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Posts Tagged ‘imagination’

The greatest happiness of life is the conviction that we are loved—loved for ourselves, or rather, loved in spite of ourselves. (Victor Hugo)

Ella has scarcely removed her coat when she runs to a shoe box full of small toys. A special Friday. A day off school. Time to play.

She grabs the plastic slide and the character, Diego. I know she will want Dora the Explorer next, so I reach for the figure closer to the same size. (We have several Doras in the box.) Ella chooses the slightly larger figure.

Size is not significant in the world of make-believe. I forget. Play is my granddaughter’s realm. She makes most of the choices here. She needs to yield to the adult world often enough. In make-believe, she has more experience.

We take turns leading the figures down the slide: on their bellies, head first, up the wrong way, and one friend giving the other a gentle nudge to move faster. Then Ella decides head first means vertical, with feet facing up. She laughs.

She is a child, but she lives in the real world, too. She is aware of the attitudes others have toward her whether she can verbally express what she knows or not. Talking about her struggles in her presence, is unfair. Even cruel.

Yes, Ella has Down syndrome. She needs to work harder in some areas. However, she has been reading for several years—sounding out words, not simply memorizing them. Ella has a sense of humor.

“Look!” she says. She turns Diego’s head around.

“Are you doing that again?” I say for Dora. Then I turn Dora’s head around. “But, you do it so much better, Diego.”

Ella howls with laughter.

I suggest placing the two figures on the back of a plush ladybug. “Let’s fly.” Our fantasy world continues.

That’s how I know I’ve been completely accepted into her imaginative space. I consider it a promotion.

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Every student needs someone who says, simply, “You mean something. You count.” (Tony Kushner)

I am in a familiar place and ready to exercise—at least to the degree I can right now. My muscles feel somewhat stretched, relaxed. Few people are here today. The weather probably has something to do with it. Mother Nature is having violent, adolescent mood swings. One moment hot, the next stormy, followed by cold.

Then I hear the ubiquitous political discussion begin. A woman responds with a rant about how the world is ready to self-destruct. Our streets aren’t safe. Neither presidential candidate has worth. We shouldn’t bother populating the world. Our children don’t have a chance…

I sigh and move away. But, even though I’m not wearing my hearing aids, her voice penetrates the air and everything else. An idea comes to me; I decide to pursue it. I introduce myself to the lady.

True,” I begin. “A lot of bad stuff is out there. But I know some great kids. And they have made at least a few corners of the world better.” I tell her about Kate and how the kids in her class who have autism come to her for encouragement. And friendship. I mention our youngest granddaughter, Ella, who has Down syndrome, but has brought many members of the family up, in one way or another. Only four persons noticed I had new glasses; Ella was one of them. She is both aware and loving.

The woman comes closer to me. Closer than our culture usually finds acceptable until we know someone well. Yet, it seems okay. Even more than okay. Because, she tells me about a member of her family who had Down syndrome and died in her sixties. That person was an important part of her life.

And I let her know how important she was as a caretaker. She agrees that her relative saw and understood more than people knew she did. I see a new glow in my comrade’s eyes. Her nearness no longer feels as if it is trespassing inside my personal space.

Somehow I doubt this woman sees life with any less cynicism. But, perhaps, just perhaps, a seed of possibility has been planted. She did some good making the world a better place for her relative; maybe there are young people today doing the same thing.  

Later I tell my granddaughter she helped someone without even being there. She smiles. True, a student is generally considered a young school-aged individual. But, Kate shows me new apps for my iPad. She creates a collage of photos from a family birthday party within seconds. “And these are all free.” Twelve-year-old Kate teaches seventy-year-old Grandma.

I don’t plan to give up student status for a long time. The teacher’s age doesn’t matter. The relationship does. And so does gratitude. you-matter-you-hear-me

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I had the epiphany that laughter was light, and light was laughter, and that this was the secret of the universe. (Donna Tartt )

Sure, Kate and I should use the food processor to crush the cookies to make the truffles. But rolling them between two sheets of waxed paper turns the task into a game. And that is the purpose of our day—to spend time doing something fun.

Besides all I have is a recipe held precariously in my head. A superb baker, who owns two ovens, told me how to make the delicacies. Last week. I’m counting on my fallible memory.

Kate and I laugh as some of the crumbs escape across the table top. At least the cookies came from the organic section of the grocery. The mess contains fewer unnatural ingredients.

The final results taste fantastic, but won’t make the cover of any food magazine. We don’t take the time to make each ball even. And we run out of melted chocolate.

“Are you going to blog about this?” Kate asks.

“Why not?” I answer. Some of life’s most beautiful moments happen during mundane, messy, silly, and this-isn’t-the-way-it’s-supposed-to-happen experiences. Cookies-smashed-into-cream-cheese-and-scraped-off-with-the-blunt-edge-of-a-knife fit into that category.

As we work I think about how privileged I was to take Kate with me to find last-minute holiday gifts. I tend to be a get-required-items-then-skedaddle shopper. Kate and I stopped to look, to see, to celebrate, to talk over hot chocolate while Grandpa and Kate’s little sister, Rebe, had the chance to swim at the YMCA.

Kate wanted to help Grandma catch up. I feel honored.

The sink looks like it has taken over for a commercial chain of restaurants. Kate and I also made pumpkin bread. The stainless steel appears to be bleeding, in orange.

Then when Rebe comes back with Grandpa she decides she wants to bake, too. She doesn’t want to be left out. I agree only if she takes some of the finished products home with her. More food would end up in the freezer than we could give. Contents would need to be stacked like mortared bricks. For the freezer’s system this would be something like trying to breathe inside a basement wall.

And my waist line doesn’t need to hold what the refrigerator can’t.

After all our creations are completed the girls make a tent with blankets and couch cushions. I play with my granddaughters and crawl inside their play environment, too. I grab a plush toy cow and tell them it gives chocolate milk. Kate readily accepts a pretend squirt. Rebe claps her hands over her mouth and says, “I’m lactose intolerant.” She isn’t. But she has definitely inherited her father’s quick wit.

My neck should hurt more than it does. But perhaps laughter heals in unexplained ways. My considerably-past-middle-age years will return, sooner than I want them to appear, long before I see in a mirror the ridges in my neck. Probably sometime during the clean-up. For now I have discovered a great secret of the universe. The light in my granddaughters’ laughter makes me feel whole.

Kate and Rebe, thanks. Just for being the wonderful girls you are.

May  everyone find peace, love, joy, and plenty of laughter during the holiday season.

laughter words to inspire the soul

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Love as if never getting tired. (Mother Teresa)

My energy level isn’t where it belongs—I choose a get up at 4:30AM, write, start-crockpot-soup and-then-marathon-until-10:00 PM regimen. At mid-afternoon I would crawl into bed and call it a day if I could. Four-year-old Dakota comes to my side. Jay and I are babysitting. I would be fatigued even if my schedule were as blank as copy paper sealed inside the original packaging.

“Play with me,” Dakota says.

He’s wearing his ubiquitous tool belt. I suggest we find something suitable to repair with a plastic wrench. But his pretend mind and mine aren’t in sync yet. Eventually I pick up my iPad. We find scenes from “Home Alone II.” Then he discovers a game where Santa’s beard is decorated—or mangled—in a barber shop. I help him find a razor in the set of game tools. Santa will be bald this year, with green fuzz. We laugh. Dakota’s dark eyes light up brighter than our tree’s.

The world as he recognizes it during each moment, is all that exists.

We are not officially his grandparents. Perhaps, someday, his mommy and my son will marry. In the meantime, I painted him in as the fourth cool snow-person grandchild on our seasonal wall hanging. I bought it several years ago and added the details.

Dakota is two years younger than our youngest granddaughter. The only boy. He creates an even number to our children’s group. The two older girls have already made future family plans for the fuller set, far beyond a reasonable expectation, including home-away-from-home rooms in our house. I don’t care. The girls’ enthusiasm is both encouraging and beautiful.

When Grandpa Jay arrives home Dakota meets him at the door. Jay has achieved rock-star status in this little guy’s eyes. And all Jay needed to do was take him to the YMCA to shoot baskets. My husband wore out long before Mr. Dakota did.

Later Jay fights sleep at our son’s house and Dakota reaches into the refrigerator for two tubes of yogurt—one for each of us.

“Want to see my room?” he asks.

Really I’d rather ask Jay to move over. I won’t. My neck is begging for a hot compress. I feel twice my age, a feminine form of Methuselah reincarnated.

Instead I answer, “Sure.” Mother Teresa did not leave the words “as if” out of her statement about love. Real life limits remain.

The rewards, however, continue.

4 grandkids

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Children don’t need much advice, but they really do need to be listened to and not just with half an ear. (Emma Thompson)

Eight-year-old Rebe and I have a girl-bonding day. We are mermaids at the YMCA Water Park. Young mermaids! I need a lot more imagination than she does to fill this role. She explains the scenario and I follow, adding as much absurdity as I can.

The pool is divided into sections. Upper-class kid mermaids swim in the larger, shallow, easy-to-manage section. The lower class lives in the slightly deeper territory. I tell her I can’t fathom wealth, so I will tread water. (I prefer this area anyway.)

Of course her game morphs and she spends most of the time in the freer kicking space. She can swim. I celebrate listening to her banter. She doesn’t want to leave as the time grows closer.

“One more minute.” She raises one finger. Then she smiles. “Five more minutes?”

Rush-hour traffic isn’t going to get any better one way or another. Dinner is semi-prepared. Daddy won’t be picking her up for two and one-half hours.

“Five more minutes,” I say.

She grins.

Then a tall, slender woman pushes a young man in a wheelchair into the water. The young man is paralyzed. Rebe watches as the woman, smiling, pulls him from the chair and works his arms and legs through the warmed water.

“Therapy?” Rebe asks in a soft voice.

“I think so.”

“Or fun?”

“Maybe that, too.”

A huge man with skin the color of milk chocolate enters the water. He helps. I think about what a good idea his presence is. His size and strength could be helpful getting the young man back into the chair. The thin, pale woman and the large man laugh and joke with the younger man. I see the paralyzed man bat his hand at them. A response, probably enormous judging by the cheer of his two helpers.

“Therapy,” Rebe repeats. “Or maybe they are family.”

I pause taking in the beauty of my granddaughter. The two assistants look nothing alike. Yet, Rebe and I both know families—more than one—with a father the color of dark honey, fresh graham crackers, or gourmet licorice, and a mother as pale as apple blossoms or an unpicked peach. Rebe looks inside to who an individual is. The outside is secondary. She goes to a school where color is superficial; I live in a neighborhood where skin colors match the picture below.

Probably not, I think. “Maybe,” I answer.

I tell Rebe it is time to go back to my house. Grandpa is waiting for us. But I am grateful for those five extra minutes. They brought a larger gift than 300 extra seconds in pool water.

skin colored crayons

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The answers you seek never come when the mind is busy; they come when the mind is still, when silence speaks loudest. (Leon Brown)

I am off the grid. No Internet. No cell service. Nature presents the better show at Hocking Hills State Park. Or at least that’s what I tell myself. My husband and I have just arrived. Nature hasn’t had enough time to tell stress to cool-it yet.

The weather couldn’t be better—mid-fifties in the morning climbing to the mid-seventies in the afternoon. Few clouds. No rain expected. I ignore time. My husband and I don’t have a schedule. Our cabin provides no frills. We don’t need them.

People who go to parks tend to be friendly. Striking-up conversations is easy. Serendipity brings unexpected gifts. Since Jay loves to talk about travels, conversation with folk who have already checked out the area directs us to the better trails and the most beautiful views.

I relax—well, somewhat. The restaurant area has a Wi-Fi connection. I am like an ex-smoker opening a pack of cigarettes or a gambler entering a casino. I say I will post just this picture. Then write this message. Then…

The grid becomes gridlocked. And I need a lot of self-talk to press the off button on my iPad. Answers never come when the mind is counting likes on a post. Okay, that is only part of the problem. But I get it. I get it!

Search for

serenity. One more time.

Sun. Hemlocks. Red. Yellow. Orange.

Sandstone caves. One crow calling to another in the distance.

A single step followed by another. Peace. Harmony. Yes, it is possible.

hocking hills sun through trees

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Any fool can be happy. It takes a man with real heart to make beauty out of the stuff that makes us weep.  Clive Barker

Ordinarily when Jay and I pick up Ella from school he drives and I sit in the back with our granddaughter. I monitor snacks, play games, or read books with her.

Today I am at the helm of my ’97 Toyota. Ella repeats, “Grandma’s car.” She wants to know where Grandpa is.

“He went to the doctor. He will be home later,” I tell her. But I can’t see her face in the rear-view mirror. My mindset is in sync with her older cousins. They think that a hypodermic needle is to be avoided at all costs. But since Grandpa is a grownup, he would be just fine. I assume Ella’s viewpoint to be similar.

“If Grandpa gets a shot we will give him a big hug!”

There is silence in the back seat, followed by, “Grandpa be okay. I be okay.” Ella’s sweet voice cuts through me as the chorus repeats.

“Yes, he will. Grandpa will be home soon.”

The drive from Ella’s school to our house is just over ten miles. I feel as if I am driving cross-country.

Text Grandpa as soon as you get in the door, Ter. Tell him to call so that Ella can hear his voice.

On the outside I would appear calm. The car remains on the road. I stay within the speed limit. Inside I chide myself for a stupid mistake. Ella has had two open-heart surgeries and one minor surgery on her wrist. The word doctor opens a Pandora’s Box. She does not want her grandfather to fall prey to its powers.

Fortunately Grandpa hears the beep on his phone. He is leaving the office. “Grandpa be okay” takes on a new tone as Ella hears his voice.

“Let’s hide,” she says, anticipating hide-and-seek when Grandpa returns. Our little girl has no sense of time. Jay will not be home for another twenty-five minutes. I hold her in my arms and look into her huge blue eyes, possible now since I am not behind the wheel of the car and she is not bound to her car seat.

Sure, I will play this mock-game with her. The hiding place she chooses is in plain sight. And so is our little girl’s incredible beauty. Her internal powers shine: the gifts to love unconditionally, to simply be without comparing herself to anyone, and to bounce back after every fall.

I suspect there are people who look at us as we go to a park or enter a restaurant and think, How sad! That little girl has Down syndrome. Or worse, they identify her as a tripled chromosome and call her a Down syndrome child, throw around an R-word or two, and dismiss her importance. I can’t change that notion on my own. But I can make a dent in that perception.

Organizations like the National Down Syndrome Society and our local group, The Down Syndrome Association of Greater Cincinnati, help to crush myths and show how valuable each individual is. Success for many more persons with Trisomy-21 is possible, even inevitable. Yes, the child born with the genius IQ someday may create formulas, ideas, new drugs, and inventions that change the world. But the child born with an extra chromosome has the knack for changing the heart. Now.

Ella may not be able to express Osho’s quote pictured below in words. However, she lives it. I am fortunate to be her student.

life is not logic Osho

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I remind myself every morning: Nothing I say this day will teach me anything. So if I’m going to learn, I must do it by listening. (Larry King)

Rebe, my soon-to-be-eight-year-old granddaughter, loves to play any game that involves mommies, dolls, and the lives of families. My role changes at her whim. And I am okay with that. My pretending stays within the realm of fiction. Reality intervenes, even in fantasy. Plot, grammar, logic, and a reasonable timeline are required. Even an insane character requires motivation, albeit skewed.

Play doesn’t come naturally for me anymore. Unless it includes humor. Then it isn’t really pretend; it’s called drama. Too much time has passed since I wanted toys for Christmas. Sometimes I act the part of Rebe’s offbeat daughter.

“Mommy, can I drive your car to kindergarten? I won’t smash it into a tree this time.”

That makes her laugh. Or, she tells me I’m in fifth grade not kindergarten, and the event never happened. Another reason why following Rebe’s imagination is impossible to follow. For the most part however, I listen, and discover who my young descendant is.

At first she is the mommy. Then she takes her baby with the soft tummy to the doctor. And she assumes the role of pediatrician. I’m not sure whether I am the sit-in for the mommy or an older child as she examines baby with makeshift instruments: a plastic spoon and knife, a key chain, a puzzle piece.

Her expression turns serious. “Most babies are normal,” she says. “And that is good.” Then she pauses after more pokes and probes and faces me. “But this baby has special needs. And that is good, too.”

She hands me the doll. My jokes have disappeared. I am in awe of a second-grade girl who speaks with wisdom. The softness of the toy and the softness of her words sink into me.

I have nothing to say.

doll

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When will you learn that there isn’t a word for everything? (Nicole Krauss)

Ella has had enough play for the evening. Daddy is playing in a softball tournament. His team won the first game and the second is in progress. She doesn’t even want my iPad, usually a sure thing. She eases into my lap as we sit in the concession area and asks for her friend Nona. I didn’t see the little girl during the first game.

Nona is years younger than Ella. But our granddaughter doesn’t limit her friendships to children her age. Nona has a sparkling personality. And she has inherited artistic skills. I suspect that she and Ella communicate on non-verbal levels, through action, color, play. Little people see more than adults realize.

artwork by Nona Adams-Jones

artwork by Nona Adams-Jones

Ella puts her head on my chest. I straddle the hard bench and I’m amazed at the length of time my senior body remains still without stiffening into one four-foot-eleven-inch cramp. Something innately beautiful in Ella softens me.

Simultaneous loud conversations merge into a rumble. Ella’s arms are covered with dirt from the playground area. Her hair could use a brush. At the table across from me someone spills a beer into peanut shells on the concrete-slab floor. The noise and distraction don’t stop my granddaughter from falling asleep. I can’t take off her glasses without waking her.

This frozen-grandma scene would not appear to be pleasant. Nevertheless, I choose to remember it—every detail. I have no desire to join the laughter surrounding me. I would rather savor holding this blonde little girl, recognizing the trust she has in me, basking in her unconditional love. Another kind of artistic moment.

Soon she will awaken, sleepily, and see Daddy. He is her world. She is excited to give him her coloring page from daycare. I will give up this moment soon enough. For now there is no need for words. I remain still. Privileged. The grandmother of a girl with Down syndrome and up gifts.

Art comes in all forms. Sometimes words fail when they try to capture gifts that develop and change as this moment eases into the next.

shirts from past celebrated Buddy Walks

My husband and I wear these often as we watch our Ella grow.

Buddy Walk shirts

 

 

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“What makes the desert beautiful,” said the little prince, “is that somewhere it hides a well…” Antoine de Saint-Exupéry

As I study Philip R. Rogers’ powerful rendering of my main character in “The Curse Under the Freckles” I recall the bottomless well when the story began, and the empty buckets that came to the surface. “The Curse Under the Freckles” can also be found at Joseph Beth online.

When Chapter One appeared in my first draft the tale had a different title as well as an older audience. I wanted to take a third-grader’s vocabulary and write a book for seventh graders. Although my granddaughter with Down syndrome was already showing an interest in every word in her story books, she opened my eyes to the larger world of kids with special needs.

Older children with limited reading abilities do not want to pick up a story about bunnies and kitties. Yet, the adventures prepared for teens and preteens contain too many words, too many syllables.

As I put together scenes, however, I felt as if I were trying to build a believable fantasy with stale super-sweet mini-marshmallow bricks. The plot reflected it, as predictable as an alphabetical listing and twice as boring. No subplots, insufficient conflict.

Bottom line—I wasn’t ready to serve. Many people believe that writing for children is easy. It isn’t. The editor and publisher’s expectations are higher for the author of children’s material.

Stories need to be fresh and entertaining yet stay within the realms of a young person’s understanding as well as the limits of respectability.

I don’t remember when I knew that giving up on my original goal was no longer an option. But I do know that is when the story took off—with plenty of hurdles of course.

Chase Powers, my hero, lost a few years. He became eleven instead of fourteen. He developed a sense of humor. His foes grew mightier. Some of my critique partners began comments with, “I don’t get this at all. But then I don’t even like fantasy…”

Oh well! Oh, very deep, what-the-heck-is-down-that-imagination-of-yours well?

One of my magical characters says, “It takes no courage to climb a steep mountain when you have been lifted to the top.” Sometimes this writer needs to listen to her own creations.

In the future I hope to help kids who have difficulty reading by writing in a style that is super-easy to read. This book travels through a 560-660 Lexile measure, fifth to sixth-grade reading level.

Perhaps, if I work hard enough I can tell a story with small words that touch and capture the wise. I know it can be done. My grandchildren have shown me that route. Often.

I’m not there yet. In the meantime I plan to have a signing at our local YMCA, and give a portion of my earnings to their autism program. These young persons have a lot to give; the program helps them to find those gifts. I have no idea how much water I can bring to the desert. But those extra drops aren’t noticed in the ocean.

One drop, one word, one action at a time…

back cover the curse under the freckles

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