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Posts Tagged ‘childhood innocence’

Happiness is a butterfly, which when pursued, is always just beyond your grasp, but which, if you will sit down quietly, may alight upon you. (Nathaniel Hawthorne)

Ella pulls toys from the shelf. She hands me a soft baby doll and then takes picture flash cards out of the box. She holds up the cards for the doll to learn the words. I provide the voice for the toy.

An hour ago our granddaughter had a fever. She kept my iPad close to her but she didn’t seem to be able to focus. No video or game could take away her discomfort. One dose of children’s acetaminophen brings her back to play, to smiles, to an interest in her favorite foods.

I want my precious girl to be well now. I can’t yank infection from her system with wishes. Antipyretics are temporary. She sees the doctor today. My husband and I wait for those moments of shared happiness, that grin that says: I’m a fighter. Down syndrome hasn’t thrown me. An illness won’t either.

Not that she could say that with grownup words. Ella has her difficult moments, but her version of a crabby day isn’t easily noticed because it doesn’t resemble another child’s I-want-it-my-way tantrum. She doesn’t demand. Her first words when she arrived at the house this morning were, “I’m sick.” Yet, poor-me isn’t in her, and her statement did not appear with a pout or whine. She mentioned it as fact.

Now as her temperature eases down toward normal, her natural happiness reappears and her ability to capture joy alights upon me. It settles into my being, at least for a while.

On most days I have a difficult time sitting still to watch more than one television show, even if the program happens to be riveting. My agenda calls me to write, clean, do laundry—even scrub a toilet. Yet, I can sit next to my granddaughter for hours while my neurotic need for action remains on hold.

Her small frame lies curled in my lap and I massage her back with as light a touch as I can manage. The fever has returned. She turns toward me and smiles. The butterfly has landed, and I don’t want it to fly away. Ever.

***

Ella’s mommy calls after Ella’s appointment. She has a virus and a sinus infection. Nothing dire. I am grateful…I am grateful…I am grateful…

Photo by photographer, Sue Wilke

butterfly on green background, Sue Wilke

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I knew when I met you an adventure was going to happen. (A.A. Milne)

When my oldest granddaughter was born, eleven years ago today, I was overjoyed. Of course she was the most beautiful baby in the world with big round, observant eyes and her mother’s dark hair. Naturally I was expected to ooh and ah about my grandchild. All babies are wonderful even if they arrive premature, huge, with wild hair or none at all, with or without disabilities. The newborn with more wrinkles than an English bulldog, a perfect clone to a ninety-year-old relative, is a gift.

However, our Kate was incredible from day one. Her bright eyes predicted her future. She would become charismatic and gentle, a natural in social situations, as well as Grandma’s teacher about life and gratitude.

Kate’s parents had child care lined up for when Mommy went back to work. However, I had learned from my mother-in-law how deep a grandparent-grandchild relationship can become. And I wanted that gift. Since I worked part-time Kate and I were together on Fridays.

I was grateful that I did not need to watch my first granddaughter grow from a distance. My computer room became a computer/toy room and it housed balls, cars, and puzzles. Stuffed animals took on human roles. Bears and bunnies ate whatever cook-Kate pretended to prepare for them. We had adventures and read picture books together.

Friday was Toddler Story Time at the library. Kate loved it. In fact, when she refused to leave one day, and then ran away from me and fell, her barrette sliced the back of her head. She recovered from the several-stitches-that-followed long before I did.

Now, Kate sees the places in other people that need stitches—not the kind that can be repaired with a surgical needle and thread. She is the girl who defends the other kids when they are taunted by bullies, the person the child with autism trusts. Kate does not see disability. She sees the person.

And I learn from her beautiful spirit, her enthusiasm, her growth. Actually she is about a hair taller than I am now. She shows me the secrets inside the iPad I don’t understand. She explains the rules of girls’ basketball, but doesn’t give me a hard time when my shots don’t come anywhere close to the basket.

Many years ago she asked me how long I would live. Obviously I didn’t have an answer, but I told her that I hoped to dance at her wedding. She bought the answer. For now I simply wish her peace, and joy, and a special kind of mirror—the kind that sees inside to all the beauty that lives within her spirit, budding, blossoming, becoming even more wonderful every day.

Happy Birthday, Kate! I love you.

learning from children  morning coach

 

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All I ever really want to know is how other people are making it through life—where do they put their body, hour by hour, and how do they cope inside of it. (Miranda July)

Snow falls and covers bushes, grass, streets, and parked cars. My tiny church community cancels services for the third week in a row. We had decided on a Lenten theme, “Be Still and Know I am God,” based on the psalm. That phrase repeats in a song I wrote for my community. My guitar remains in its gig bag; I imagine the instrument telling me it wants to stay in a thermal-underwear environment. The stillness in the verse feels held under snow, the next moment frozen, hidden without discernible answers about what to do next, or the nature of the whole of life. A plow or shovel touches only the surface of the issue.

I find myself wanting to adjust and re-adjust the day’s plans as if they were mismatched place settings at a large table. Since my mother-in-law’s memorial service was yesterday, out-of-town family is visiting. I have a few promised projects to complete. Moreover, my oldest granddaughter has a basketball tournament this afternoon. My growing frenzy lets me know choosing option-all is not going to work, especially with March bursting in like a frosty albino lion.

Pause, I tell myself. Be mindful of what you are doing. I have been working at the computer for a minute or two, and then stopping to do a household chore, talking on the phone, looking for items I don’t need until next week…trimming a sharp-edged fingernail. I behave like a moth following a flashlight with weak batteries.

I think about my mother-in-law, about the impact she made on everyone she met, how she cared about how other people made it through life, day by day, hour by hour. And I decide that perhaps that is the key. How do other people live? What are their stories? If I am involved in caring about someone else, my concerns find edges that take shape, unlike my shaggy, broken fingernail. And so does my writing. Most of the time I discover that other folk and I share the same core feelings. Everyone doesn’t necessarily express them in the same way. But inside the individual, when the self-protection and personal issues are stripped away, identical needs remain.

The day my mother-in-law died I remember feeling a sudden, inexplicable moment of peace. It was followed by the sense that she had a message for me although it did not come in her voice or have any other-world tones. It did appear to be direct, which was her style: You have never been confident, but you will be now. You have the strength you need to succeed. Something good is about to happen and you will be ready for the challenge.

The next day I was offered a book contract for a fictional work. Since this is a new development I will simply reveal that the tale is fantasy about an eleven-year-old boy. The book was written for kids about that age. The premise, however, is universal enough to engage an adult. (At least I hope it will.) Chase, the main character, thinks he isn’t even good enough to be ordinary. Yet, he has gifts he doesn’t know about that include magic. None of those gifts appear at the touch of a magic wand. First, he needs to break a curse…when he has a broken leg and his best-and-only friend was just killed in an accident.*

I’m not sure anyone is ordinary, or that anything great happens without effort.

*further info about publisher and publication to come

early morning view from our back window, my learning center until the snow stops…

contrast plant with snow

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Giving opens the way for receiving. (Florence Scovel Shinn)

The cord to the tree lights is a tad out of my reach. Sure, I could ask Jay to help, but he is in the middle of working on our finances. The two older grandchildren will be here any minute. I’d like to greet Kate and Rebe with some sparkle from the tree, up for only a few more days. Str-e-e-tch your short body, Terry, one more inch, one m-o-o-o-o-re…

Maybe not such a good idea. Crash! My son is pulling into the driveway. The girls run to the front door. They are greeted by broken glass and scattered ornaments. Son number one is going to be late for work. And he can blame it on his clumsy mama. Fortunately, he doesn’t waste time with unnecessary words. He sets the tree upright and leaves with a pleasant good-bye, see-you-later as I get the garbage can and Kate cracks the eggs for breakfast.

Electricity becomes the un-theme of the day after Kate becomes enthralled with a battery-operated candle flame and tiny glass lantern. She decides we will pretend to be a pre-modern-appliance-aged family. We weave our own clothes, plant and grow our own fruits and vegetables, as well as maintain an orchard, an old artificial pine with a few wayward branches in the real world. The television and iPad remain off for most of the day.

Some exquisitely embroidered pillows, a precious and unexpected late Christmas gift to the girls, also become an important part of the game. They provide portable bedding—the pillows travel from one-room cabin to tent to wagon train as the day progresses. The photo below was taken under a sheet tent made with the dining room chairs as posts.

“Don’t you want to go out somewhere today?” I ask the girls.

“No, we want to stay here and play, they both answer.

“Besides,” Kate adds. “Cars haven’t been invented yet.” Okay, so the answer is something of an anachronism, but if our house is a suitable playground, I guess I really can’t complain, even if the day did begin with a broken-glass cleanup. The tree comes down by the feast of the Epiphany anyway. The fun, I’m hoping, lives here.

pillows from Nora

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No matter what he does, every person on earth plays a central role in the history of the world. And normally he doesn’t know it. (Paulo Coelho)

As usual, I’m eager to move to the next chore on my must-do-today list as my husband, Jay, gets a cup of coffee and continues to chat with fellow Y members. I sit quietly only when I am intent on an edit—or when complete weariness has almost knocked me over. He needs to socialize. My need to accomplish does not necessarily preempt his mission to celebrate the company of fellow senior citizens. I know my agenda needs flexibility, more smell-the-roses time. However, wind-up-and-go is my natural mode.

I intentionally breathe in and out slowly: breathe in to a count of five, out to a count of ten, a soul-cleansing effort. My list seems jumbled anyway. I’m not sure what I planned to do next, or what I have forgotten. I’m on auto-pilot and the plane may or may not have enough gas to get to my destination.

Then I notice Jay is talking to Nora, director of the senior programs at the Y. Nora has an attitude that brightens everyone around her. She is carrying a package. Jay motions to me to come and see it. I’m glad I didn’t insist that we leave the Y as soon as our class ended. The package is a present from Nora to Ella, a hand-made doll with a bright red crocheted dress and wrap. Nora and Ella are good friends. Our little girl has impressed Nora. Ella affects people without realizing it. Last month a young girl bought Ella a present at a rummage sale, because Ella had been charming. I think our youngest granddaughter’s extra chromosome has been misnamed; she has Up syndrome.

As I place the gift in the trunk of the car and prepare for our next errand, I sigh. My oh-so-essential list may or may not get completed. It does not matter. Have I made anyone smile today? Have I pointed out something good about a person that he or she hadn’t noticed? Have I spread a little sunshine, like Nora or like Ella do? Maybe those are the items I need to put first on my list.

To all, have a wonderful holiday.

 

A photo of Ella’s first printing, taken by another of her grandmothers, Alice. Maybe the E isn’t really backwards. It could be facing toward someone on the other side of where she stands.

Ella isn’t leaving anyone out!

Thanks for the photo, Alice!

first printing

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When you are loved, you can do anything in creation. When you are loved, there’s no need at all to understand what’s happening, because everything happens within you. (Paulo Coelho)

Preschool and kindergarten-aged boys and girls in mismatched socks to designate left and right leg movements, sit facing a mirror with their instructors and occupational therapists. The kids’ families watch ballet class begin—this is recital day.

A couple of the class members react to the rhythm of the music. Others move to their own inner melodies. Some seem shy; others outgoing. One little girl runs as if the polished floor were a glossy playground. A man, probably her father, repeatedly brings her back into the group. All of the children have Down syndrome; none of them fit a pre-cut so-called handicapped pattern. They are unique individuals.

I watch and take pictures that are too fuzzy to save. Perhaps for me this moment can’t be held in a square frozen in time anyway. The program continues as Ella takes the hand of the girl who has been running freestyle and they explore movement through large, pastel-colored hoops. I envision the imaginations of these almost-dancers explode.

No, this isn’t ballet in the traditional sense—it doesn’t need to be. Actually, I need to control a perfectionism I see in myself. I begin each day with enthusiasm, carpe diem all the way. Then my eagerness morphs into frenzy. By noon my energy frizzles. I often jump through self-imposed hoops without enjoying the current moment.

Perhaps it is the perfectionism in me that sparks annoyance when someone needs to give every detail about her son or granddaughter’s perfect SAT scores. “That’s nice.” But if that story began with a struggle that has a survivor element in it, my interest rises. I’d rather hear about the child with a disability who made it despite the odds. Or the tale about how a loving home changed the life of a troubled teen. Sure, a natural ability is good, but what is being done with that talent—besides a claim to superiority?

These children in the ballet class and their families don’t make I’m-the-best statements. They don’t apologize either. In a poem I had published in “For a Better World 2012″ edited by Saad Ghosn, one stanza begins with:

My granddaughter has Down syndrome, I say.

I’m sorry, the reply.

I’m not, my answer.

As I read those direct-not-metaphorical lines at the public library in April I saw eyes widen, some with surprise, others with a smile. The folk with a smile either knew my little girl or they knew someone like her. They understood resilience, possibilities, not an extra chromosome.

Love has enormous power. Unfortunately it doesn’t come packaged in a neat Hallmark card. If it did utopia would be as common as MacDonald restaurants and ants at a picnic. Ella knows the word no and says it clearly. She can be as stubborn as any other child. However, she has a lot to offer the world, and so do the other children in this class.

I don’t need to understand what is happening as I relax and enjoy the moment; I only need to know that it is good, and that my first Christmas gift is in the form of a queue of children. They move in an awkward oblong shape while holding streams of white ribbon, grins escaping like sunshine through the inevitable solstice.

how awesome you are

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Vision is the art of seeing things invisible. (Jonathan Swift)

As I’m sorting the mountain of items on top of my dresser I find an old earring in a box of don’t-throw-out-yet-stuff—the mate was cracked and discarded in another decade. The relationship with the gentleman who gave it to me shattered long before the jewelry did. In another century. Admittedly I did not appreciate the gift at the time. It probably cost my fiancé more than I realized. But I needed to experience a profound personal loss to realize that the only reason I continued the relationship with this young man was because I didn’t think anyone else would ever take an interest in me. The two of us had nothing in common.

Now, as I discard that earring in the trash I forgive us for our ignorance. He had no idea how lost I felt at the time, and I had no way to explain the inside of a vacuum. My vision has changed; I suspect his has, too. He married someone else and so did I.

Now, many dark, bright, and muted-colored years later, my husband of 43 years plays Christmas music on our CD player while I clean. I recall Simon and Garfunkel’s Silent Night/7O’clock News from their “Parsley, Sage, Rosemary and Thyme” album of 1966. It appeared during my own difficult time. Crime reports and promises of continued war played in the background of gentle sound, a bizarre kind of counterpoint. In some ways not much has changed. The challenge of peace remains immense, even on a personal level.

Sure I like days where the sun shines with amiable warmth and I have enough time to do whatever I want, whenever I want to do it. I doubt that these are the moments where I grow most, however. Chances are if my life had been cushioned in silk and affluence in a the-world-centers-around-me existence I wouldn’t appreciate innate beauty.

I wouldn’t smile all the way from my lips through my heart and into my gut every time Katie J. posts a new entry in her blog for Elysium. Kyle, like my Ella, has Down syndrome. Katie tells about the joys of her young son’s life, but she does not minimize the challenges. I appreciate her honesty, as well as the information she shares about Trisomy 21, what it affects and what it doesn’t. Both Kyle and Ella have a deep capacity for love without strings attached.

These are kids, scoffers may say. You can’t predict a life based on early cuteness. Yet, I have met adults with Down syndrome who have not lost the gift of innocent goodness. And it is a gift.

I think about that silly box on my dresser with mismatched, lost or broken pieces. This is probably the time to get rid of those useless attachments and become more like Ella and Kyle. Things will never make me happy. People-who-care can; they have. Knowing people who don’t have an agenda make discarding the past even easier.

happiness without a reason

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You cannot create experience. You must undergo it. (Albert Camus)

As I get into the car to pick up my number-one granddaughter from school I wonder how much energy I have left in this sixty-eight-year-old body. Hopefully, I’ll last through the hour and a half before Kate’s music lesson. However, Kate’s enthusiasm is contagious. She continues in high gear to tell me about school events, and she doesn’t soften the blow about the difficult moments. I am grateful for my new hearing aids and for a restaurant that isn’t exceptionally noisy as she tells me about unfair situations that affect other kids and how she discerns her part in helping. Her wisdom shows restraint as well as concern, the ability to know when to jump in and when to wait for a safer, more effective moment.

Every freckle on her face glows and I revel in her fresh beauty.

I am now awake, aware; chances to learn surround me. Sometimes those moments are pure gift, the opportunity to simply say thank you. My most recent short story at Piker Press, Return of the Goldfinch, was published one day before a long-time friend’s brother died. Judy had taken care of her brother in her home during his final days. The story comforted her. While I can be grateful for that, the greater gift is my awareness of a friend who gave her home to a brother who could give nothing of material value back. Judy gives because she is Judy. I am blessed because I know her. My spirit awakens as I think about her. She gave her brother the opportunity to fly from a weakened body. In peace.

My youngest granddaughter, Ella, has led me toward the narrower, higher path since the day she was born. I had the notion that I would spend my day writing to my heart’s content. Page upon page would pour from my spirit because I had just retired. Time could now be mine! A divine higher power had other plans. Ella was born seven weeks early, with Down syndrome; she would need two surgeries before leaving the hospital. A giraffe bed in an intensive care unit was her first home. Since her parents needed to return to work I was among the chosen caregivers. Not only did my spirit deepen so that I could write on a more effective level, I made a new friend—an infant who would become my teacher.

In fact, when Ella was barely crawling, my husband was watching a movie too violent for me. One scene came painfully close to my own experience. That long-ago incident does not need to be relayed  here, but as the drama unfolded I gasped as if I were the young woman on the screen, as if time had removed almost fifty years of my life in the flash of a movie frame. Ella climbed into my lap. She looked directly into my eyes as if to say, Look at me, not into the past. And I saw such beauty and compassion in my granddaughter’s eyes that I knew wisdom lived inside this child. I felt blessed to be in her world.

Yes, the narrow road ahead that involved her care would be difficult. Not everyone would understand that a child with special needs gives more than the cost entails.

Easy isn’t always better.

I suspect that if I had taken a nap instead of spent time with my oldest granddaughter on this ordinary Wednesday afternoon, I would have awakened groggier than ever. And this train of thought would have never begun.

I wonder what opportunities tomorrow will bring. But that is on tomorrow’s agenda.

conquer fear beginning of wisdom narrow bridge

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Life is 10% what happens to you and 90% how you react to it. (Charles Swindoll)

Several weeks ago a woman at the Y’s Waterpark complained to me that I carried my granddaughter through an adults-only-time section a few minutes before that time ended. The lifeguard on duty apologized to me for her rudeness. Apparently she ranted further when her husband arrived. Although that same woman returned my intentional I’m-not-taking-this-personally smile later in the locker room, my heart had not forgotten the incident, and I had her pegged as a chronic complainer.

Now weeks later I see her again at the park. At first I avoid her. But, I do not want to limit the space I can move because of one person and a maybe-encounter. Besides, I could be wrong. The woman is in the swirling whirlpool center inside the walking channel. Ella wants to explore the shallow edge by the wall. The woman is sitting against one side. She is not facing us. When my granddaughter gets close to the woman I grab my little girl and begin several pretend games. We fly across a lake as birds; then we cross in make-believe boats, as if the area the woman fills were huge and not the space any one ordinary-sized human being can take up. Finally, Ella pauses and says, “hi.” At first the woman does not respond.

To be expected, I think, and then reach for my precious girl. Then the woman turns around. “You were here with your grandfather last week weren’t you?” she asks Ella in a pleasant voice.

Ella says nothing so I respond. “Yes,” I answered. “She was.”

“And we tossed ball together.”

I remember a small green rubber ball Jay brought last week. One week Jay takes an exercise class during this time; the next week I do. (Our first choice is spending time with Ella.)

“I think Ella remembers you,” I say.

And suddenly this woman and I are talking as if we were old friends. A little girl with very little language has taught me another lesson about being open to other people, not making snap judgments based on incomplete evidence.

“Have a blessed day,” I say as the woman leaves the Waterpark area. My day has already been touched by the extraordinary.

first impressions words to inspire the soul

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There are no seven wonders of the world in the eyes of a child. There are seven million. (Walt Streightiff)

Ella runs into our house. Enthusiasm exudes from her being. She carries a present for her daddy’s birthday—from her. The package is about the size and shape of a pound of delicatessen hamburger; it is gift wrapped in her artwork.

Daddy Steve laughs. “She told me in the car what it was: coffee.”

Of course we can’t wait for the traditional present-opening moment: dinner and then a loud rendition of the birthday song, careful cake slicing that gets messy anyway, followed by ice-cream scooping. “Do you want to help Daddy open his present now?” I ask.

A spoken answer is unnecessary. Her jump into action is response enough. A bag of bold-flavored coffee appears under the wrapping. And Ella doesn’t know that her real gift is the love of a blonde five-year-old girl with a spirit that could charm a wolverine.

She will need that power soon. Ella was born with an A/V canal defect. Only half of her heart worked. Her surgery was successful. She plays with the same vigor any other young child displays. However, a routine echo cardiogram showed a blockage. It is causing no apparent problem now, but as she grows it will interfere. She faces open-heart surgery again after the first of the year.

Her surgeon has an excellent reputation. In these days open heart surgery is almost a routine procedure. However, the gentleness of her heart requires no repair. She draws people to her with gravitational power. She gives lessons: in patience, spontaneity, forgiveness, and resilience. Moreover, she charges no fee, only a willingness from her observers to change, to be aware of perspectives, to see hidden beauty that has always been there. Unnoticed.

I think about how I felt as a child as I stood, the top of my head at a grownup’s belly button. A higher stature seemed unreachable. Moreover, I felt perpetually unworthy. An adult was another species, a creature-from-another-world who didn’t spill juice or make too much noise in church. The importance of rules of behavior was ingrained into my soul long before I could read or prioritize. So, life’s directives were vague, negative, built on shame.

Since then I’ve learned to see differently—I don’t live in the past. It’s simply a place to visit now and then. However, I make sure that my grandchildren and I live on the same planet and that we learn from one another. As an adult I may have the advantage of years, but my granddaughters offer freshness.

Ella has Down syndrome. Many people may look down on her because of it. But those who look into her eyes know that she offers all that she is—and she doesn’t even know that is unusual.

when a child gives you a rock

 

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