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Posts Tagged ‘patience’

Lessons on How to Be a Four-Year-Old Kid, from four-year-old Dakota

Posted in inspiration, positive thinking, tagged , , , , , , , , , , , , , , , , , on December 17, 2015| 1 Comment »

Love as if never getting tired. (Mother Teresa)

My energy level isn’t where it belongs—I choose a get up at 4:30AM, write, start-crockpot-soup and-then-marathon-until-10:00 PM regimen. At mid-afternoon I would crawl into bed and call it a day if I could. Four-year-old Dakota comes to my side. Jay and I are babysitting. I would be fatigued even if my schedule were as blank as copy paper sealed inside the original packaging.

“Play with me,” Dakota says.

He’s wearing his ubiquitous tool belt. I suggest we find something suitable to repair with a plastic wrench. But his pretend mind and mine aren’t in sync yet. Eventually I pick up my iPad. We find scenes from “Home Alone II.” Then he discovers a game where Santa’s beard is decorated—or mangled—in a barber shop. I help him find a razor in the set of game tools. Santa will be bald this year, with green fuzz. We laugh. Dakota’s dark eyes light up brighter than our tree’s.

The world as he recognizes it during each moment, is all that exists.

We are not officially his grandparents. Perhaps, someday, his mommy and my son will marry. In the meantime, I painted him in as the fourth cool snow-person grandchild on our seasonal wall hanging. I bought it several years ago and added the details.

Dakota is two years younger than our youngest granddaughter. The only boy. He creates an even number to our children’s group. The two older girls have already made future family plans for the fuller set, far beyond a reasonable expectation, including home-away-from-home rooms in our house. I don’t care. The girls’ enthusiasm is both encouraging and beautiful.

When Grandpa Jay arrives home Dakota meets him at the door. Jay has achieved rock-star status in this little guy’s eyes. And all Jay needed to do was take him to the YMCA to shoot baskets. My husband wore out long before Mr. Dakota did.

Later Jay fights sleep at our son’s house and Dakota reaches into the refrigerator for two tubes of yogurt—one for each of us.

“Want to see my room?” he asks.

Really I’d rather ask Jay to move over. I won’t. My neck is begging for a hot compress. I feel twice my age, a feminine form of Methuselah reincarnated.

Instead I answer, “Sure.” Mother Teresa did not leave the words “as if” out of her statement about love. Real life limits remain.

The rewards, however, continue.

4 grandkids

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For My Husband: the other half of our ordinary kingdom

Posted in positive thinking, tagged , , , , , , , , , , , , , , , on December 11, 2015| 2 Comments »

Not what I have, but what I do, is my kingdom. (Thomas Carlyle, historian and essayist, 1795-1881)

At dinner my husband Jay compliments my cooking and then suggests we go shopping soon. For my Christmas gift. “I don’t want to get something you need,” he adds. He knows I have a pair of shoes with heels that have been losing a battle with city sidewalks. The soles would not be road-worthy if they were tires.

“We will get whatever you need; I want you to get something extra,” he says. “Something you want.”

I understand the difference, yet don’t have a ready answer. Certainly, if I think about thing-possibilities long enough I could probably come up with an idea. But what I want most no one can give me. I want more people to get along. I want violence to stop, listening to come first and speaking to arrive second. I want my friends who are suffering to see an end to pain. I want the depressed to see a purpose in their lives, the grieving to find comfort, the people I have hurt without knowing it to find healing. I don’t feel well now. Neck spasms. Lying down and getting up again has suddenly become monumental. Health cannot be purchased and wrapped.

I smile and tell my mate we will shop this week. And we will. Probably. Next week at the latest.

I recall driving through a fog to my small community’s church service. I was halfway down a long winding road, no other car in sight, when I realized my lights aren’t on. I could see reasonably well without them, but turned them on anyway. Light, one small passageway, created a clearer path.

One small change in perspective makes a difference. Perhaps it is not the item, the purchased thing, that matters. The gift is no more than a symbol. I think about the built-in imperfections of life. Many people have complimented Jay and me on our ideal marital relationship. I smile because we live the muddy, you-said-what real as well as the let’s-go-to-a-park fun times. Moments arise when work-it-out hasn’t found a solution yet.

We don’t live in Utopia. We have our moments of discontent. Neither one of us has sprouted angel wings, levitated, or prophesied before the masses. We are 100% human, flawed, and complicated. Mind-reading 101 could help with the misunderstandings, but it exists only in fantasy. One of my characters in “The Curse Under the Freckles” has this gift. But, even this character finds it noisy, distracting, and annoying at times.

I suspect a perfect world would be predictable and boring—even in fiction.

So, I have no idea what toy I will choose on shopping day, but the product isn’t my focus. I imagine a journey with someone I’ve known most of my life, yet don’t completely know yet. Even if that journey includes a mundane thirty-minute mall walk. In the meantime, sweetheart, I’ll take your hand and you take mine.

At ages 69 and 70 neither one of us is too old to learn. From a geological point of view we are infants. From today’s practical position it doesn’t matter anyway.

how awesome you are

 

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Internet-free, Temporarily

Posted in positive thinking, tagged , , , , , , , , , , , , , on October 25, 2015| 3 Comments »

The answers you seek never come when the mind is busy; they come when the mind is still, when silence speaks loudest. (Leon Brown)

I am off the grid. No Internet. No cell service. Nature presents the better show at Hocking Hills State Park. Or at least that’s what I tell myself. My husband and I have just arrived. Nature hasn’t had enough time to tell stress to cool-it yet.

The weather couldn’t be better—mid-fifties in the morning climbing to the mid-seventies in the afternoon. Few clouds. No rain expected. I ignore time. My husband and I don’t have a schedule. Our cabin provides no frills. We don’t need them.

People who go to parks tend to be friendly. Striking-up conversations is easy. Serendipity brings unexpected gifts. Since Jay loves to talk about travels, conversation with folk who have already checked out the area directs us to the better trails and the most beautiful views.

I relax—well, somewhat. The restaurant area has a Wi-Fi connection. I am like an ex-smoker opening a pack of cigarettes or a gambler entering a casino. I say I will post just this picture. Then write this message. Then…

The grid becomes gridlocked. And I need a lot of self-talk to press the off button on my iPad. Answers never come when the mind is counting likes on a post. Okay, that is only part of the problem. But I get it. I get it!

Search for

serenity. One more time.

Sun. Hemlocks. Red. Yellow. Orange.

Sandstone caves. One crow calling to another in the distance.

A single step followed by another. Peace. Harmony. Yes, it is possible.

hocking hills sun through trees

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One Little Girl, One Huge Heart

Posted in Down syndrome awareness, positive thinking, tagged , , , , , , , , , , , , , , , , , , on October 19, 2015| 3 Comments »

Any fool can be happy. It takes a man with real heart to make beauty out of the stuff that makes us weep.  Clive Barker

Ordinarily when Jay and I pick up Ella from school he drives and I sit in the back with our granddaughter. I monitor snacks, play games, or read books with her.

Today I am at the helm of my ’97 Toyota. Ella repeats, “Grandma’s car.” She wants to know where Grandpa is.

“He went to the doctor. He will be home later,” I tell her. But I can’t see her face in the rear-view mirror. My mindset is in sync with her older cousins. They think that a hypodermic needle is to be avoided at all costs. But since Grandpa is a grownup, he would be just fine. I assume Ella’s viewpoint to be similar.

“If Grandpa gets a shot we will give him a big hug!”

There is silence in the back seat, followed by, “Grandpa be okay. I be okay.” Ella’s sweet voice cuts through me as the chorus repeats.

“Yes, he will. Grandpa will be home soon.”

The drive from Ella’s school to our house is just over ten miles. I feel as if I am driving cross-country.

Text Grandpa as soon as you get in the door, Ter. Tell him to call so that Ella can hear his voice.

On the outside I would appear calm. The car remains on the road. I stay within the speed limit. Inside I chide myself for a stupid mistake. Ella has had two open-heart surgeries and one minor surgery on her wrist. The word doctor opens a Pandora’s Box. She does not want her grandfather to fall prey to its powers.

Fortunately Grandpa hears the beep on his phone. He is leaving the office. “Grandpa be okay” takes on a new tone as Ella hears his voice.

“Let’s hide,” she says, anticipating hide-and-seek when Grandpa returns. Our little girl has no sense of time. Jay will not be home for another twenty-five minutes. I hold her in my arms and look into her huge blue eyes, possible now since I am not behind the wheel of the car and she is not bound to her car seat.

Sure, I will play this mock-game with her. The hiding place she chooses is in plain sight. And so is our little girl’s incredible beauty. Her internal powers shine: the gifts to love unconditionally, to simply be without comparing herself to anyone, and to bounce back after every fall.

I suspect there are people who look at us as we go to a park or enter a restaurant and think, How sad! That little girl has Down syndrome. Or worse, they identify her as a tripled chromosome and call her a Down syndrome child, throw around an R-word or two, and dismiss her importance. I can’t change that notion on my own. But I can make a dent in that perception.

Organizations like the National Down Syndrome Society and our local group, The Down Syndrome Association of Greater Cincinnati, help to crush myths and show how valuable each individual is. Success for many more persons with Trisomy-21 is possible, even inevitable. Yes, the child born with the genius IQ someday may create formulas, ideas, new drugs, and inventions that change the world. But the child born with an extra chromosome has the knack for changing the heart. Now.

Ella may not be able to express Osho’s quote pictured below in words. However, she lives it. I am fortunate to be her student.

life is not logic Osho

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When the Body Says Uh-Uh—The Next Step

Posted in positive thinking, tagged , , , , , , , , , , , , , , , , on September 22, 2015| Leave a Comment »

You build on failure. You use it as a stepping stone. Close the door on the past. You don’t try to forget the mistakes, but you don’t dwell on them. You don’t let them have any of your energy, or any of your time, or any of your space. (Johnny Cash)

Somewhere around two in the morning I waken with a throbbing right hand. Did I roll over onto it? Did my sleeping body drift into the past and forget that arthritis rules my right thumb. Inflammation tells each movement what it can do and what it can’t. And it is a strict taskmaster.

Of course I rebel. I have writing projects to complete, and the cooking, cleaning, and laundry don’t do themselves. Fantasy appears only in story form. Even on the written page reality intervenes. Sure, I can invent a character, a girl who floats into the air at will. However, if she levitates at the local Seven-Eleven havoc will appear, unless, of course that is part of the plot.

A cold compress helps my hand. It tells it to stop complaining for a few minutes anyway. Somewhat. So does calming thought. But sleep does not return. I get up at four and begin to write, trying to embrace the silence as a gift. I add a page to my next novel, then another. This does not mean they won’t be backspaced later. A story has progressed. The missed sleep will demand to be repaid later. For now I take advantage of the moment.

The ache reminds me that I am alive. Fully. In this moment. I’m told this is the most common form of arthritis. Osteoarthritis. As my parents, aunts, and uncles told me: “It won’t kill you. You’ll just die with it.”

Finding someone with more serious problems is easier than I would like. I’ve been praying for a young friend who is expected to be in intensive care for longer than the two weeks originally expected. She, too, is a writer. And a reader. Her security is a book resting on her chest along with the ambiance of IVs, monitors, and an existence where pain owns the building. She has had two surgeries. Complications continue. So far her miracle begins with survival.

A child close to me has a friend who died of a rare inherited disorder; her sister has the same disease. My little friend is reluctant to talk about her grief. So I cannot reveal her identity. Life and joy do not circumvent difficulties. They travel through them.

The sun peeks through the window of my office, also a toy room, the place where my grandchildren and I play. The rays will find family pictures, disorder, my half-empty coffee cup, and possibilities I don’t see yet.

Sure, I would like to take the brace off my hand post-miracle. But I’m not going to count on it. However, I haven’t typed the ending to my story yet. That choice isn’t mine anyway.

 

seeing the inside brightness

hand brace09212015_0000

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Little-People Art, Creating It and Living It

Posted in positive thinking, tagged , , , , , , , , , , , , , , , , , on September 2, 2015| 3 Comments »

When will you learn that there isn’t a word for everything? (Nicole Krauss)

Ella has had enough play for the evening. Daddy is playing in a softball tournament. His team won the first game and the second is in progress. She doesn’t even want my iPad, usually a sure thing. She eases into my lap as we sit in the concession area and asks for her friend Nona. I didn’t see the little girl during the first game.

Nona is years younger than Ella. But our granddaughter doesn’t limit her friendships to children her age. Nona has a sparkling personality. And she has inherited artistic skills. I suspect that she and Ella communicate on non-verbal levels, through action, color, play. Little people see more than adults realize.

artwork by Nona Adams-Jones

artwork by Nona Adams-Jones

Ella puts her head on my chest. I straddle the hard bench and I’m amazed at the length of time my senior body remains still without stiffening into one four-foot-eleven-inch cramp. Something innately beautiful in Ella softens me.

Simultaneous loud conversations merge into a rumble. Ella’s arms are covered with dirt from the playground area. Her hair could use a brush. At the table across from me someone spills a beer into peanut shells on the concrete-slab floor. The noise and distraction don’t stop my granddaughter from falling asleep. I can’t take off her glasses without waking her.

This frozen-grandma scene would not appear to be pleasant. Nevertheless, I choose to remember it—every detail. I have no desire to join the laughter surrounding me. I would rather savor holding this blonde little girl, recognizing the trust she has in me, basking in her unconditional love. Another kind of artistic moment.

Soon she will awaken, sleepily, and see Daddy. He is her world. She is excited to give him her coloring page from daycare. I will give up this moment soon enough. For now there is no need for words. I remain still. Privileged. The grandmother of a girl with Down syndrome and up gifts.

Art comes in all forms. Sometimes words fail when they try to capture gifts that develop and change as this moment eases into the next.

shirts from past celebrated Buddy Walks

My husband and I wear these often as we watch our Ella grow.

Buddy Walk shirts

 

 

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Tall, Short—But, Similar Inside

Posted in positive thinking, Uncategorized, tagged , , , , , , , , , , , , , , , , , , on August 18, 2015| 4 Comments »

You must have chaos within you to give birth to a dancing star. (Friedrich Nietzsche)

Perhaps I have too much chaos within me because I feel crowded in water aerobics class—actually there are only about twelve participants. Not exactly a mob. But the instructor directs us to continuously travel back and forth. The possibility of bumping into someone seems high to me.

My energy feels almost electric. I’m more than busy at the moment with babysitting duties and preparing for a newly published book to appear. In the water that electricity seems dangerous even if it is only a metaphor. So I swim into the deeper water and tread through the moves. I love the feel of suspending. And I see another benefit: a tall friend is here today. She buoys me with her spirit.

She and I look as different as a mountain and a valley. I need to stand on a step stool to get sufficient pressure at the locker’s swimsuit spinner. At six-foot tall she is at the deeper end of the indoor pool, but doesn’t need to kick to stay afloat. I look up to her physically—and as a person.

This lady talks about her dedication to family with the same offhandedness a person would use when counting loads of laundry. She gives because the need is there. She is not aware of her own beauty.

As we talk I sense similar teen experiences. When adolescence hit I would have pronounced angst with an accent on every letter if sharing feelings had been permitted in my home. Since they were not, the not-good-enough notion imploded and almost destroyed my spirit. Changing that attitude has taken time and effort. But I don’t regret the past. Because of it I am less likely to judge someone else. I also have  a storehouse of great fictional characters, all based on a confused, normal young girl—me.

My friend shares a current difficulty she is facing. It sounds familiar. She has a family member in hospice. Cookie-cutter supportive care doesn’t work for everyone. Sure, it would be great if so-and-so would play the let’s-have-fun-while-we-can game. But, sometimes the individual wouldn’t have played when he or she was twenty-three.

Later, I see my giving friend helping someone else. Her gift delays her departure when I know she has other tasks to perform, a long agenda for the day. I would like to give more details about that moment, but don’t want to break this woman’s anonymity.

Instead, I simply shout-out thanks into the electronic universe and hope treading water with her has brought some positive energy into me. I am thinking about her now with the hope that my words serve as a mirror reflecting the goodness I see.

It is contagious, in a positive way.

garland of beautiful deeds

 

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Thanks, Paul!

Posted in Uncategorized, tagged , , , , , , , , , on July 16, 2015| 2 Comments »

Life is what happens while you are busy making other plans. (John Lennon)

We are going on vacation tomorrow morning. The living room has turned into an obstacle course of clothing and maybe-we’ll-bring-stuff. Our passports are next to the remote control. When each to-do item on our list is completed, another is added.

I open the refrigerator to get the last of the fruit. “Uh, sweetheart, why is the light out in the refrigerator?”

I don’t expect my mate to know. It’s a question I don’t want to ask me. The appliance is relatively new. Jay checks the circuit breakers. They are intact. Neither the toaster nor a lamp responds at that outlet. It is as dead as a pond fossil. The extension cord we use for outdoor Christmas lights connects the refrigerator to electrical life. However, it also creates a trip hazard.

This bandaged solution could help for a week. Maybe. I call my brother Paul, an electrical engineer. He answers the phone.

“That should be an easy fix,” he says. “A fifteen minute job. I have the tools.” He offers to stop by today.

I am grateful because I am the facilitator for a writing group that meets this morning and I don’t want to renege my responsibilities. Jay will be home to welcome our hero.

However, when I return after the meeting I learn that the easy task wasn’t as simple as my brother expected. Our second switch was poorly wired. It was the feeder and was destined to blow. He handles the repair.

Paul is a lifesaver, a frozen-food rescuer, a brilliant engineer, and an all-around good guy. Of course he wouldn’t accept pay for his services—not even a free meal at a restaurant. And I wasn’t thinking White Castle.

All I can do is pass on his kindness to someone else and shout out to the world, or at least my readers, that I have a brother who is the greatest.

We are now on vacation and will be home, or close to home, by the time this is posted. Not every moment here has come as we thought it would either. We got lost but found some incredible beauty. We had some unexpected rain and I finished some edits I was afraid would never get completed in time. Serendipity is both teacher and delight.

Peace upon all that comes your way, both expected and otherwise.

 enjoying scenery on a detour

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One Smile, a Beginning

Posted in Uncategorized, tagged , , , , , , , , , , , , , , , , on July 3, 2015| 2 Comments »

The world as we have created it is a process of our thinking. It cannot be changed without changing our thinking. (Albert Einstein)

The world as we have created it is also a process of our caring, social awareness, and empathy. It cannot be changed without changing our approach to one another, without cutting out all biases and prejudices, seeing with fresh vision.

Wayne, the son of my long-time friend, Gladys, now deceased, shared this story. It fits into the attitudes I share weekly in this space:

“The coolest thing happened tonight. A friend was treating me to dinner at Frisch’s for helping with some mulch. I noticed a table with some special needs adults and case workers right in front of our table. I made eye contact and smiled at the people facing my way and went back to eating dinner. Suddenly, there was an arm around my shoulder and it was one of the adults with Down syndrome from that table. He was dressed in a Cincinnati Reds outfit.

“‘I love you,’ he said giving me a big hug. And I told him that I loved him, too. He then did the same to the young man sitting across from me. This gesture was an example of unconditional LOVE. I felt as if I were in the presence of an angel. I am profoundly touched and grateful.”

Several of Wayne’s friends mentioned a fact those who know special-needs folk realize; their good works aren’t hindered by overworked egos. In my April 8 blog, Scot: It Doesn’t Take Much To Make Me Happy, I introduced a loving adult with Down syndrome. Scot doesn’t let formality get in the way of giving either. He hugs and he is good at it.

Not many people are able to express affection without some reservation. Actually without a lot of reservation. All living creatures deserve respect. And yet I can’t imagine petting a pit bull without a proper introduction. True, I’m allergic to the dander in dog fur. But, this strong breed has an undeserved reputation. And yes, both ego and fear form a larger barrier around me than I would like to admit. I can be shy around people I’ve never met as well.

Wayne is a talented musician. But he was not taught to act as if he were better than everyone else because of his gifts. His mother Gladys also showed me what unconditional love means. At one time I wasn’t sure that I was capable of much of anything. Gladys accepted me as I was—and then helped me to view my life differently. She overcame enormous struggles in her life. Dire Poverty. The death of her mother when Gladys was only six. Gladys lived in the present and saw the good in each day and in each person.

I suspect the gentleman who approached Wayne sensed the honesty in his smile. Wayne wasn’t patronizing the group at the next table. His gesture came from a sunshine-heart.

And perhaps the difference between the special-needs-huggers and the reserved normal folk is spiritual. Just maybe the word needs should be deleted and special highlighted. These people erase the non-essentials: What could happen if?… I don’t know you… This is socially unacceptable… All the artificial contingencies disappear and pure gift remains.

Perhaps, if the special folk decided to take the time to consider the sit-straight, don’t-look-anyone-in-the-eye rest of the world, they might feel sorry for the so-called normal sector.

But I doubt that they would look down on anyone.

if disabled people were head

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Riding the Storm, Playroom-Style

Posted in positive thinking, Uncategorized, tagged , , , , , , , , , , , , , , , , , , , on June 26, 2015| 2 Comments »

Isn’t it strange how life won’t flow, like a river, but moves in jumps, as if it were held back by locks that are opened now and then to let it jump forward in a kind of flood? (from “Clear Light of Day”  (Anita Desai)

I watch Ella as she lives fully in the moment. Mickey Mouse, Dora the Explorer, and a miniature My Little Pony take turns going down a plastic slide. Grandma joins the adventures. Reality adjusts to fit the scene. However, Grandma sees the dust as the sun streams in from the window, the mess that needs to be cleaned later, and an agenda that won’t fit into twenty-four hours. Ella recognizes play and infinite possibilities.

Breathe in for a count of five; breathe out for a count of ten, I tell myself. Yes, I am capable of imagination. “The Curse Under the Freckles,” coming out in early August, is a middle-grade fantasy novel. However, transferring that experience from a controlled page into everyday life is another matter. I need the example of a child, the vision of a little girl who can have open-heart surgery and then, less than a week later, return to her toys as if no time had lapsed at all.

Right now I am praying—a lot—for friends and family facing huge challenges. One has a cyst on her brain; the other is in the hospital with Crohn’s disease. And, of course I always think about my companion with stage-four breast cancer. Several years ago I thought I had gall bladder problems. I wasn’t even close. There was a blood clot in the lower portion of my lung, a pulmonary embolism. The predisposition is hereditary.

I took far longer to recover than my granddaughter did. I was focused on Desai’s metaphorical current and Ella lives its river, locks, jumps, and all. Oh, she fought harder than I did! She hollered, “No,” every step of the way, but she was thoroughly present.

I pick up an old Ronald-McDonald-in-a-plane toy and fly it upside down. “Hey, turn this thing around, will you, Mawmaw?” I say. “I’m going to fall out!”

Ella laughs. Maybe I’m learning.

slide

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