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Posts Tagged ‘patience’

When I let go of what I am, I become what I might be. (Lao Tzu)

Somewhere I read or heard that washing a sponge in the dishwasher is a good way to destroy lingering bacteria. As I take a sponge that’s been through considerable scrubbing, with residue of Ella’s yogurt, spilled coffee, and whatever was imbedded on the stove top, I feel as if I could use a thorough run through the dishwasher.

Sure it’s great to be the confidante for several wonderful folk, but a time comes when I need to rinse all of that information away, relax, and begin again. I do not have a degree in psychology. I do have access to twelve-step material, a good church community, and an intimate woman’s faith group known as Apple. They all serve me well. Moreover, there is nowhere anyone can live—truly experience life—without picking up a few hints along the way. Nevertheless, all the assistance in the world doesn’t protect anyone from wearing out.

These are some of the hints that tell me when I am ready to wash my mental sponge with some downtime: meditation, fun reading, a cup of tea (without caffeine), an additional exercise routine or walk, perhaps a call to an understanding friend:

             sleeplessness or waking too many times during the night

            dreading that the phone will ring with more bad news

            an intense desire to overdo the chocolate

            losing and/or forgetting things.

These are some of the signs that come to my mind. In the meantime, I rinse out the excess soap and grime in my trusty sponge and put it in the top shelf of my old, but reliable dishwasher, and then wait for the full cycles of time to complete the process.

Eventually, the sponge will give up. It always does; it is made of finite material. But, hey, it’s been a good cleaning tool and has served its purpose. Fortunately, the human spirit can be taught depth, richness, and an ability to accept even greater challenges.

Okay, one…two…three. Press the start button and go.

dear stress

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Learn to pause … or nothing worthwhile will catch up to you. (Doug King)

There is a good possibility that snow could change all my plans today. It’s February, sometimes the longest month of the year. At least it feels that way when Friday begins with a traffic accident blocking traffic at the top of our street! However, as I wake up on Saturday I decide I am going to make this day worthwhile—whatever becomes of it. I recall the words of authors, Deepak Chopra MD and Rudolph Tanzi PhD:”

“In Superbrain, we argue that the real you is the “observer” or “witness” of your brain’s activities. Your brain brings you emotional feelings and intellectual thoughts, which most often present themselves in the incessant internal dialogue and monologue of the mind. We argue that the true “you” is the self-aware “you” that is astutely cognizant of the feelings and thoughts being evoked in the brain, but then uses them to enhance your awareness and elevate your state of consciousness, promoting a more enlightened lifestyle.” http://intentblog.com/deepak-chopra-reality-making-and-the-gift-of-self-awareness/

I saved a picture a family member took of ice on the windshield of a car at sunrise, such an appropriate image for today. The sun is present. It rises, but the ice obscures the view. Or—it could present another image: a beautiful design painted by Mother Nature, an opportunity to pause and enjoy instead of hurrying.

This hasn’t been a got-my-way kind of week. The writing I wanted to finish just didn’t find a time slot. The house looks like it’s been run over by three kids. It has. But this time has been blessed, too. The same kids who left fingerprints on my “things” left deeper marks on my heart. I smile as I wash those fingerprints away and look forward to the next round.

I’d like to say all the news I’ve heard has been good. One situation wants to tear my heart apart. All I can do for that one, however, is say the Serenity prayer, and be prepared to say the right word, offer love, and be present when necessary.

In the meantime, the wind rises and falls as winter rules the weather; a spring spirit thaws the mind any time.

photo by Jane Filos Dagley (taken in Camden, Maine)

sunrise through the icy windows Jane Filos Dagley

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There is something beautiful about all scars of whatever nature. A scar means the hurt is over, the wound is closed and healed, done with. (Harry Crews, novelist and playwright)

Dictionary.com defines a whirling dervish as “a member of a Turkish order of dervishes, or Sufis, whose ritual consists in part of a highly stylized whirling dance.” However, mothers and grandmothers see another wild dance in their two and three-year-old kids on their way to world domination. Very few little folk walk from one place to another. They move with a swift, designed purpose—preferably toward something forbidden.

Yes, I know I’m not allowed in the bathroom alone. However . . . Ella doesn’t talk, but her eyes communicate well, so does the slam of the door. I open it as she signs washing her hands, which really means playing in the water. I tell her she may NOT close the door, and we will play in the water after she listens. Besides, even if I roll up her sleeves, they are going to get wet, soaked if possible. She must expect the warmth of her personality to dry them.

Ella grins. I notice that she really does need her hands washed. I guess the quick wipe after lunch wasn’t sufficient, but I win when it comes to prolonged play at the faucet. She doesn’t fuss as we leave the sink, without extended splashing. Our house may be small, but we have plenty of adventurous nooks for a young child to explore. I smile recalling the long road our little one has traveled.

She was born premature with Down syndrome at three pounds and three ounces. I recall her Giraffe bed. Giraffe is a brand name for a high-tech bed that keeps a critical-care newborn warm. It also makes procedures possible without moving a fragile, tiny body. Ella’s first nutrition was intravenous, by hyperalimentation until a defect known as duodenal atresia, could be corrected.

I was fortunate to be one of her primary caretakers while she was in the hospital. During that time I wrote and recorded a song for her. However, her premature system was unable to absorb simultaneous sounds. The song can still be accessed from the site I used before I began this blog: http://terrypetersen.webs.com/music.htm  (Scroll down to find the lyrics to Ella’s song. It was not possible to access the sound track temporarily. It works now. Don’t know why!)

Ella runs to the refrigerator and pulls off a magnetic letter C. “Kuh, kuh,” she says. Then she grabs an M. “Mmmmm.”

“Very good. And you are mmm good, too.”

Her shirt reveals her belly as she raises her arms for me to pick her up. I see the scar from the feeding tube from her first year. She doesn’t remember her infancy. She wants something mmm good from the refrigerator.

Years ago, if people would have told me I would be happy to be the grandmother of a child with Down syndrome, I would have asked them what color the sky was in their fantasy land.  Now, I know the gifts our little girl brings make wealth look trifling. When I wrote that she was “made of spunk and angel wings,” I had no idea how prophetic my own words would become.

(Ella in her Harley jacket. Note speed-blur)

Ella in Harley Jacket Dec. 2012

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Forever is composed of nows.  Emily Dickinson

Our granddaughter Ella may be in her pack-and-play for a nap, but that doesn’t mean she has any intention of succumbing to sleep. Fortunately she isn’t putting up an ugly protest. This time of day is relegated to rest and our little one knows it. She doesn’t cry without a good reason.

As I work at the computer Ella babbles. She could be talking to a stuffed animal, an imaginary friend, or her guardian angel. Our granddaughter’s language hasn’t developed enough for us to know. Down syndrome has delayed her speech, but has elevated her understanding of the now, a place to be embraced—even if Grandma could be hogging all the fun Curious George games and Sesame Street videos.

I hear a cackle, perhaps the punch line to some joke only she understands. I shake my head and swallow a laugh. Apparently her run through Lowe’s didn’t wear her out this morning. It took two adults to keep one three-year-old girl from rearranging a huge hardware store. While I picked out an area rug for the computer/toy room, Grandpa followed our blonde tornado through the store. Ella made friends along the way, too. She always does, with her magnet-blue eyes and innocent smile. Her beauty and personality reach beyond the limitations of Down syndrome. She makes people feel chosen by her love. It relays an angel’s touch.

Perhaps an angel is teaching her the tricks of the trade—right now. And I don’t know a thing about the lesson. I can’t see or hear her life teachers. I may not have been born with the competition gene, but that doesn’t mean I don’t compare myself to folk who achieve a lot more. I also grow restless when time steals moments I feel are rightfully mine.

No day belongs to me. It is a gift, just as Ella is a gift.

Eventually the noise and rustling stop and I hear two voices in the bedroom. Grandpa and Ella laugh. It is post-rest time. Let the blessings continue. After all, I have a lot to learn.

It's today Pooh shared by Jane Friedman

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Until death it is all life. (Don Quixote)

My father sleeps the awkward sleep of pain and old age. I kiss him on the forehead and he doesn’t respond. I hope he wakes up later, and sit next to him in the common room of the nursing home. My sister Claire will be here soon, after the accident clears on the expressway. She drives an hour—perhaps to visit the father she knew—perhaps to visit a shell of what he was.

I wait, pulling a folder of writing work into my lap, when a woman in a wheelchair catches my eye. She looks upset.

“There’s something in the back of this chair.”

I hesitate, and then notice her oxygen tubing. It’s probably the handle from the tank.

It is. One hand on her arm, I move the handle out of the way. “Is that better?”

“I don’t know.”

An aide appears with a blanket to tuck behind her. When my dad could still sit, I always wondered why one wasn’t inserted before this kind of irritation started. Then he was moved to a geri-chair that could be adjusted for lying down. No handle in the back, just the difficulties of a worsening condition.

“That should do the trick.” I smile and gently pat her arm. She smiles back.

“What’s your name?” I ask.

She answers with both her first and last name and her personality emerges, a wit hidden a few minutes ago. Touch, perhaps it is more magical than I think. Or—it is simply essential to well-being.

“I like your coat,” she says. “Gray and blue go together well. Hey,” she says to the woman in a wheel chair next to her. “You grab her and I’ll get the coat.”

Her comrade looks surprised.

“Just kidding.”

I laugh, talk to the pair for a few minutes and return to my work. I can’t help but overhear their talk about another resident. “She’s not happy about anything,” one of the women says to the other. “Well, I don’t know what you can do to change her.”

Later the woman I suspect to be the object of  their conversation appears. She battles with the personnel, puts on a genuine show. I wonder what internal demons she fights, and feel even more blessed by the first two women.

The core spirit doesn’t go away because the scenery has been altered. It remains, whether that individual is fighting traffic on the Interstate or exchanging conversation in a nursing home.

Claire arrives, smiling. She lives positive attitude. Traffic was blocked for miles. She tells the story, but doesn’t complain about it.

I introduce my sister to my new nursing home friend.

“Your sister is prettier,” she says. Then when I tell her Claire is a lot younger than I am, she smiles and adds, “Just kidding.”

Claire and I have the opportunity to have time together. Dad’s feet threaten to fall off the chair. Many times. We move them back, as gently as we can. He never rouses enough to know we are there, at least while I am present. I leave before my sister does.

But first, before I face rush-hour traffic and who-knows-what-kind-of-chance-to-lose-perspective, one more kiss on Dad’s forehead, even if he doesn’t know I’ve placed it there. After all, I can’t understand the twists and turns of existence, but “until death it is all life.”

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The trees that are slow to grow bear the best fruit. (Jean-Baptiste Poquelin Molière, actor and playwright, 1622-1673)

Eight-year-old Kate calls the day before Thanksgiving to talk to Grandma. She wants to know what her cousin Ella has done today, especially anything funny. I’m getting ready for the big feast, so I don’t have all three of my grandchildren at the house on my usual Wednesday. Sure, it would be difficult to prepare with three active kids in the house, but I miss the precious presence of the other two children.

I tell Kate about how I found Ella’s shoes on Barney, the Dinosaur. It’s the kind of story she wants to hear. Later I learn this game was initiated by Grandpa, but it doesn’t matter. It makes Kate laugh.

Ella reaches for the phone. She’s been out of the loop too long. I put the conversation on speaker, and then let our youngest granddaughter communicate, in her own way. She kisses the receiver. Blessings fill the air.

After Ella reluctantly gives up the phone, Kate tells me about someone she knows who is pregnant. The baby may have Down syndrome. The parents are waiting for test results; they are frightened. I am amazed at my granddaughter’s adult understanding. She knows what a joy her cousin is—and yet, she recognizes the difficulties of caring for a child with special needs.

Ella tries to climb onto the television stand. “No!” I call to her. She stops before I get to her, and I am grateful, but I am also glad she is extending her horizons.

It’s been a long haul since our little one was born seven weeks early, facing two surgeries before she was three months old: one for duodenal atresia and the other for an A/V canal defect. The second meant open heart surgery.

When her heart was cut open, our hearts were, too. The entire family learned what was important and what wasn’t. We continue to grow with her, to share enthusiasm when Ella points to the first letter of her name and pronounces “E” clearly. No, we probably won’t have a Harvard graduate. But a positive attitude teacher? Definitely.

“See you tomorrow, Kate. I love you.”

“I love you, too, Grandma.”

I’m not sure much of anything else matters.

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And as we let our own light shine, we unconsciously give other people permission to do the same. (Nelson Mandela)

Kate somersaults across the living room—with a cast on her left hand. “Did you see that, Grandma?”

“I sure did.”

“I’m going to do it even better this time.”

I want to yell, No, we don’t need any more trips to the hospital! But, her movements are confined, and the other kids are in the toy/computer room right now, so she isn’t going to knock anyone over. (Whether toy or computer comes first depends upon whether kid or computer plays the dominant role.) Besides, I am the one who was on the phone when our granddaughter broke her finger diving into the couch. The cast was necessary because the break affects a growth plate. I heard her scream, and then went into shock for a day or two.

She rode through her ordeal like a soldier and flashes her red and blue cast as a badge of honor. In fact, there are no more spaces on it for Grandma to sign her name. A place to fit initials would be difficult to find.

Children’s bones bend and heal easier than a grownup’s bones do. It seems my eight-year-old girl’s spirit is mighty powerful, too. Kate is drawn to children with special needs. She doesn’t see them as different; she sees them as people, like herself, with challenges. Perhaps having a younger cousin with Down syndrome has given her that blessing; perhaps that gift is innate. I don’t know.

I watch Kate perform one more somersault. With a smile. With ease. And I know I’ve learned something important about resilience.

pic from MorningCoach.com

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Experience is a good teacher, but she sends in terrific bills.  (Minna Antrim)

Okay, I could tab to indent on my computer a few minutes ago. What happened? The cursor thinks a new paragraph begins toward the end of the line. Sure, the story I’m writing is fantasy, but the wild and unusual is supposed to remain within the context of the tale, not jump out into the keyboard.

So far I haven’t figured out how to fix it. In the meantime I count spaces and try to refrain from cursing—at least out loud. Impatience can be costly. More than once I have experienced the Lewis Carroll quote, “The hurrier I go, the behinder I get.”  Several days ago I broke our Waterpik. Cracked an attachment. With my bare arthritic hands. Amazing what a little hurry can do. Then I noticed our printer is suffering from overuse and old age. Just when I promised to print out a couple hundred-thousand pages of something. (slight hyperbole)

Patience, patience, where art thou? Perspective, you should be around here somewhere, too. They both have a tendency to hide, generally when they are most needed. These are the times when made-from-scratch cakes fall. Cups fall from shelves and break, on their own of course. And that essential map for a trip gets left on the coffee table at home.

I sigh, and then pick up my plan for our small group’s church service on Sunday. Perhaps I should look at it and see if I am missing anything since my brain’s auto pilot seems out of whack. Darn, I sure don’t have to be concerned about running out of flour and oil like the widow in l Kings 17. Oh, we aren’t rich, by any means. Open our refrigerator door and the kitchen is blocked, but we aren’t poverty-stricken either. I have a computer, satisfactory health, and the ability to help others when they need it.

Pause. Breathe. Come back to the problem later. Or get someone else to help. Maybe even learn something new.

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