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Posts Tagged ‘wisdom’

There are two ways of spreading light: to be the candle or the mirror that receives it. (Edith Wharton)

As I dust the front windowsill I realize my birthday cards have been on display for almost two months. Some of the messages are serious and genuine, some silly. I celebrate all of them. The cards are an opportunity for gratitude.

However, there is a fine line between gratitude and clutter. If I saved every thoughtful token I have ever received from friends, hoarding would replace genuine appreciation. The sun can’t shine through paper, even beautifully illustrated paper. I will save some cards for future illustration-inspiration. One friend copied a quote on slick paper. It will make a great bookmark.

No one thing lasts forever. Resentments can clutter, too. Sometimes people act in ways that reflect deep hurt—then they fling their pain around as weapons against those who have injured them. They take no responsibility for their choices. As long as the ball of discontent rolls, there is no time to recognize the loss of both logic and common sense. And the discontent grows deeper.

Hate caused Problems MoveOn.org

I think about that as I linger over the cards and shut out unhelpful thoughts concerning a recent situation that doesn’t directly involve me. It affects someone I care about. Nevertheless, it threatens my serenity. I have no control over another person’s choices. Light without shadow doesn’t exist in the real world. And resentments and anger can block out sun for years, sometimes a lifetime. I can’t help anyone if I play that game. Lashing out with quick judgment is tempting, but leads only to more lashing out.

I sigh and then pray for the highest good for the folk who would wish harm. Within minutes I notice that my breathing feels freer. The sky appears brighter, even though gray fills the clouds with promised rain.

However, the mirror reflecting the candle can shine on and on and on… Thanks to all my friends. For all you give and for all you are.

cards

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Isn’t it strange how life won’t flow, like a river, but moves in jumps, as if it were held back by locks that are opened now and then to let it jump forward in a kind of flood? (from “Clear Light of Day”  (Anita Desai)

I watch Ella as she lives fully in the moment. Mickey Mouse, Dora the Explorer, and a miniature My Little Pony take turns going down a plastic slide. Grandma joins the adventures. Reality adjusts to fit the scene. However, Grandma sees the dust as the sun streams in from the window, the mess that needs to be cleaned later, and an agenda that won’t fit into twenty-four hours. Ella recognizes play and infinite possibilities.

Breathe in for a count of five; breathe out for a count of ten, I tell myself. Yes, I am capable of imagination. “The Curse Under the Freckles,” coming out in early August, is a middle-grade fantasy novel. However, transferring that experience from a controlled page into everyday life is another matter. I need the example of a child, the vision of a little girl who can have open-heart surgery and then, less than a week later, return to her toys as if no time had lapsed at all.

Right now I am praying—a lot—for friends and family facing huge challenges. One has a cyst on her brain; the other is in the hospital with Crohn’s disease. And, of course I always think about my companion with stage-four breast cancer. Several years ago I thought I had gall bladder problems. I wasn’t even close. There was a blood clot in the lower portion of my lung, a pulmonary embolism. The predisposition is hereditary.

I took far longer to recover than my granddaughter did. I was focused on Desai’s metaphorical current and Ella lives its river, locks, jumps, and all. Oh, she fought harder than I did! She hollered, “No,” every step of the way, but she was thoroughly present.

I pick up an old Ronald-McDonald-in-a-plane toy and fly it upside down. “Hey, turn this thing around, will you, Mawmaw?” I say. “I’m going to fall out!”

Ella laughs. Maybe I’m learning.

slide

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To find someone who will love you for no reason, and to shower that person with reasons, that is the ultimate happiness. (Robert Brault)

Several years ago Jay and I were at the Y kiddie pool with Ella when the children from the special-needs class had their outdoor time.

“Ella looks like she could be Payton’s little sister,” one of the teachers commented.

The resemblance was amazing: blonde, blue-eyed girls, both with loveable auras. I found myself watching Ella’s look-alike and telling her she was incredible, but not to drink the pool water. A grandmother’s kind of response.

Recently I met the beautiful lady who calls herself Payton’s sister. She isn’t. Sisters aren’t always this close. Bethany has babysat for Payton since she was considered legally old enough to be a responsible child. Their meeting was a coincidence, or as one of my friends calls it, a God-incidence.

Bethany’s mother delivered frozen food to people who had difficulty picking it up. She knew Payton’s family because she had worked as an assistant at her school, but had been laid off during a financial cutback. Bethany had just happened to be tagging along when her mother made the delivery.  Bethany’s mother treated each child in the school as a valuable individual. Therefore, Bethany learned respect for all persons naturally.  Three-year-old Payton could easily reach her with the beauty of her spirit. A relationship developed.

Bethany could love Payton for no reason and shower her with reasons.

Payton does not speak. When she was six years old she was tested for autism. She has both autism and Down syndrome. These limitations do not stop her from being a good friend and an A-plus example of unconditional love.

Bethany has chosen to act as Payton’s legal guardian. Will this be difficult at times? Maybe, maybe not. No worthwhile choice is without risk.

Recently I spoke to someone who doesn’t know Ella. I told her about our granddaughter’s open heart surgery. The woman nodded, with me until I mentioned Down syndrome. Then came the stepped-back oh-I’m-sorry look. Neither Ella nor Payton are their tripled chromosome any more than my essence is summed up in my height, weight, or allergic status.

Meet Bethany and Payton. And find blessings.

collage made by Bethany in honor of National Down Syndrome Day

Bethany and Payton collage

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Memory is more indelible than ink. (Anita Loos)

My friend C gets an A+ in the inspiration department. Several weeks ago she shared some of the challenges she faces caring for a disabled husband. Then she added a delicate and beautiful twist to her story. She added the sunshine known as gratitude and then rain fell—from my eyes. I haven’t forgotten that Tuesday morning circle with my friends.

C’s husband was once a brilliant, actually super-brilliant architect, who could play bridge or design one. Then, several years ago he developed a rare, bizarre condition. He has gradually lost the strength in his muscles as well as the strength of his mind. C cares for him night and day. Dialogue, true conversation, belongs to the past.

While C lives with complications, distractions, aggravations, and opportunities to scream-into-the-sky-about-the-injustices-of-life, she is one of the most balanced individuals I know. Perhaps this is because C gives because that is who she is. Sure, she would probably admit that life with someone who is becoming-a-child-but-doesn’t-know-it is something like trying to tame a rabid wolverine. But she maintains a sense of humor.

She watches her husband and sees the past, knows that those years are a real, tangible part of who they are now. Some of those times were serious, some tender, some humorous. It would not be fair for me to share those moments in a public forum, nor would it be necessary. Finding the human in all three categories isn’t difficult.

In my life some events were tragic, but something good happened later that never would have occurred if I had not walked that path. Moreover, the next oasis became sweeter. Then again some situations I thought would stand forever lasted as long as a puddle after a summer storm.

As I write these words and think about C, I mentally make a gratitude list. Okay, maybe that should be a written list so that the next time my own opportunities to scream-into-the-sky-about-the-injustices-of-life appears it won’t take as long for my stress level to decrease.

That need becomes amplified when another friend, J, stops by with a load of stuffed animals and children’s books for my grandchildren. J and I are almost the same age, born two weeks apart. Her husband has always been a kind, intelligent man. I enjoy being around him. A fellow writer. He is eleven years older than she is—no longer old from my point of view. He has been diagnosed with dementia. It is in the early stages. Hopefully medication will slow the inevitable process.

In the meantime he is focusing on his garden, creating something alive and beautiful in his own back yard. He knows, in time, he will recall nothing about it. He doesn’t know when. Perhaps snows this winter will cover more than ground next year. So J takes videos, savoring each dig, each bulb… each flower.

“Memory is more indelible than ink.” For some, not for all.

Both C and J celebrate life on a deep level. Not the kind of celebration that calls for the clicking of glasses and loud music, the kind that calls for a wonder about the past and an awareness of the sacredness of the present.

ever had a memory Words of Wisdom

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Happiness is holding someone in your arms and knowing you hold the whole world. (Orhan Pamuk)

Recent talk among several groups of friends has centered on gratitude. I don’t take it as a coincidence. Ella grins at me as she watches several versions of “five little monkeys jumping on the bed” on YouTube. “Oh dear,” she says as each one falls. Falling is forbidden for her at the moment. The stitches in her chest are deep; they will heal from the inside-out and that will take time. The best recovery in a lot of areas begins as an inside job. I put my arm around her and know I hold the whole world.

Small details jump out at me: the pink edging around her shoes, the smallness of her body and hands, the sunshine white-blond of her comb-resistant hair, even the yogurt stains on her jeans.

Her seven-year-old cousin arrives and without a word Ella lifts her t-shirt and shows Rebe her scar. No whimpering. This is a statement of fact. Rebe looks at me, her eyebrows raised, but she doesn’t speak either. She gives Ella a kiss on the cheek. The children seem to know this is answer enough.

Play continues. Pretend games, a mock form of hide-and-seek, i Pad entertainment. Lots of giggles. Running, monitored and limited in a small house.

My memory goes back to a time when I was in water aerobics class. The news had been fresh that our youngest granddaughter would have Down syndrome, an A/V canal defect and duodenal atresia. At that moment we saw our granddaughter as someone who had not yet been born. So far all we knew were problems, unseen and vague roadblocks, the kind that lead many women toward abortion. Ella had not yet seen her parents’ faces and no one had seen hers.

I recall following aerobic moves as a song played in the background. It was only a rhythmic drum beat. I was seeing the rest room doors behind the instructor, not the instructor. I knew our granddaughter would be a girl—that was all. And the rest of what I understood was surrounded with fear. I wanted to know more than the skirted figure on the door of the restroom could tell, and I didn’t want to know.

Now I look into Ella’s eyes and see sapphire blue, a hint of humor, a ton of strength, and a spirit the angels could emulate. Yes, our little girl has been through more surgery in her short life than I have in my almost 69 years. Yet, she accepts the next day as another experience, not the morning after.

“May I sit next to you, Ella?” I ask.

She smiles. A lot of words aren’t always necessary. Sometimes they get in the way of a simple message. Love loses its beauty when it is over-defined.

learning to be brave and patient

 

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Man has never made any material as resilient as the human spirit. (Bernard Williams)

I have just shared the news that my youngest granddaughter is doing extremely well. Her joy has leaked into me. All is well in my world. However, within minutes I learn that all is not well in another person’s world.

I greet the young woman I introduced in my April 14 post: A Child’s Wish: I Hope You Never Git Hert. She tells me she has stage-four cancer. My hug feels tense, overprotective; I wanted to relay hope, a huge cancer-crushing hope. She ran a marathon last week. That run was her choice. Chemotherapy doesn’t fit anyone’s desire.

I would reach for a second hug-try, but the lack lies within me, not within her. I haven’t processed her news yet. This can’t be real—it is. I sense frailty in her body and I want to change it. Make her well. Now.

Platitudes go nowhere. But I tell her that I thought about her at two in the morning again last night. I did. Perhaps she had taken part in an immediately forgotten dream. It doesn’t matter. Something about her inspires me. An ordinary kind of sacred. I suspect that this girl is planting seeds in people simply by being herself. She demonstrates how courage works, but the kind of growth she initiates in others doesn’t necessarily appear until later—sometimes years.

Philosophical banter is too lofty for someone who is suffering. It isn’t what she needs right now. I tell her once again that she is incredible. She smiles, briefly, as if a little light has gotten through to the part of her that doesn’t see her beauty. Enough for now maybe. Incredible is such a vague word. It doesn’t say as much as I want it to express. At some place every analogy limps. My words can only be a representation of a thought, chosen to celebrate a spirit I want to see thrive as long as possible, the life of a common hero.

She is that hero, with seeds left to plant… and she knows the fight is never easy.

 

Heroes Jodi P PIQ

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The world breaks everyone, and afterward, many are strong at the broken places. (Ernest Hemingway)

My husband and I are at the checkout counter at Trader Joe’s. No one is behind us in line. The girl at the register asks us about our day and Jay tells her we are going to visit our granddaughter in the coronary care unit.

The girl at the checkout pauses, and then gets the attention of a fellow employee who gives us a bouquet of flowers for Ella. I doubt that our little one can have flowers in her room yet, but the gesture takes me by surprise. I hope that a few controlled tears represent sufficient gratitude. Kudos to Trader Joe’s for the personal touch.

Jay found a package of somewhat-natural sweets for Ella. We expect her to respond more to taste than sight at the moment, but her parents should appreciate the kindness of multicolored flowers. No kindness is wasted.

My son sent a picture of our girl with her big, bright eyes glowing. Her hands are tied down to various lines. Nevertheless, she opens her mouth for fruit. Ella is a survivor. We count on that.

When we arrive in her room Ella fights sleep. She doesn’t want to miss anything—except perhaps the next poke or prod. She is sans oxygen now, however. Her ventilator came out earlier. Her open heart surgery was 24-hours ago. She is progressing ahead of schedule.

I think about the start Ella had in life: born seven weeks early with a birth weight of three pounds three ounces, duodenal atresia, and an AV Canal heart defect. Yet the nurses fought about who would care for her each day.

She has grown to be an active, enthusiastic five-year-old girl.

As I watch her I worry that this time her spark will burn out. Then I realize I am looking at my fears, not hers. Ella uses her tripled chromosome as a lever for caring. She doesn’t allow ego to get in her way. She isn’t competing with anyone for first place—in anything.

Two days ago she wanted to push me on the swing at a local park. She insisted, and I let her do it.

“Want to go higher, Mawmaw?”

“Yes!”

But I kept the toe of my shoe on the ground so that the swing didn’t come back to hit her. The surgeon needed to break through her chest—with skill—not through a clumsy accident. I knew what she would be facing. She didn’t. But somehow she intuited it was time to put on extra charm, keep the grandparents at ease. The trial hadn’t come; we had not arrived at the huge medical bridge that needed to be crossed. Yet.

The cut flowers won’t last. They never do. The store’s gesture remains as a ripple of kindness I need to pass along. The broken places in a person become opportunities—to remain severed or to become something new, something better.

Ella’s surgery was on Thursday. By Sunday she has left behind the ventilator, oxygen, and the lines that connect her to a bed. She stands. She will be running soon. Tylenol or ibuprofen controls her pain. I can’t imagine an adult bouncing back that quickly. Ella doesn’t know misery can be extended by choice.

She isn’t ready to push me on any swings yet. But I can’t imagine that it will take long.

Ella at Mt. Airy Park04242015_0000

 

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This is what you must be like. Grow wherever life puts you down. (Ben Okri)

Scot wears a shirt that says: It doesn’t take much to make me happy. Perhaps that is because he doesn’t see the optimist’s glass as half-full; he sees it as close to overflowing. He doesn’t need a thrill ride at an amusement park. Trying on hats at Walmart can make his day.

When Scot was born fifty-one years ago, his tripled twenty-first chromosome dubbed him a mongoloid, an anomaly. Few people in those days saw beyond the almond-shaped eyes, small ears, and lowered muscle tone.

However, on February 4, 51 years ago the obstetrician told Scot’s dad that his newborn son had Down syndrome. He advised Dad not to tell Scot’s mother. The pediatrician would do it. His reason was not to protect Mom for just a little longer—it was to allow her to bond with Scot, to hold and to fall in love with him. Then when the pediatrician told her what to expect, he could also advise her to treat Scot as she would any other child. In this way his parents could face challenges, not impossible roadblocks.

Scot’s gift is hugging. He does not make judgments based on appearance. He chooses the person he will embrace next for his own reasons; he never explains why. Possibly that individual needs his positive energy—that over-sized woman at the mall whose eyes say life has dealt her more blows than she can handle, or the elderly man who hasn’t been touched in years.

This is Scot’s approach. He stands before someone, extends his arms and then watches for a response. If the person is responsive he offers his love, no strings attached. He has the kind of simplicity that is the essence of genuine love. Most people without the burden of an extra chromosome bear the weight of ego—viewing who-they-are as superior or inferior. Scot doesn’t get caught up in drama. He is who he is.

In fact, one of his favorite possessions is a stuffed toy rat. Somehow since Scot is someone who doesn’t judge, that doesn’t surprise me.

Many people may look at folk like Scot, or my Ella, and see the characteristics that suggest slower learning, perhaps a thickened tongue causing slowed speech. They turn away or make snide remarks. I’ve had people tell me they were sorry when I have told them my granddaughter had Down syndrome.

My response has been that I am not sorry at all. My Ella is only five-years-old and I can’t imagine life without her. Scot has been on this planet ten times longer. He has blessed people without knowing he is doing it, the purest form of giving. Is he perfect? Of course not. No one is.

But someday I hope to see the beauty in a rat, the homeliest person in the mall, and every gray ordinary day—just like Scot can. In the meantime, I will simply let as many people as possible know that Down syndrome does not mean down-anything-or-anyone. And when you see a man, woman, or child like Scot in the picture below, know that you are witnessing possibilities…

Scott04072015_0000

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It is a wonderful seasoning of all enjoyments to think of those we love. (Molière)

In my last blog, “Bye Bye, Old Stove; Hello Possibilities,” I took a picture of a turkey in the early stage of baking. Most of that turkey has been sliced and frozen; my husband and I don’t require Sumo-wrestler portions. However, that bird will probably be only a memory in a matter of hours. I expected four guests for dinner. That number has now increased to eight.

Jay has made a quick run to the grocery store for more fresh fruit and vegetables. We plan to feast and celebrate the beauty of family.

As Jay and I peel and slice potatoes into my largest pot I think about my guests and gather positive thoughts about each individual—what could also be considered prayer. This attitude helps because my stove may be new, but it has limited space, not enough burners for everything I want to prepare.

I actually pause and consider options when panic would be my usual response. (Ask Jay. He has seen me in full-blown impending-disaster mode. I believe in positive attitude, but need to work at it, just like everyone else does.) However, this appliance and I are getting to know one another as friends. Stove is young with modern possibilities. My experience is old and varied. I’ve made enough mistakes to know what doesn’t work. Together we should be able to work out the logistics with the help of the microwave and the warm setting on the oven.

Then chaos reigns when I try to maneuver pans, bowls, plates, and hot stuff into a dining area the size of the average department-store dressing room stall. Granddaughter Kate helps—in between reading pages of her current book and attending to cousin Ella, sister Rebe, and new friend Dakota.

“What more do you want me to do, Grandma?” she asks. “After all, you do so much for us.”

I savor this moment as I watch her decide what color plastic forks the younger kids would like. This time isn’t really about food anyway. Mashed potatoes and even homemade brownies are only part of this day. In the future will anyone remember the menu anyway? Probably not. I’m hoping they will recall the laughter and the fun.

And that gives me the energy to provide the setting, in my job as chief cook and Grandmother.

Kate tells me that almost-four-year-old Dakota said that he was going to drive a garbage truck when he grows up. But it will hold marshmallows. Dakota is a very neat child, so I suspect this will be a very clean disposal vehicle. Perhaps this young man will help to clean-up a very nasty world and fill it with softness. He just doesn’t know it yet. I can’t see inside anyone’s mind, but his smile shows high-beam possibilities.

After dinner my daughter-in-law Sarah clears the table and fits the leftovers into suitable containers. I watch her efficiency and think about her amazing ability with mechanical devices. She had my new Cuisinart assembled in seconds, and she showed me how to use it in terms I could understand. Given my lack of understanding, that is quite a feat. And she did it without making me appear amazingly inadequate. Anything that needs assembly has never been my forte.

This house is really too small to hold three children and seven adults. But WE did it. I’m tempted to relay all of my family’s virtues here. Now. But, an overview is sufficient. More becomes like a grocery list.

This moment is a gift…And I celebrate it.

doing the little things Words of Wisdom

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Friends are those rare people who ask how we are, and then wait to hear the answer. (Ed Cunningham) 

My mind is in my usual run-faster-than-the-clock mode even as I browse through Facebook, something I do for relaxation. I see a message from my new friend, Cecelia. How was your day?

I envision my invisible to-do list, the one that doesn’t place chores and goals in tangible order. It lumps them together, landfill style. I frequently need to stop and re-think my next step. Sure, I have occasionally created lists. However, I tend to lose them or leave them on my dresser while I am on some phase of the day’s plans, miles outside the reach of that paper.

Yet, as I read CeCe’s message I smile. My day has been good, touched by both minor accomplishments and everyday blessings.

Our chat begins with ordinary-life talk, slips into the sublime, and picks up laughs along the way. We travel through the past, present, and future. I notice how the lag between each bubble-of-talk creates comical miscommunications, misplaced antecedents, confusing new topics. They can be easily explained, but are nevertheless humorous. I wish that these misunderstandings could be settled as simply in the real world.

Chat is new to me. Sure, I’ve used Messenger on Facebook—for one-time statements. It is simple on the computer because I am familiar with the full-sized keyboard on my laptop. Besides, my cell is a  basic flip-top. No Internet service. As Cecelia and I tap sentence after sentence I ease into a new age. We will meet in person again. Soon. I hope. However, for now the wrinkles around my neck fade and her fresh twenty-seven years move closer to my sixty-eight. She is wise beyond her age. Our spirits understand one another. She is beautiful both inside and out. And I am blessed by her openness.

Seconds advance into minutes… a half hour… I will save some of my impossibly vague list for tomorrow. Other tasks need to be crossed off my invisible agenda today. For example, a shirt left in the dryer for an hour may be wrinkled; overnight the cloth could resemble a salt-dough-map of the Himalayas. Boiling eggs explode to the ceiling when the water in the pot evaporates.  I only needed to do that once to learn not to do it again.

Eventually I write, Good night. Talk to you later.

Then, we chat just a little bit longer, a few extra words, one more shared smile.

Some gifts need to be savored.

how awesome you are

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