enormous power. Unfortunately it doesn’t come packaged in a neat Hallmark card. If it did utopia would be as common as MacDonald restaurants and ants at a picnic. Ella knows the word no and says it clearly. She can be as stubborn as any other child. However, she has a lot to offer the world, and so do the other children in this class.

I don’t need to understand what is happening as I relax and enjoy the moment; I only need to know that it is good, and that my first Christmas gift is in the form of a queue of children. They move in an awkward oblong shape while holding streams of white ribbon, grins escaping like sunshine through the inevitable solstice.

how awesome you are

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Vision is the art of seeing things invisible. (Jonathan Swift)

As I’m sorting the mountain of items on top of my dresser I find an old earring in a box of don’t-throw-out-yet-stuff—the mate was cracked and discarded in another decade. The relationship with the gentleman who gave it to me shattered long before the jewelry did. In another century. Admittedly I did not appreciate the gift at the time. It probably cost my fiancé more than I realized. But I needed to experience a profound personal loss to realize that the only reason I continued the relationship with this young man was because I didn’t think anyone else would ever take an interest in me. The two of us had nothing in common.

Now, as I discard that earring in the trash I forgive us for our ignorance. He had no idea how lost I felt at the time, and I had no way to explain the inside of a vacuum. My vision has changed; I suspect his has, too. He married someone else and so did I.

Now, many dark, bright, and muted-colored years later, my husband of 43 years plays Christmas music on our CD player while I clean. I recall Simon and Garfunkel’s Silent Night/7O’clock News from their “Parsley, Sage, Rosemary and Thyme” album of 1966. It appeared during my own difficult time. Crime reports and promises of continued war played in the background of gentle sound, a bizarre kind of counterpoint. In some ways not much has changed. The challenge of peace remains immense, even on a personal level.

Sure I like days where the sun shines with amiable warmth and I have enough time to do whatever I want, whenever I want to do it. I doubt that these are the moments where I grow most, however. Chances are if my life had been cushioned in silk and affluence in a the-world-centers-around-me existence I wouldn’t appreciate innate beauty.

I wouldn’t smile all the way from my lips through my heart and into my gut every time Katie J. posts a new entry in her blog for Elysium. Kyle, like my Ella, has Down syndrome. Katie tells about the joys of her young son’s life, but she does not minimize the challenges. I appreciate her honesty, as well as the information she shares about Trisomy 21, what it affects and what it doesn’t. Both Kyle and Ella have a deep capacity for love without strings attached.

These are kids, scoffers may say. You can’t predict a life based on early cuteness. Yet, I have met adults with Down syndrome who have not lost the gift of innocent goodness. And it is a gift.

I think about that silly box on my dresser with mismatched, lost or broken pieces. This is probably the time to get rid of those useless attachments and become more like Ella and Kyle. Things will never make me happy. People-who-care can; they have. Knowing people who don’t have an agenda make discarding the past even easier.

happiness without a reason

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A man should always consider how much he has more than he wants and how much more unhappy he might be than he really is. (Joseph Addison)

A new song for my small church community runs through my mind. It fits for the last Sunday in November when I will be leading our service, but I haven’t played guitar in so long my electronic tuner needs a new battery. I gradually stopped practicing after an injection of Kenalog in my middle finger did nothing for bone-on-bone arthritis. My finger picking had become uneven, jerky, irritating even to an audience of one. Me.

But, I have been missing my old friend, music. She speaks directly into my soul through sound, mood, and harmony. The new words and chord transitions that are coming to me won’t stay in my memory unless I let my fingers know how to find the magical connections along the frets. I can still hold a pick—for now. My right hand has been gradually turning into a claw. I can’t flatten it as easily as I can my left. And  those fingers don’t look that straight either. Maybe the hand doctor will bring some hope when I see him on Friday. Maybe.

In the meantime my Big Baby Taylor fits my short frame well. Big Baby is not a person, and therefore is incapable of human resentment. It doesn’t care that I left it in a gig bag for months at a time. Sure it is seriously out of tune. But a turn of a few keys and an enthusiastic greeting will renew our relationship. As I consider lyrics I realize that keep-it-simple is essential, in both message and style. Words like I-love-you may be ordinary, but a two-year-old understands what they mean.

When I accept less-than-perfect I’m ready to go. The finished song appears using four chords in a major key. And in between each beat I consider all the people in my life who struggle: I just learned about someone who has non-alcoholic cirrhosis of the liver and waits for a transplant. A very young woman discovered she has advanced cancer; Stories about inequities everywhere seem to rise from the ground and fall from the sky. I’m not sure I know anyone unaffected in some way.

Yet, if I never experienced darkness I’m not sure I could appreciate light. Perhaps the struggle to control my hands makes the sound they create sweeter—not in an accomplished sense—in a spiritual way.

The first verse to my song: ONE LIGHT is not written for any particular religion. The first verse is printed below. I aspire to live the Dalai Lama’s definition: “My religion is kindness.” Someday I may be able to share the finished work through YouTube. Right now my performance needs entirely too much practice.

Who knows? Maybe I will succeed. Maybe not. I know someone who plays exquisite guitar without several of his fingertips. Grandma Moses was 85-years-old when she started to paint. Right now I’m assuming that my hands will heal, or that I will find a way to maneuver with what I have.

One light can shine through darkest times.

One light can pierce great fear.

One love can touch a heart of stone,

And teach it how to sing.

Peace and light upon all!

believing something amazing is about to happen

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Don’t judge each day by the harvest you reap, but by the seeds you plant. (Robert Louis Stevenson, novelist, essayist, and poet, 1850-1894) 

I decide to let my two older grandchildren know their overnight visit is important by serving their breakfast on our good china.

However, I am in more of a hurry than I realize. One of my husband’s favorite gold-edged beer glasses falls and shatters on our hardwood floor as soon as I unlatch the cabinet door.

“Oh, oh, got a delay here,” I say, although that isn’t really what I am thinking. Irritation wants to rise and boil inside me—at my lack of awareness, at my eagerness to bite off more than I can chew.

Fortunately my husband doesn’t complain. He simply suggests vacuuming as well as sweeping, and I tell the girls that shoes are a must right now, whether they match their jammies or not.

“What’s a delay?” seven-year-old Rebe asks.

“It means something isn’t going to happen exactly on time,” I say.

Rebe doesn’t appear to completely understand.

“You know,” ten-year-old Kate says. “When it snows we have a two-hour delay. That means school starts later.”

I’m distracted; Kate uses examples her little sister recognizes. I’m grateful for my number-one granddaughter’s explanation. I turned down the heat on the stove before I grabbed the broom. But without saying a word, Kate has made the texture of our scrambled eggs look terrific. And I thank her for her helpfulness.

I think about how easily this moment could have gone downhill. I was upset that my plans were interrupted by my own clumsiness. And I was one-frayed-hair-away from allowing a long stream of inappropriate language from destroying the atmosphere.

At a settled, much more comfortable time later, I consider how strange life can be. In our culture we deify the perfect score on a test, the body with the ideal BMI, the quintessential existence that fits on a travel magazine cover, but never inside a real-life experience. Yet, the sequoia, the oldest and largest tree on earth, depends upon fire to flourish. Fire prepares the soil and allows the seed to germinate. Individuals who have always been coddled curdle when they discover the sun doesn’t revolve around their needs. Plants need a balance of both sun and rain to grow.

Somehow I suspect that the human being needs just enough imperfection to be real. A flower, a tomato, or an oak isn’t promised fruition by any single seed. Perhaps that is why we need so many of them. And thank goodness life offers more than one patience-test. A pass-fail system would put most of us in jeopardy.

planting seeds

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We are a landscape of all we have seen. (Isamu Naguchi, sculptor and architect, 1904-1988) 

 As I enter the lab for routine blood tests I see the phlebotomist, a physician from Pakistan working her way into the U.S. system, talking to someone getting ready to leave the building. The two women laugh and embrace like old friends. Apparently they have been sharing similar life experiences. Their meeting has been a blessed serendipity.

I think about unexpected moments I have had: encouragement from unlikely sources, the answer to a pesky problem when I hadn’t brought up the subject, a story about overcoming tragedy when I need a dose of courage.

In fact, before a water aerobics class I talk to a fellow Y member who tells me his sister died from a brain tumor when she was three. He admits that the experience was not easy for him, but he does not speak as if that event exists now—only that it happened. His childhood journey had its metaphorical rocks and broken glass.

The chlorinated water soothes me as the class kicks and jumps and makes waves. Actually this hour wouldn’t be much fun without the action. And life would be pretty gosh-darned boring without its difficulties. Although in the everyday-doing I would like to spare my youngest granddaughter open-heart surgery. My right hand, gnarled with arthritis, would uncurl and flex with ease, not work toward tightening into a claw. I’m fighting that; I have an appointment with a hand specialist soon.

In the meantime I plan to write as much as I always do and let the warm pool water embrace my body and spirit whenever possible. I let the relaxing movement remind me of the gifts I have been given: My youngest granddaughter will not teach nuclear physics to a select elite—she will teach anyone who meets her about love and acceptance. My middle granddaughter exudes imagination, humor, and honesty. My oldest granddaughter spreads enthusiasm and determination. Last week my oldest granddaughter and I talked about how difficult it is for celebrities to maintain perspective when they are viewed as center-of-the-universe figures. I am impressed. She sees with depth, not a me-me-me attitude.

Two women on the other side of the pool laugh; they wave at me. I met the beauty of who they are last week. The landscape of all I have seen expands. I pray to use those gifts well.

knowing darkness before knowing light Optimism Revolution

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Most of us spend too much time on what is urgent and not enough time on what is important. (Stephen Covey)

 My husband, younger son, youngest granddaughter and I have traveled across two states to visit my 94-year-old mother-in-law. Daylight has barely replaced darkness as Ella climbs onto the foot of her great grandmother’s bed. Nana is awake; she greets her, and then closes her eyes again. Ella leans toward her. “Wake up!”

Great grandmother shows no sign of hearing. She sleeps most of the time. After Nana rouses she complains that the little girl was something of a pain. However, she doesn’t seem to hold a grudge. The two adore one another. I have no doubt that Ella sees into the older woman’s spirit and recognizes a need for a laugh or two before she moves into another dimension, whenever that time arrives. Nana was in hospice care, and then improved. She is one tenacious lady.

I have heard that people in the last stages of life appear to be unresponsive, but they hear every sound. I decide to be quieter as I work in the kitchen, bang fewer pots as I dry them, raise my voice only when absolutely necessary—or when I share something uplifting about Nana’s life.

I feel the spirit of late Midwestern autumn during this visit. The wind blows the last of the tenacious don’t-wanna-let-go-yet leaves from one yard to another. Most deciduous trees are bare, or sparse. The red and yellow patterns have already turned to a crisp brown, ready to be crushed underfoot, dissolving along with the experiences of past seasons. Winter is inevitable. Nothing lasts forever.

In Nana’s room Ella pretends to be a bear, growling as Nana responds with feigned fear. “Save me! I’m so scared.”

Wild Woman has replaced Wild Man, my name for her daddy as he was growing up. And we celebrate both past and present, even as time moves on an inevitable course. I wonder if time were unlimited how much of it I would savor, how much I would waste. At age twenty-five my youth seemed invincible. My head knew clocks don’t travel in reverse except in fantasy. But the days until my next vacation seemed as uncountable as slender grains of rice. Old age lived in the next century, an era beginning in the year 2000—as far away as Jupiter or Mars. Now that year has passed. I’m not sure when I will embrace the term old. But I know each moment is important and must be used well.

So I tell my mother-in-law that I chose to spend more time with my grandchildren because she had chosen to spend time with my children. She showed me how beautiful and strong the bond with a young person could become.

Ella smiles and reaches for me. We will be sitting next to one another during the drive back across two states. I couldn’t ask for a better traveling companion.

decorate life with colors

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You cannot create experience. You must undergo it. (Albert Camus)

As I get into the car to pick up my number-one granddaughter from school I wonder how much energy I have left in this sixty-eight-year-old body. Hopefully, I’ll last through the hour and a half before Kate’s music lesson. However, Kate’s enthusiasm is contagious. She continues in high gear to tell me about school events, and she doesn’t soften the blow about the difficult moments. I am grateful for my new hearing aids and for a restaurant that isn’t exceptionally noisy as she tells me about unfair situations that affect other kids and how she discerns her part in helping. Her wisdom shows restraint as well as concern, the ability to know when to jump in and when to wait for a safer, more effective moment.

Every freckle on her face glows and I revel in her fresh beauty.

I am now awake, aware; chances to learn surround me. Sometimes those moments are pure gift, the opportunity to simply say thank you. My most recent short story at Piker Press, Return of the Goldfinch, was published one day before a long-time friend’s brother died. Judy had taken care of her brother in her home during his final days. The story comforted her. While I can be grateful for that, the greater gift is my awareness of a friend who gave her home to a brother who could give nothing of material value back. Judy gives because she is Judy. I am blessed because I know her. My spirit awakens as I think about her. She gave her brother the opportunity to fly from a weakened body. In peace.

My youngest granddaughter, Ella, has led me toward the narrower, higher path since the day she was born. I had the notion that I would spend my day writing to my heart’s content. Page upon page would pour from my spirit because I had just retired. Time could now be mine! A divine higher power had other plans. Ella was born seven weeks early, with Down syndrome; she would need two surgeries before leaving the hospital. A giraffe bed in an intensive care unit was her first home. Since her parents needed to return to work I was among the chosen caregivers. Not only did my spirit deepen so that I could write on a more effective level, I made a new friend—an infant who would become my teacher.

In fact, when Ella was barely crawling, my husband was watching a movie too violent for me. One scene came painfully close to my own experience. That long-ago incident does not need to be relayed  here, but as the drama unfolded I gasped as if I were the young woman on the screen, as if time had removed almost fifty years of my life in the flash of a movie frame. Ella climbed into my lap. She looked directly into my eyes as if to say, Look at me, not into the past. And I saw such beauty and compassion in my granddaughter’s eyes that I knew wisdom lived inside this child. I felt blessed to be in her world.

Yes, the narrow road ahead that involved her care would be difficult. Not everyone would understand that a child with special needs gives more than the cost entails.

Easy isn’t always better.

I suspect that if I had taken a nap instead of spent time with my oldest granddaughter on this ordinary Wednesday afternoon, I would have awakened groggier than ever. And this train of thought would have never begun.

I wonder what opportunities tomorrow will bring. But that is on tomorrow’s agenda.

conquer fear beginning of wisdom narrow bridge

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Life is 10% what happens to you and 90% how you react to it. (Charles Swindoll)

Several weeks ago a woman at the Y’s Waterpark complained to me that I carried my granddaughter through an adults-only-time section a few minutes before that time ended. The lifeguard on duty apologized to me for her rudeness. Apparently she ranted further when her husband arrived. Although that same woman returned my intentional I’m-not-taking-this-personally smile later in the locker room, my heart had not forgotten the incident, and I had her pegged as a chronic complainer.

Now weeks later I see her again at the park. At first I avoid her. But, I do not want to limit the space I can move because of one person and a maybe-encounter. Besides, I could be wrong. The woman is in the swirling whirlpool center inside the walking channel. Ella wants to explore the shallow edge by the wall. The woman is sitting against one side. She is not facing us. When my granddaughter gets close to the woman I grab my little girl and begin several pretend games. We fly across a lake as birds; then we cross in make-believe boats, as if the area the woman fills were huge and not the space any one ordinary-sized human being can take up. Finally, Ella pauses and says, “hi.” At first the woman does not respond.

To be expected, I think, and then reach for my precious girl. Then the woman turns around. “You were here with your grandfather last week weren’t you?” she asks Ella in a pleasant voice.

Ella says nothing so I respond. “Yes,” I answered. “She was.”

“And we tossed ball together.”

I remember a small green rubber ball Jay brought last week. One week Jay takes an exercise class during this time; the next week I do. (Our first choice is spending time with Ella.)

“I think Ella remembers you,” I say.

And suddenly this woman and I are talking as if we were old friends. A little girl with very little language has taught me another lesson about being open to other people, not making snap judgments based on incomplete evidence.

“Have a blessed day,” I say as the woman leaves the Waterpark area. My day has already been touched by the extraordinary.

first impressions words to inspire the soul

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There are no seven wonders of the world in the eyes of a child. There are seven million. (Walt Streightiff)

Ella runs into our house. Enthusiasm exudes from her being. She carries a present for her daddy’s birthday—from her. The package is about the size and shape of a pound of delicatessen hamburger; it is gift wrapped in her artwork.

Daddy Steve laughs. “She told me in the car what it was: coffee.”

Of course we can’t wait for the traditional present-opening moment: dinner and then a loud rendition of the birthday song, careful cake slicing that gets messy anyway, followed by ice-cream scooping. “Do you want to help Daddy open his present now?” I ask.

A spoken answer is unnecessary. Her jump into action is response enough. A bag of bold-flavored coffee appears under the wrapping. And Ella doesn’t know that her real gift is the love of a blonde five-year-old girl with a spirit that could charm a wolverine.

She will need that power soon. Ella was born with an A/V canal defect. Only half of her heart worked. Her surgery was successful. She plays with the same vigor any other young child displays. However, a routine echo cardiogram showed a blockage. It is causing no apparent problem now, but as she grows it will interfere. She faces open-heart surgery again after the first of the year.

Her surgeon has an excellent reputation. In these days open heart surgery is almost a routine procedure. However, the gentleness of her heart requires no repair. She draws people to her with gravitational power. She gives lessons: in patience, spontaneity, forgiveness, and resilience. Moreover, she charges no fee, only a willingness from her observers to change, to be aware of perspectives, to see hidden beauty that has always been there. Unnoticed.

I think about how I felt as a child as I stood, the top of my head at a grownup’s belly button. A higher stature seemed unreachable. Moreover, I felt perpetually unworthy. An adult was another species, a creature-from-another-world who didn’t spill juice or make too much noise in church. The importance of rules of behavior was ingrained into my soul long before I could read or prioritize. So, life’s directives were vague, negative, built on shame.

Since then I’ve learned to see differently—I don’t live in the past. It’s simply a place to visit now and then. However, I make sure that my grandchildren and I live on the same planet and that we learn from one another. As an adult I may have the advantage of years, but my granddaughters offer freshness.

Ella has Down syndrome. Many people may look down on her because of it. But those who look into her eyes know that she offers all that she is—and she doesn’t even know that is unusual.

when a child gives you a rock

 

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