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Posts Tagged ‘expecting miracles’

The world breaks everyone, and afterward, many are strong at the broken places. (Ernest Hemingway)

My husband and I are at the checkout counter at Trader Joe’s. No one is behind us in line. The girl at the register asks us about our day and Jay tells her we are going to visit our granddaughter in the coronary care unit.

The girl at the checkout pauses, and then gets the attention of a fellow employee who gives us a bouquet of flowers for Ella. I doubt that our little one can have flowers in her room yet, but the gesture takes me by surprise. I hope that a few controlled tears represent sufficient gratitude. Kudos to Trader Joe’s for the personal touch.

Jay found a package of somewhat-natural sweets for Ella. We expect her to respond more to taste than sight at the moment, but her parents should appreciate the kindness of multicolored flowers. No kindness is wasted.

My son sent a picture of our girl with her big, bright eyes glowing. Her hands are tied down to various lines. Nevertheless, she opens her mouth for fruit. Ella is a survivor. We count on that.

When we arrive in her room Ella fights sleep. She doesn’t want to miss anything—except perhaps the next poke or prod. She is sans oxygen now, however. Her ventilator came out earlier. Her open heart surgery was 24-hours ago. She is progressing ahead of schedule.

I think about the start Ella had in life: born seven weeks early with a birth weight of three pounds three ounces, duodenal atresia, and an AV Canal heart defect. Yet the nurses fought about who would care for her each day.

She has grown to be an active, enthusiastic five-year-old girl.

As I watch her I worry that this time her spark will burn out. Then I realize I am looking at my fears, not hers. Ella uses her tripled chromosome as a lever for caring. She doesn’t allow ego to get in her way. She isn’t competing with anyone for first place—in anything.

Two days ago she wanted to push me on the swing at a local park. She insisted, and I let her do it.

“Want to go higher, Mawmaw?”

“Yes!”

But I kept the toe of my shoe on the ground so that the swing didn’t come back to hit her. The surgeon needed to break through her chest—with skill—not through a clumsy accident. I knew what she would be facing. She didn’t. But somehow she intuited it was time to put on extra charm, keep the grandparents at ease. The trial hadn’t come; we had not arrived at the huge medical bridge that needed to be crossed. Yet.

The cut flowers won’t last. They never do. The store’s gesture remains as a ripple of kindness I need to pass along. The broken places in a person become opportunities—to remain severed or to become something new, something better.

Ella’s surgery was on Thursday. By Sunday she has left behind the ventilator, oxygen, and the lines that connect her to a bed. She stands. She will be running soon. Tylenol or ibuprofen controls her pain. I can’t imagine an adult bouncing back that quickly. Ella doesn’t know misery can be extended by choice.

She isn’t ready to push me on any swings yet. But I can’t imagine that it will take long.

Ella at Mt. Airy Park04242015_0000

 

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Life isn’t about getting and having, it’s about giving and being. (Kevin Kruse)

 As I’m dusting the windowsill I see the note Kate wrote to Ella, probably several years ago. I saved it because it reflects who Kate is. Ordinarily I choose to publish only quotes and pictures that include correct spelling and grammar. However, there are times when perfection can ruin the beauty of the moment. The sincerity of my eldest granddaughter’s wish blasts out from her innocence. She wants the best for her young cousin. I can’t fault that.

However, no one experiences a perfect life. Our Ella probably understands that better than many people do. She approaches a quarantine time. Her open heart surgery has been postponed twice. Now, so that she can move forward, we must keep her away from crowds and lots of germs. Of course she has no fear of infection. Saturday she dropped a vending machine M&M on a restaurant floor and then picked up the candy and chomped on it. Fear of another sick day does not govern her life.

I would like to delete fear from my own life. I would also like to send a message like Kate’s to a few other folk I know, to wish safety, health, and simple joys.

There is a young woman at a place I visit frequently who has recently had a recurrence of cancer. She is frightened, as anyone would be. She says she does not expect to recover this time.

She shows me the site from her biopsy, just below her throat. We share a few tears. I hug her. This is all I have to give. She says six words that scream a lifetime of experience: “I have always been the oddball.”

We are standing in front of a public bathroom mirror. I want to turn her toward the glass and point out what I see—a beauty that isn’t superficial. Tenacity and willingness to serve don’t appear in a flat reflection. Yet, I can’t find an opening in her spirit to explain that different is not a synonym for inferior. She is devastated, too broken for words to seep in yet.

I recall how I was the taunted kid through twelve grades of school. And I never understood why, except for the innate inferiority theory. After all, my parents never told me that I had gifts of any value.

This young woman has struggled through developmental handicaps. She has gone through chemotherapy. She volunteers. Daily. With a smile. She is in too much pain to understand more than a hug. Moreover, my recent accomplishments can obscure the realities of the past. She doesn’t see a future. Now is not the time for me to talk, but to listen.

Then I see her again this morning. She wears a pink fighting-breast-cancer scarf. She readily accepts my embrace and tells me she is taking her driving test on Tuesday. I grin. She talks about her nervousness. I think about facing tons of steel on the road. I envision this young lady approaching a 32-wheeler on the expressway and crushing cancer in the passing lane.

Perhaps enough people have listened to this volunteer. Maybe she is beginning to see her own worth, prayer answered before it was barely begun…

May that power continue to grow.

 

Dear Ella

 

 

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I knew when I met you an adventure was going to happen. (A.A. Milne)

When my oldest granddaughter was born, eleven years ago today, I was overjoyed. Of course she was the most beautiful baby in the world with big round, observant eyes and her mother’s dark hair. Naturally I was expected to ooh and ah about my grandchild. All babies are wonderful even if they arrive premature, huge, with wild hair or none at all, with or without disabilities. The newborn with more wrinkles than an English bulldog, a perfect clone to a ninety-year-old relative, is a gift.

However, our Kate was incredible from day one. Her bright eyes predicted her future. She would become charismatic and gentle, a natural in social situations, as well as Grandma’s teacher about life and gratitude.

Kate’s parents had child care lined up for when Mommy went back to work. However, I had learned from my mother-in-law how deep a grandparent-grandchild relationship can become. And I wanted that gift. Since I worked part-time Kate and I were together on Fridays.

I was grateful that I did not need to watch my first granddaughter grow from a distance. My computer room became a computer/toy room and it housed balls, cars, and puzzles. Stuffed animals took on human roles. Bears and bunnies ate whatever cook-Kate pretended to prepare for them. We had adventures and read picture books together.

Friday was Toddler Story Time at the library. Kate loved it. In fact, when she refused to leave one day, and then ran away from me and fell, her barrette sliced the back of her head. She recovered from the several-stitches-that-followed long before I did.

Now, Kate sees the places in other people that need stitches—not the kind that can be repaired with a surgical needle and thread. She is the girl who defends the other kids when they are taunted by bullies, the person the child with autism trusts. Kate does not see disability. She sees the person.

And I learn from her beautiful spirit, her enthusiasm, her growth. Actually she is about a hair taller than I am now. She shows me the secrets inside the iPad I don’t understand. She explains the rules of girls’ basketball, but doesn’t give me a hard time when my shots don’t come anywhere close to the basket.

Many years ago she asked me how long I would live. Obviously I didn’t have an answer, but I told her that I hoped to dance at her wedding. She bought the answer. For now I simply wish her peace, and joy, and a special kind of mirror—the kind that sees inside to all the beauty that lives within her spirit, budding, blossoming, becoming even more wonderful every day.

Happy Birthday, Kate! I love you.

learning from children  morning coach

 

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Friends are those rare people who ask how we are, and then wait to hear the answer. (Ed Cunningham) 

My mind is in my usual run-faster-than-the-clock mode even as I browse through Facebook, something I do for relaxation. I see a message from my new friend, Cecelia. How was your day?

I envision my invisible to-do list, the one that doesn’t place chores and goals in tangible order. It lumps them together, landfill style. I frequently need to stop and re-think my next step. Sure, I have occasionally created lists. However, I tend to lose them or leave them on my dresser while I am on some phase of the day’s plans, miles outside the reach of that paper.

Yet, as I read CeCe’s message I smile. My day has been good, touched by both minor accomplishments and everyday blessings.

Our chat begins with ordinary-life talk, slips into the sublime, and picks up laughs along the way. We travel through the past, present, and future. I notice how the lag between each bubble-of-talk creates comical miscommunications, misplaced antecedents, confusing new topics. They can be easily explained, but are nevertheless humorous. I wish that these misunderstandings could be settled as simply in the real world.

Chat is new to me. Sure, I’ve used Messenger on Facebook—for one-time statements. It is simple on the computer because I am familiar with the full-sized keyboard on my laptop. Besides, my cell is a  basic flip-top. No Internet service. As Cecelia and I tap sentence after sentence I ease into a new age. We will meet in person again. Soon. I hope. However, for now the wrinkles around my neck fade and her fresh twenty-seven years move closer to my sixty-eight. She is wise beyond her age. Our spirits understand one another. She is beautiful both inside and out. And I am blessed by her openness.

Seconds advance into minutes… a half hour… I will save some of my impossibly vague list for tomorrow. Other tasks need to be crossed off my invisible agenda today. For example, a shirt left in the dryer for an hour may be wrinkled; overnight the cloth could resemble a salt-dough-map of the Himalayas. Boiling eggs explode to the ceiling when the water in the pot evaporates.  I only needed to do that once to learn not to do it again.

Eventually I write, Good night. Talk to you later.

Then, we chat just a little bit longer, a few extra words, one more shared smile.

Some gifts need to be savored.

how awesome you are

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If you don’t know where you’re going, how will you know when you get there? (Casey Stengel)

When is this sink ever going to drain? I ask myself. Sometimes aloud. Sometimes not. With or without an oath. The plunger is my friend, but sometimes it gets lazy and refuses to let the water move no matter how much energy I put into my part of the job. After all, I have not dropped crud or grease down the pipes. Sure, the man who put in my new dishwasher said I should have one of my old pipes replaced, relatively soon. It looks like it came from Rome’s original system. But, if it has lasted this long, and all I have is a few occasional drips easily captured in an aluminum pan, what should it matter? Someone is coming next week to look at the problem.

“Sure, I can handle it,” that man says as he squats under the sink. Then comes the uh oh. The piece breaks off in his hands. I suppose I should have taken a picture of the rotted, clogged, rusted pipe that has been living under our sink since the house was built in 1957—but it wouldn’t have drawn many people back for a second look. If this piece of pipe had been living tissue it would have needed emergency bypass surgery. The medical team would have wondered how the patient had managed to stay alive.

Nothing short of a miracle has kept water flowing through galvanized metal blocked so thoroughly acid would need to fight to pass through. And yet, this old hunk of metal has done the best it could until the end. Sorry I made you work so hard, I tell the severed piece lying on my kitchen floor. Although I’m not really talking to an inanimate object. I’m telling myself to pay more attention to those aspects of the ordinary that give me clues I ignore, generally because I’m busy with so-called more important matters.

Sure I know where I’m going. Sort of. On a spiritual plane anyway. But since I happen to live on this existential planet it might be a good idea to recognize where I am, every step, stone, and pipe along the way.

tomorrow year not specified06092014_0000

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When you set sail for Ithaca,
wish for the road to be long,
full of adventures, full of knowledge. (C.P. Cavafy )

My husband, younger son, our youngest granddaughter, and I have set sail for St. Louis in a Toyota. We decide to stop to eat. Customers surround the building at our first choice. Sure, this could bring an adventure, but not the one we had in mind. Our little one doesn’t sit still long. Besides, my husband’s mother, Ella’s great grandmother, is waiting for us.

The next restaurant looks much better, especially since I have a gift certificate for this place in my purse. We get a table without a wait.

“Mom, look, isn’t she cute?” comes an animated voice from the table behind me. A teenaged girl with bright eyes and neatly styled dark hair sits with her mother. The girl points to Ella.

“Come on over and say hello,” I say.

The two girls have something in common: they both have Down syndrome.

The teenage girl’s mother and I talk. Before long I realize that we have been visited by a celebrity. The girl with the dark hair’s name is Karrie Brown, easily found on Google. She dreamed of becoming a model. And she did. She has 31,831 likes on her Facebook page as of this moment. (correction, 31,834: I am now one of them.) The following link is only one of many sites that follow her journey: http://www.glamour.com/fashion/blogs/dressed/2013/09/karrie-brown-is-17-has-down-sy.htmlhttp://www.glamour.com/fashion/blogs/dressed/2013/09/karrie-brown-is-17-has-down-sy.html

Karrie’s determination encourages me to keep going after my goal. Age does not need to stand in my way. Too old is a poor excuse. I will not use it. Besides, I have two novels ready to go, and I have had more short stories and poems published this year than I have ever managed previously. I am a late bloomer in the extreme. Okay, Grandma Moses was older.

Ella smiles through bites of chicken. She has possibilities, too. Her speech may be limited, but she loves words—and she sounds them out. She works to capture them. As we continue on our travels Ella goes over the same printed cards with a level of concentration that makes me smile all the way through. Moreover, our youngest granddaughter doesn’t complain about the trivial. She has larger visions in mind. Who knows what adventures she will discover? I’m with her all the way.

People with Down syndrome are as individual as everyone else. They may be likely to display certain characteristics, but these actions don’t describe every person with Trisomy 21.  I notice that my little girl doesn’t need to dominate or be superior in any way. She is who she is. We could all learn to have her level of acceptance. We could all learn from Karrie’s stamina and positive attitude.

I don’t think meeting her was an accident. Some higher power led us to the table behind her and her mother. Her sister just happened to be our server. What a blessing!

Keep up the good work. Karrie. This world can use your positive and beautiful example.

Photo from Karrie’s Facebook page: Karrie Brown Modeling the Future

Karrie Brown - Modeling the FutureLove can’t always be perfect, but it can certainly be sincere. Ask Karrie. It’s her way of life.

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The most precious gift we can offer anyone is our attention. When mindfulness embraces those we love, they will bloom like flowers. (Thich Nhat Hanh)

I am enjoying time with friends and listening to what they have to say, to who they are. But I am distracted by a tickling in the back of my throat and ask Marie to reread an inspirational passage she has just read. I’d been coughing and all I heard was the cadence of her voice.

As I open a cough drop and lay the wrapper in my lap I notice something I’ve never seen before. Sure I’ve soothed my throat with Hall’s Drops for years, but I never paid a second’s notice to the paper. All I cared about was easing the irritation. Messages appear on the wrapper: Push on. Don’t give up on yourself. You can do it. I laugh and then read them aloud.

All four of us have never noticed the words tucked around that promise of relief. Pat gets up to ask her husband if he has ever seen the tiny printed words. He has. I gather the rest of us have been too busy, focused only on a task—or worse on the end product, not the blessings inherent in the moment. Since the purpose of our gathering is spiritual, I get the clue: life is in the now, every minute aspect of it.

Two days later, after I’ve taken a picture of the wrappers that didn’t get blown away by an unexpected wind that reached into my pocket, something else unexpected happens. I haven’t had breakfast but feel as if my stomach is full, or as if something very heavy is weighing it down. Nevertheless, I manage to sample two free cookies and my usual coffee with another group of friends. Within an hour I’m desperately sorry. Everything comes up much faster than it went down.

Since my husband continues to recover from fractured ribs this is not a good time to be relegated to the couch—inches from a plastic bucket. However, like the unexpected blessings printed into the wrapper, surprises appear.

“What can I get for you?” my husband asks. True, my gut hasn’t yet recovered from my last upchuck, but it doesn’t matter. Jay doesn’t want me to get dehydrated. “I need to try to do a little more anyway.” The graciousness in his voice is transparent. This is good. It’s what real-life love is all about.

cough drop wrapper

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The possibility for rich relationships exists all around youyou simply have to open your eyes, open your mouth and most importantly, open your heart. ( Cheryl Richardson)

If I had been given a crystal ball before I was married, I’m not sure I would have been grinning like a school girl as I took my vows. Oh, I’m not regretting that choice; I’m considering everything that happened just because life doesn’t play favorites. It rains both fortune and misfortune without deciding where either should land.

Not everything I saw as a treasure contained lasting gold and not every catastrophe was fatal. In fact the most difficult situations often brought me to a new level of understanding. Actually, I’m not too comfortable with the folk who are completely satisfied with themselves; I have nothing in common with them. They don’t have anything more to learn.

On July 3, 1971, in an elegant, impractical white gown I wore once, I didn’t foresee two sons and three granddaughters. If I had known one of those beautiful girls would have Down syndrome I would have been terrified. Of course at that time not much help was available for folk who had special needs. Moreover, Ella would require two surgeries before she could leave the hospital after birth, one for duodenal atresia and the other for an AV canal defect. Heart surgery is a relatively new medical advancement. Perhaps, the lack of a future view has been fortunate.

In those long-ago years my heart hadn’t been prepared for the spectacular gift I was going to receive either. My spirit wasn’t large enough yet. However, our youngest granddaughter enlarges it just a little bit more every time she grins and her eyes sparkle with honest love. Most people, and I’m included here, have an innate desire to succeed. In order to do that they compete for first place, for honors, for look-at-me in some form. They often don’t hear what someone else says because they are too busy planning what they are going to add. Most folk with Down syndrome are who-they-are. They don’t try to dominate. They are real. They give without strings attached.

When a pregnant woman learned she was carrying a boy who had Trisomy-21, better known as Down syndrome, some young people who live that life gave her an answer. Warning: the beauty in their responses can lead to leaky tear ducts.

http://www.upworthy.com/a-pregnant-woman-learns-her-baby-has-down-syndrome-people-who-have-it-answer-her-one-big-question-2

March 21 was World Down Syndrome Day. That date was chosen because Down syndrome is caused by the tripling of the twenty-first chromosome. Somehow, I suspect the people affected tripled their ability to grasp patience and joy, too. My Ella teaches the importance of simplicity, the glory of living in the moment, and the wonder of learning something new.

May the gift of the so-called handicapped become contagious. Peace to all!

they call in down syndrome but

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Wherever you are, be there. Lifestyle is not something we do; it is something we experience. And until we learn to be there, we will never master the art of living well. (Jim Rohn )

My husband’s ribs are healing slowly. Of course we can’t see the bones as they knit together. The slightest extended movement predicts a return to our normal life. Sometimes that improvement appears to move in geological time. I’m encouraged when Jay smiles at something as silly as an old F-Troup or Hogan’s Heroes rerun. That means he isn’t hurting at the moment.

Then, somehow, my added tasks feel less like work. Since my father once told me he wanted me to take a mechanical aptitude test to see how low a score I would get, it’s amazing that I am now leveling the wash machine and plunging the toilet. (Please note I prefer the former task to the latter.) Perhaps these accomplishments have come as side effects of my husband’s accident. Chances are I wouldn’t have attempted either job if I had someone with a strong arm and intact ribs close by.

However, I can’t give the impression that I’m bouncing from moment to moment with the serenity of a saint. And I don’t drink alcohol or use drugs so I’m not drifting in avoidance land either. Sometimes fatigue and the impossibility of bi-location attack me, and they can lead to a bad attitude the way black ice leads to the fall that initiated this situation.

Friends make a difference between finding balance and slipping into why-me or super-stress land. One friend, Marcia, helped me to soothe my soul back into my body through massage. Since I was concerned about leaving my husband for any extended period of time, she brought her magic table to my living room. I am blessed.

One of the gifts Marcia gave me was  the ability to focus enough to appreciate the now. I allowed myself to float into her care. I trusted her implicitly. After that relaxation I could consider trusting me, my own body and soul, my ability to fill my spiritual larder so that I had enough stored to give to someone else. While this notion should seem obvious, it isn’t the first thought of a girl brought up in the 1950s, where the female’s giving role was often skewed. In the popular “Christmas Story,” overplayed in December, Ralph’s mother is expected to be subservient to her husband. That position is not questioned. Sure she thinks the leg lamp is beyond tacky, but it needs to crash into smithereens before she can admit it.

I want to be present to my mate—as a choice, expressed in a continuous now. Who knows whether or not he will need to care for me some day, in a far more difficult situation. There is no sense to speculating about the future. This afternoon the sun has decided to make an appearance again, for a while. Every cell in my body has been enriched by Marcia’s loving skill, and the next post will probably be a gift from someone else—my first guest blog. Watch for it! This woman emanates positive thinking. In the meantime, peace to all!

enjoy little things words of wisdom

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There’s something ugly about the flawless. (Dennis Lehane)

As a child I thought perfection was attainable. Expected. On multiple levels.

On an achievement test my sixth-grade teacher emphasized how important it was to erase completely. Pencil residue could be picked up and two filled-in boxes would mean an automatic wrong answer. I sat in the back corner of the room and sighed. That day had been particularly difficult, although I don’t recall why.

Not far into the test I needed to erase. The process became gruesome to this literal student. I moved so slowly through the pages that I eventually gave up. The next year the psychologically ignorant teacher positioned us in rows according to the grade we got on that test. There wasn’t enough room for the last two rows of desks—they were shoved together. I sat in the dummy section. After all, if we cheated the answers were bound to be wrong.

I must admit that seventh grade turned out to be fun. I sat next to the class clown. However, the image that teacher had of me stuck and showed up in my grades. Once again, why bother?

Then, that winter we were given an assignment to write a one-act play based on a book by a Catholic author. Mine was taken from “Fabiola” by Cardinal Nicholas Wiseman, first published in 1854, a, thick book from my parents’ book shelves. It spoke of persecution in the lives of early Christians in the catacombs during the reign of Roman Emperor Diocletian. My teacher did not believe I had read the book much less written the play. My parents needed to verify the fact that I had chosen each word with the required fountain pen at the kitchen table. I had to bring the book to class so that both the principal and teacher could see that I had not plagiarized my assignment. Strangely, I was not frightened. I knew the work I had done was honest.

I won first prize in the Greater Cincinnati area from that one-act play. My grades improved drastically. Yet I was the same child, in the same row. By then I wouldn’t have chosen to sit anywhere else.

Those students I sat next to weren’t dummies either. Perhaps their skills didn’t include diagramming sentences and answering multiplication tables within a given number of seconds. I have no doubt that those conjoined rows housed kids who eventually owned their own businesses or who became beloved parents and grandparents, exemplary citizens, military heroes. They became folk who could find that glitch in a car’s engine no one else could find. Many probably graduated from college and earned degrees because they had learned to work for what they wanted.

They created common miracles no one ever chronicled. We are all important—in different ways.

(pic from Positive Words to Love By)

dogs and differences Positive WoRds

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