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Posts Tagged ‘determination’

Happiness is holding someone in your arms and knowing you hold the whole world. (Orhan Pamuk)

Recent talk among several groups of friends has centered on gratitude. I don’t take it as a coincidence. Ella grins at me as she watches several versions of “five little monkeys jumping on the bed” on YouTube. “Oh dear,” she says as each one falls. Falling is forbidden for her at the moment. The stitches in her chest are deep; they will heal from the inside-out and that will take time. The best recovery in a lot of areas begins as an inside job. I put my arm around her and know I hold the whole world.

Small details jump out at me: the pink edging around her shoes, the smallness of her body and hands, the sunshine white-blond of her comb-resistant hair, even the yogurt stains on her jeans.

Her seven-year-old cousin arrives and without a word Ella lifts her t-shirt and shows Rebe her scar. No whimpering. This is a statement of fact. Rebe looks at me, her eyebrows raised, but she doesn’t speak either. She gives Ella a kiss on the cheek. The children seem to know this is answer enough.

Play continues. Pretend games, a mock form of hide-and-seek, i Pad entertainment. Lots of giggles. Running, monitored and limited in a small house.

My memory goes back to a time when I was in water aerobics class. The news had been fresh that our youngest granddaughter would have Down syndrome, an A/V canal defect and duodenal atresia. At that moment we saw our granddaughter as someone who had not yet been born. So far all we knew were problems, unseen and vague roadblocks, the kind that lead many women toward abortion. Ella had not yet seen her parents’ faces and no one had seen hers.

I recall following aerobic moves as a song played in the background. It was only a rhythmic drum beat. I was seeing the rest room doors behind the instructor, not the instructor. I knew our granddaughter would be a girl—that was all. And the rest of what I understood was surrounded with fear. I wanted to know more than the skirted figure on the door of the restroom could tell, and I didn’t want to know.

Now I look into Ella’s eyes and see sapphire blue, a hint of humor, a ton of strength, and a spirit the angels could emulate. Yes, our little girl has been through more surgery in her short life than I have in my almost 69 years. Yet, she accepts the next day as another experience, not the morning after.

“May I sit next to you, Ella?” I ask.

She smiles. A lot of words aren’t always necessary. Sometimes they get in the way of a simple message. Love loses its beauty when it is over-defined.

learning to be brave and patient

 

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Spring is the time of plans and projects. (Leo Tolstoy)

My husband bought a mini Sequoia tree when we visited California last year. The seedling made it through the winter inside the house. The giant, ancient trees have lived to be three thousand years old—but not in the Midwestern United States. The bark may be fire resistant. But I’m not so sure the bi-polar temperatures of our region fit the needs of a Sequoia of any age. Two weeks ago layered clothing was a good idea. The air carried enough chill to make a polar bear feel at home. Today shorts and t-shirts are suitable attire.

Jay put baby Sequoia in the sun to soak up some rays. Unfortunately baby has been losing both color and a few limbs. Now it stands as a tiny, slender six-inch stick that could be mistaken for a pine twig blown into the ground after a storm. We both walk by baby. I won’t speak my thoughts. Jay loves this plant. If it survives I will call it Lazarus II. Jay takes care of the botanist life in our world. Plastic flowers may not be safe under my care. I have better luck feeding human creatures. I can intuit people needs more easily.

One morning as I am leaving the house I see a speck of green in the pot, not on the dried brown twig, but a few inches away. It is barely a quarter of an inch long and green as new grass. The new growth wears the same miniscule spikes that jut from its dried clay-pot mate.

Hope has been born. Tiny. One seed the size of an oatmeal flake can fail for the same reasons any seed doesn’t make it. When we were in one of the California national forests I took a picture of a game wheel that could be spun to discover whether or not your fantasy seed would survive to maturity or not. Would it land onto a rock, become bird food, or travel all the way into the ground and thrive?

Within hours the flash of green in the Sequoia pot yields to sudden summer heat and bends over. I lift it with my pinky, a useless move, probably causing more harm than good. Perhaps I touched it with my black thumb—don’t know.

Possibilities abound. I don’t think about them often. Even the circumstances that make each individual unique are amazing. Perhaps if my mother had conceived at another time a different sperm would have grabbed another egg and created a tall, blue-eyed boy who grew up to be as bald as a chunk of granite but learned to pitch a 90mph fast ball… or a gardener who would never allow a tiny sequoia to die. Okay, the sports hero stuff is unlikely in my family, but I like the notion. It’s a moot point from a realistic point of view, but a glorious one from a gratitude perspective. I am who I am and that needs to be sufficient. The fact of existence is in itself miraculous.

Dead sequoia should have gone out with the yard waste pick-up this morning. Then again, there’s always that fresh little sprout that could appear, even for a moment, even for that one miraculous, celebratory moment.

win big Sequoia seed

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Man has never made any material as resilient as the human spirit. (Bernard Williams)

I have just shared the news that my youngest granddaughter is doing extremely well. Her joy has leaked into me. All is well in my world. However, within minutes I learn that all is not well in another person’s world.

I greet the young woman I introduced in my April 14 post: A Child’s Wish: I Hope You Never Git Hert. She tells me she has stage-four cancer. My hug feels tense, overprotective; I wanted to relay hope, a huge cancer-crushing hope. She ran a marathon last week. That run was her choice. Chemotherapy doesn’t fit anyone’s desire.

I would reach for a second hug-try, but the lack lies within me, not within her. I haven’t processed her news yet. This can’t be real—it is. I sense frailty in her body and I want to change it. Make her well. Now.

Platitudes go nowhere. But I tell her that I thought about her at two in the morning again last night. I did. Perhaps she had taken part in an immediately forgotten dream. It doesn’t matter. Something about her inspires me. An ordinary kind of sacred. I suspect that this girl is planting seeds in people simply by being herself. She demonstrates how courage works, but the kind of growth she initiates in others doesn’t necessarily appear until later—sometimes years.

Philosophical banter is too lofty for someone who is suffering. It isn’t what she needs right now. I tell her once again that she is incredible. She smiles, briefly, as if a little light has gotten through to the part of her that doesn’t see her beauty. Enough for now maybe. Incredible is such a vague word. It doesn’t say as much as I want it to express. At some place every analogy limps. My words can only be a representation of a thought, chosen to celebrate a spirit I want to see thrive as long as possible, the life of a common hero.

She is that hero, with seeds left to plant… and she knows the fight is never easy.

 

Heroes Jodi P PIQ

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The world breaks everyone, and afterward, many are strong at the broken places. (Ernest Hemingway)

My husband and I are at the checkout counter at Trader Joe’s. No one is behind us in line. The girl at the register asks us about our day and Jay tells her we are going to visit our granddaughter in the coronary care unit.

The girl at the checkout pauses, and then gets the attention of a fellow employee who gives us a bouquet of flowers for Ella. I doubt that our little one can have flowers in her room yet, but the gesture takes me by surprise. I hope that a few controlled tears represent sufficient gratitude. Kudos to Trader Joe’s for the personal touch.

Jay found a package of somewhat-natural sweets for Ella. We expect her to respond more to taste than sight at the moment, but her parents should appreciate the kindness of multicolored flowers. No kindness is wasted.

My son sent a picture of our girl with her big, bright eyes glowing. Her hands are tied down to various lines. Nevertheless, she opens her mouth for fruit. Ella is a survivor. We count on that.

When we arrive in her room Ella fights sleep. She doesn’t want to miss anything—except perhaps the next poke or prod. She is sans oxygen now, however. Her ventilator came out earlier. Her open heart surgery was 24-hours ago. She is progressing ahead of schedule.

I think about the start Ella had in life: born seven weeks early with a birth weight of three pounds three ounces, duodenal atresia, and an AV Canal heart defect. Yet the nurses fought about who would care for her each day.

She has grown to be an active, enthusiastic five-year-old girl.

As I watch her I worry that this time her spark will burn out. Then I realize I am looking at my fears, not hers. Ella uses her tripled chromosome as a lever for caring. She doesn’t allow ego to get in her way. She isn’t competing with anyone for first place—in anything.

Two days ago she wanted to push me on the swing at a local park. She insisted, and I let her do it.

“Want to go higher, Mawmaw?”

“Yes!”

But I kept the toe of my shoe on the ground so that the swing didn’t come back to hit her. The surgeon needed to break through her chest—with skill—not through a clumsy accident. I knew what she would be facing. She didn’t. But somehow she intuited it was time to put on extra charm, keep the grandparents at ease. The trial hadn’t come; we had not arrived at the huge medical bridge that needed to be crossed. Yet.

The cut flowers won’t last. They never do. The store’s gesture remains as a ripple of kindness I need to pass along. The broken places in a person become opportunities—to remain severed or to become something new, something better.

Ella’s surgery was on Thursday. By Sunday she has left behind the ventilator, oxygen, and the lines that connect her to a bed. She stands. She will be running soon. Tylenol or ibuprofen controls her pain. I can’t imagine an adult bouncing back that quickly. Ella doesn’t know misery can be extended by choice.

She isn’t ready to push me on any swings yet. But I can’t imagine that it will take long.

Ella at Mt. Airy Park04242015_0000

 

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Change is the end result of all true learning. (Leo Buscaglia) 

I am in the locker room at the Y after a water aerobics class. I hear disconcerting voices around me. They seem loudtoo loud.

“You wouldn’t believe…” comes one voice. “It was the worst thing that ever happened to me,” states another.

I sigh while the spinner absorbs chlorinated water from my swimsuit. Getting the machine started takes some muscle since I need to stand on tiptoe to press the top down, but once the whir begins the excess water disappears within seconds. I can surmise a situation in the same amount of time, with or without all the facts.

Was it really the worst thing that ever happened to you? Or is this statement meant to be exaggerated..? I’m glad my thoughts don’t appear out loud because I haven’t heard anything about this person’s story, not really. And it isn’t my business anyway.

One woman is talking to another as the two prepare for the next water class, a slower moving one. She complains too, or at least that is my first impression. She injured her back and I expect her to give all the details. She catches my eye.

“I did, too,” I say. “Spinal stenosis. Nothing serious. I have exercises that help. I’ll get through it.”

She gives me her name and I give her mine. But the surprise comes as I pick up my bag to leave and she walks toward the pool. “I’ll pray for you if you will pray for me.”

I can’t turn down that offer, so I ask her to add our Ella to her list.

“Wow!” she says. “That sure puts a perspective on things. Such a little girl having open heart surgery like that.” She takes my hand. I’ve never met this woman before and yet she treats me as if she has known me for years. I feel blessed. The pain in my back weakens, at least for a while.

The next time I return to the Y  my companion is present again.  We greet one another by name.

“I remembered to pray for your granddaughter,” she says.

I wince. I offered a ten-second prayer for her. But, I know I can and will do better. Then, as I reach into the locker I wince again, from a stretch that felt a little peculiar.

“Are you okay?” she asks.

“Yes. Really. I am.”

“You have an incredible smile,” she tells me.

I thank her. She has given me another gift, one I hope to remember. Today I have an agenda, a to-do list that becomes easier as I think about other people’s needs, not only my own, and hum the song I wrote and recorded for my granddaughter when she had her first open-heart surgery. She was only a few months old and confined to a giraffe bed in a neonatal intensive care unit then. Her underdeveloped system needed all of its energy for survival. It could not handle extra sounds. I don’t have the facility to transfer the song to this website, but a click on Ella’s Song leads to an older page I no longer maintain.

Finding the good in life, sometimes hidden under a lot of misunderstanding, challenge, and plain old-fashioned self-imposed garbage remains one of my goals. Our little girl has come a long way. I hope to follow her spiritual lead even further as she grows into year six, a few months from now.

Peace upon all.

first impressions words to inspire the soul

 

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Life isn’t about getting and having, it’s about giving and being. (Kevin Kruse)

 As I’m dusting the windowsill I see the note Kate wrote to Ella, probably several years ago. I saved it because it reflects who Kate is. Ordinarily I choose to publish only quotes and pictures that include correct spelling and grammar. However, there are times when perfection can ruin the beauty of the moment. The sincerity of my eldest granddaughter’s wish blasts out from her innocence. She wants the best for her young cousin. I can’t fault that.

However, no one experiences a perfect life. Our Ella probably understands that better than many people do. She approaches a quarantine time. Her open heart surgery has been postponed twice. Now, so that she can move forward, we must keep her away from crowds and lots of germs. Of course she has no fear of infection. Saturday she dropped a vending machine M&M on a restaurant floor and then picked up the candy and chomped on it. Fear of another sick day does not govern her life.

I would like to delete fear from my own life. I would also like to send a message like Kate’s to a few other folk I know, to wish safety, health, and simple joys.

There is a young woman at a place I visit frequently who has recently had a recurrence of cancer. She is frightened, as anyone would be. She says she does not expect to recover this time.

She shows me the site from her biopsy, just below her throat. We share a few tears. I hug her. This is all I have to give. She says six words that scream a lifetime of experience: “I have always been the oddball.”

We are standing in front of a public bathroom mirror. I want to turn her toward the glass and point out what I see—a beauty that isn’t superficial. Tenacity and willingness to serve don’t appear in a flat reflection. Yet, I can’t find an opening in her spirit to explain that different is not a synonym for inferior. She is devastated, too broken for words to seep in yet.

I recall how I was the taunted kid through twelve grades of school. And I never understood why, except for the innate inferiority theory. After all, my parents never told me that I had gifts of any value.

This young woman has struggled through developmental handicaps. She has gone through chemotherapy. She volunteers. Daily. With a smile. She is in too much pain to understand more than a hug. Moreover, my recent accomplishments can obscure the realities of the past. She doesn’t see a future. Now is not the time for me to talk, but to listen.

Then I see her again this morning. She wears a pink fighting-breast-cancer scarf. She readily accepts my embrace and tells me she is taking her driving test on Tuesday. I grin. She talks about her nervousness. I think about facing tons of steel on the road. I envision this young lady approaching a 32-wheeler on the expressway and crushing cancer in the passing lane.

Perhaps enough people have listened to this volunteer. Maybe she is beginning to see her own worth, prayer answered before it was barely begun…

May that power continue to grow.

 

Dear Ella

 

 

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This is what you must be like. Grow wherever life puts you down. (Ben Okri)

Scot wears a shirt that says: It doesn’t take much to make me happy. Perhaps that is because he doesn’t see the optimist’s glass as half-full; he sees it as close to overflowing. He doesn’t need a thrill ride at an amusement park. Trying on hats at Walmart can make his day.

When Scot was born fifty-one years ago, his tripled twenty-first chromosome dubbed him a mongoloid, an anomaly. Few people in those days saw beyond the almond-shaped eyes, small ears, and lowered muscle tone.

However, on February 4, 51 years ago the obstetrician told Scot’s dad that his newborn son had Down syndrome. He advised Dad not to tell Scot’s mother. The pediatrician would do it. His reason was not to protect Mom for just a little longer—it was to allow her to bond with Scot, to hold and to fall in love with him. Then when the pediatrician told her what to expect, he could also advise her to treat Scot as she would any other child. In this way his parents could face challenges, not impossible roadblocks.

Scot’s gift is hugging. He does not make judgments based on appearance. He chooses the person he will embrace next for his own reasons; he never explains why. Possibly that individual needs his positive energy—that over-sized woman at the mall whose eyes say life has dealt her more blows than she can handle, or the elderly man who hasn’t been touched in years.

This is Scot’s approach. He stands before someone, extends his arms and then watches for a response. If the person is responsive he offers his love, no strings attached. He has the kind of simplicity that is the essence of genuine love. Most people without the burden of an extra chromosome bear the weight of ego—viewing who-they-are as superior or inferior. Scot doesn’t get caught up in drama. He is who he is.

In fact, one of his favorite possessions is a stuffed toy rat. Somehow since Scot is someone who doesn’t judge, that doesn’t surprise me.

Many people may look at folk like Scot, or my Ella, and see the characteristics that suggest slower learning, perhaps a thickened tongue causing slowed speech. They turn away or make snide remarks. I’ve had people tell me they were sorry when I have told them my granddaughter had Down syndrome.

My response has been that I am not sorry at all. My Ella is only five-years-old and I can’t imagine life without her. Scot has been on this planet ten times longer. He has blessed people without knowing he is doing it, the purest form of giving. Is he perfect? Of course not. No one is.

But someday I hope to see the beauty in a rat, the homeliest person in the mall, and every gray ordinary day—just like Scot can. In the meantime, I will simply let as many people as possible know that Down syndrome does not mean down-anything-or-anyone. And when you see a man, woman, or child like Scot in the picture below, know that you are witnessing possibilities…

Scott04072015_0000

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The most effective way to do it, is to do it. (Amelia Earhart)

My gas stove has forgotten how to be a stove. The burners refuse to light without being prodded with a lit kitchen match. The broiler gave up years ago. The oven remains at room temperature at any setting below two hundred degrees. Any other heat setting varies according to the whim of the oven.

Somehow, I have managed.

However, the appliance finally proves its inadequacy as I try to make a double batch of chocolate cake—from scratch, of course—and fill the entire, unevenly heated space with both round layers and cupcakes. This is not a good plan. The oven rebels and burns ten out of twenty-four cupcakes. Seven are singed and need to have their white papers removed and surgery performed on their bottoms. Seven more survive. The layers bake. In less than perfect form. They resemble a small hill after a mudslide, complete with bumps.

Unfortunately, the cupcakes are for a party tomorrow afternoon and the layers are for my best friend’s birthday the day after. There is little time to start this process over. I decide to fill in the angled layer with ice cream—after Jay tests one of the cakes. The recipe passes, even if its final appearance won’t make the cover of any cooking magazine, except perhaps the satirical version.

Nevertheless, I have won the war. The old stove is now in the queue for junk parts. Jay promises me a new one. The old stove responds by letting me turn on a burner without a match. Too late, old stove, too late.

By today’s standard my stove is beyond its prime, thirteen, elderly in dog years. It lived a good life. I wipe off the counter-top for the last time.

I get a new stove, a Samsung. With a convection oven. The fan helps food to cook evenly. I watch my turkey bake. Sure, I could start with something small, like cookies. But neither Jay nor I need them, and there isn’t a special occasion for sharing a dessert today.

New stove and I don’t know one another yet. But we will. Okay, the anthropomorphic language is metaphorical. I really did not talk to either stove as if it were a member of my family. And don’t worry. I got no reply.

However, I am grateful that new stove arrived today, and I look forward to a long, happy relationship with my appliance. My cooking is a form of gift for my family and friends. After all they are the reason why I enjoy creating in the kitchen.

May the people I love remain nourished. And blessed.

new oven

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Happiness is a butterfly, which when pursued, is always just beyond your grasp, but which, if you will sit down quietly, may alight upon you. (Nathaniel Hawthorne)

Ella pulls toys from the shelf. She hands me a soft baby doll and then takes picture flash cards out of the box. She holds up the cards for the doll to learn the words. I provide the voice for the toy.

An hour ago our granddaughter had a fever. She kept my iPad close to her but she didn’t seem to be able to focus. No video or game could take away her discomfort. One dose of children’s acetaminophen brings her back to play, to smiles, to an interest in her favorite foods.

I want my precious girl to be well now. I can’t yank infection from her system with wishes. Antipyretics are temporary. She sees the doctor today. My husband and I wait for those moments of shared happiness, that grin that says: I’m a fighter. Down syndrome hasn’t thrown me. An illness won’t either.

Not that she could say that with grownup words. Ella has her difficult moments, but her version of a crabby day isn’t easily noticed because it doesn’t resemble another child’s I-want-it-my-way tantrum. She doesn’t demand. Her first words when she arrived at the house this morning were, “I’m sick.” Yet, poor-me isn’t in her, and her statement did not appear with a pout or whine. She mentioned it as fact.

Now as her temperature eases down toward normal, her natural happiness reappears and her ability to capture joy alights upon me. It settles into my being, at least for a while.

On most days I have a difficult time sitting still to watch more than one television show, even if the program happens to be riveting. My agenda calls me to write, clean, do laundry—even scrub a toilet. Yet, I can sit next to my granddaughter for hours while my neurotic need for action remains on hold.

Her small frame lies curled in my lap and I massage her back with as light a touch as I can manage. The fever has returned. She turns toward me and smiles. The butterfly has landed, and I don’t want it to fly away. Ever.

***

Ella’s mommy calls after Ella’s appointment. She has a virus and a sinus infection. Nothing dire. I am grateful…I am grateful…I am grateful…

Photo by photographer, Sue Wilke

butterfly on green background, Sue Wilke

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I knew when I met you an adventure was going to happen. (A.A. Milne)

When my oldest granddaughter was born, eleven years ago today, I was overjoyed. Of course she was the most beautiful baby in the world with big round, observant eyes and her mother’s dark hair. Naturally I was expected to ooh and ah about my grandchild. All babies are wonderful even if they arrive premature, huge, with wild hair or none at all, with or without disabilities. The newborn with more wrinkles than an English bulldog, a perfect clone to a ninety-year-old relative, is a gift.

However, our Kate was incredible from day one. Her bright eyes predicted her future. She would become charismatic and gentle, a natural in social situations, as well as Grandma’s teacher about life and gratitude.

Kate’s parents had child care lined up for when Mommy went back to work. However, I had learned from my mother-in-law how deep a grandparent-grandchild relationship can become. And I wanted that gift. Since I worked part-time Kate and I were together on Fridays.

I was grateful that I did not need to watch my first granddaughter grow from a distance. My computer room became a computer/toy room and it housed balls, cars, and puzzles. Stuffed animals took on human roles. Bears and bunnies ate whatever cook-Kate pretended to prepare for them. We had adventures and read picture books together.

Friday was Toddler Story Time at the library. Kate loved it. In fact, when she refused to leave one day, and then ran away from me and fell, her barrette sliced the back of her head. She recovered from the several-stitches-that-followed long before I did.

Now, Kate sees the places in other people that need stitches—not the kind that can be repaired with a surgical needle and thread. She is the girl who defends the other kids when they are taunted by bullies, the person the child with autism trusts. Kate does not see disability. She sees the person.

And I learn from her beautiful spirit, her enthusiasm, her growth. Actually she is about a hair taller than I am now. She shows me the secrets inside the iPad I don’t understand. She explains the rules of girls’ basketball, but doesn’t give me a hard time when my shots don’t come anywhere close to the basket.

Many years ago she asked me how long I would live. Obviously I didn’t have an answer, but I told her that I hoped to dance at her wedding. She bought the answer. For now I simply wish her peace, and joy, and a special kind of mirror—the kind that sees inside to all the beauty that lives within her spirit, budding, blossoming, becoming even more wonderful every day.

Happy Birthday, Kate! I love you.

learning from children  morning coach

 

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