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Posts Tagged ‘family’

Look at everything always as though you were seeing it either for the first or last time: Thus is your time on earth filled with glory. (Betty Smith)

Kate rearranges my Christmas decorations on the windowsill as I prepare the table for cookie baking. Sure, I had items arranged according to size and balance. But her design tells a story. A porcelain figurine becomes a little girl opening a gift. The girl sits in front of a house. She has just finished making a snowman. The entire area is surrounded by angels. Kate takes a wreath that had been encircling a candle and places it on top of the house.

“See, Grandma, the people in the house decorated.”

I smile. The wreath is over half the height of the house. In real life this scene would either appear  on national news or a late-night comedy show. It’s hard to say. Nevertheless, the new arrangement will stay even if it is a tad top-heavy .

Then Kate moves to the manger scene on my breakfront. She picks up an unframed picture of my father in his World War II uniform, and pauses. I wonder what she is doing as she moves the three kings forward—long before the twelfth day of Christmas. The shepherd doesn’t seem to care. He waits, unconcerned.

Ah! The three kings have brought more than gold, frankincense and myrrh: they present a new arrival in the heavenly realm. In this picture he is a young man who had two jobs in World War II: company clerk and bomb disposal. He spoke many times of close calls, when he wondered why he had been chosen to come out alive.

Yet, he lived to be 91, long enough for his eight-year-old great granddaughter to decide that wise men would be willing to push ahead their celebration and appear for a special early visit. “Greetings! We have someone we want your newborn to recognize. His name is Bill, and he has lived a long and fruitful life.”

No, Kate didn’t add those words. She didn’t speak at all—didn’t need to say anything.  Her smile relayed the obvious. Love. It transcends language and opens the way to wisdom.

wisdom

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Don’t be afraid to be confused. Try to remain permanently confused. Anything is possible. Stay open, forever, so open it hurts, and then open up some more, until the day you die, world without end, amen. (George Saunders)

The lectern at the church is too high for a woman like me who has slipped under the five-foot mark during the past few years. I smile, exaggerating my tiptoed stance. After all, it’s obvious that my father’s oldest daughter inherited his wife’s height.

Years ago when I acted as lector at another church, there was a wooden stool that could be pushed back and forth for the shorter readers. There isn’t anything like that here. It doesn’t matter. This isn’t a stage; I’m delivering a eulogy. I have five minutes, but hope to relay my message in less than three—not sure my tear ducts will hold out any longer. Now my balance threatens to give up, too; it doesn’t take long before I give up the façade of four-inch high heels and stand flat, my chin hidden as if I were in a bad photograph.

I have decided to be bold and speak as my father, a few octaves higher perhaps, and thank my siblings for the gift they were to him. I may be close to the ground, but my gaze reaches over my brothers’ and sister’s heads. No eye contact now. I’ll save that for later, when tears won’t create a domino effect and flood a perfectly lovely church.

As the service progresses, memories fly through my mind like drunken fireflies. I look to my right to see who is sitting in the pew where I was when my mother died. I recall my father’s quiet slump. Then I’m in a second-grade classroom and back again in the church, in the back, ready to walk down the aisle. Dad is at my side. Forty-one years have dissolved and it’s 1971; I’m about to be married.

In the next moment it’s time to go to the choir loft to lead a simple song based on Psalm 23. I’m uncertain because I haven’t practiced with the organist. I flub the words in one line of the second verse. Not too bad. Can’t let the fumble stop me. I want to be like my sister Claire who has sung Schubert’s Ave Maria so many times, she once sang it accompanied by an organ that sounded like an old-time organ grinder. Her first thought was, Where is the monkey? Yet, she didn’t miss a beat!

I look into the congregation and see my oldest granddaughter Kate staring up at me: the time gap between us is 58 years. Time. Space. Real, and yet illusion. My thoughts are as organized as tossed confetti. And yet . . .and yet . . . despite the sadness I feel a beauty that transcends the moment and embraces eternity.

moment of value Positive WoRdS to LoVe by

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Forever is composed of nows.  Emily Dickinson

Our granddaughter Ella may be in her pack-and-play for a nap, but that doesn’t mean she has any intention of succumbing to sleep. Fortunately she isn’t putting up an ugly protest. This time of day is relegated to rest and our little one knows it. She doesn’t cry without a good reason.

As I work at the computer Ella babbles. She could be talking to a stuffed animal, an imaginary friend, or her guardian angel. Our granddaughter’s language hasn’t developed enough for us to know. Down syndrome has delayed her speech, but has elevated her understanding of the now, a place to be embraced—even if Grandma could be hogging all the fun Curious George games and Sesame Street videos.

I hear a cackle, perhaps the punch line to some joke only she understands. I shake my head and swallow a laugh. Apparently her run through Lowe’s didn’t wear her out this morning. It took two adults to keep one three-year-old girl from rearranging a huge hardware store. While I picked out an area rug for the computer/toy room, Grandpa followed our blonde tornado through the store. Ella made friends along the way, too. She always does, with her magnet-blue eyes and innocent smile. Her beauty and personality reach beyond the limitations of Down syndrome. She makes people feel chosen by her love. It relays an angel’s touch.

Perhaps an angel is teaching her the tricks of the trade—right now. And I don’t know a thing about the lesson. I can’t see or hear her life teachers. I may not have been born with the competition gene, but that doesn’t mean I don’t compare myself to folk who achieve a lot more. I also grow restless when time steals moments I feel are rightfully mine.

No day belongs to me. It is a gift, just as Ella is a gift.

Eventually the noise and rustling stop and I hear two voices in the bedroom. Grandpa and Ella laugh. It is post-rest time. Let the blessings continue. After all, I have a lot to learn.

It's today Pooh shared by Jane Friedman

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Until death it is all life. (Don Quixote)

My father sleeps the awkward sleep of pain and old age. I kiss him on the forehead and he doesn’t respond. I hope he wakes up later, and sit next to him in the common room of the nursing home. My sister Claire will be here soon, after the accident clears on the expressway. She drives an hour—perhaps to visit the father she knew—perhaps to visit a shell of what he was.

I wait, pulling a folder of writing work into my lap, when a woman in a wheelchair catches my eye. She looks upset.

“There’s something in the back of this chair.”

I hesitate, and then notice her oxygen tubing. It’s probably the handle from the tank.

It is. One hand on her arm, I move the handle out of the way. “Is that better?”

“I don’t know.”

An aide appears with a blanket to tuck behind her. When my dad could still sit, I always wondered why one wasn’t inserted before this kind of irritation started. Then he was moved to a geri-chair that could be adjusted for lying down. No handle in the back, just the difficulties of a worsening condition.

“That should do the trick.” I smile and gently pat her arm. She smiles back.

“What’s your name?” I ask.

She answers with both her first and last name and her personality emerges, a wit hidden a few minutes ago. Touch, perhaps it is more magical than I think. Or—it is simply essential to well-being.

“I like your coat,” she says. “Gray and blue go together well. Hey,” she says to the woman in a wheel chair next to her. “You grab her and I’ll get the coat.”

Her comrade looks surprised.

“Just kidding.”

I laugh, talk to the pair for a few minutes and return to my work. I can’t help but overhear their talk about another resident. “She’s not happy about anything,” one of the women says to the other. “Well, I don’t know what you can do to change her.”

Later the woman I suspect to be the object of  their conversation appears. She battles with the personnel, puts on a genuine show. I wonder what internal demons she fights, and feel even more blessed by the first two women.

The core spirit doesn’t go away because the scenery has been altered. It remains, whether that individual is fighting traffic on the Interstate or exchanging conversation in a nursing home.

Claire arrives, smiling. She lives positive attitude. Traffic was blocked for miles. She tells the story, but doesn’t complain about it.

I introduce my sister to my new nursing home friend.

“Your sister is prettier,” she says. Then when I tell her Claire is a lot younger than I am, she smiles and adds, “Just kidding.”

Claire and I have the opportunity to have time together. Dad’s feet threaten to fall off the chair. Many times. We move them back, as gently as we can. He never rouses enough to know we are there, at least while I am present. I leave before my sister does.

But first, before I face rush-hour traffic and who-knows-what-kind-of-chance-to-lose-perspective, one more kiss on Dad’s forehead, even if he doesn’t know I’ve placed it there. After all, I can’t understand the twists and turns of existence, but “until death it is all life.”

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The trees that are slow to grow bear the best fruit. (Jean-Baptiste Poquelin Molière, actor and playwright, 1622-1673)

Eight-year-old Kate calls the day before Thanksgiving to talk to Grandma. She wants to know what her cousin Ella has done today, especially anything funny. I’m getting ready for the big feast, so I don’t have all three of my grandchildren at the house on my usual Wednesday. Sure, it would be difficult to prepare with three active kids in the house, but I miss the precious presence of the other two children.

I tell Kate about how I found Ella’s shoes on Barney, the Dinosaur. It’s the kind of story she wants to hear. Later I learn this game was initiated by Grandpa, but it doesn’t matter. It makes Kate laugh.

Ella reaches for the phone. She’s been out of the loop too long. I put the conversation on speaker, and then let our youngest granddaughter communicate, in her own way. She kisses the receiver. Blessings fill the air.

After Ella reluctantly gives up the phone, Kate tells me about someone she knows who is pregnant. The baby may have Down syndrome. The parents are waiting for test results; they are frightened. I am amazed at my granddaughter’s adult understanding. She knows what a joy her cousin is—and yet, she recognizes the difficulties of caring for a child with special needs.

Ella tries to climb onto the television stand. “No!” I call to her. She stops before I get to her, and I am grateful, but I am also glad she is extending her horizons.

It’s been a long haul since our little one was born seven weeks early, facing two surgeries before she was three months old: one for duodenal atresia and the other for an A/V canal defect. The second meant open heart surgery.

When her heart was cut open, our hearts were, too. The entire family learned what was important and what wasn’t. We continue to grow with her, to share enthusiasm when Ella points to the first letter of her name and pronounces “E” clearly. No, we probably won’t have a Harvard graduate. But a positive attitude teacher? Definitely.

“See you tomorrow, Kate. I love you.”

“I love you, too, Grandma.”

I’m not sure much of anything else matters.

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And as we let our own light shine, we unconsciously give other people permission to do the same. (Nelson Mandela)

Kate somersaults across the living room—with a cast on her left hand. “Did you see that, Grandma?”

“I sure did.”

“I’m going to do it even better this time.”

I want to yell, No, we don’t need any more trips to the hospital! But, her movements are confined, and the other kids are in the toy/computer room right now, so she isn’t going to knock anyone over. (Whether toy or computer comes first depends upon whether kid or computer plays the dominant role.) Besides, I am the one who was on the phone when our granddaughter broke her finger diving into the couch. The cast was necessary because the break affects a growth plate. I heard her scream, and then went into shock for a day or two.

She rode through her ordeal like a soldier and flashes her red and blue cast as a badge of honor. In fact, there are no more spaces on it for Grandma to sign her name. A place to fit initials would be difficult to find.

Children’s bones bend and heal easier than a grownup’s bones do. It seems my eight-year-old girl’s spirit is mighty powerful, too. Kate is drawn to children with special needs. She doesn’t see them as different; she sees them as people, like herself, with challenges. Perhaps having a younger cousin with Down syndrome has given her that blessing; perhaps that gift is innate. I don’t know.

I watch Kate perform one more somersault. With a smile. With ease. And I know I’ve learned something important about resilience.

pic from MorningCoach.com

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Write what you know. That should leave you with a lot of free time. (Howard Nemerov)

Okay! The challenge is on.

I know imperfection inside and outside. My PhD has nothing to do with a doctorate in philosophy. I am positively of human design. The mirror has the audacity to point out every wrinkle and bulge in my barely five-foot-tall frame, and I don’t deny what it reflects. Sure I should have given away all of the rest of the Halloween candy, but some of it lives in a circle around my waist. At least the last bag will be empty soon. Then I can move on to perfection—never. Other flaws will pop out, probably out of my mouth in verbal form, or reflect in a stumble somehow.

Or, I can feel and worry a tad too much for my own good.

Last Sunday my precious oldest granddaughter broke her finger while she was at our house. I had answered the phone, and missed everything but the scream. As her mommy and daddy took her through the rounds of x-rays and doctors, my concern exceeded the practical.

In fact, as my husband and I took a long walk the next day, my little finger felt awkward inside my glove. Strange, I felt as if my hand didn’t fit into the weave anymore. Now that is going overboard! I suspect that if I had needed to take my granddaughter for the required medical visits, I would have quieted the over-the-top empathy and stood firm for her. However, that doesn’t mean my heart rate wouldn’t have developed the power to generate electricity.

Imperfect? The list of examples could go on for pages.

Somehow I suspect even the genius is made-up of more flaw than masterpiece. Omniscience is an incredible burden: no peers, all work, no play.

Give me friends who readily admit error. I’m comfortable around them. The folk who have all the answers either bore me into a stupor or tempt me to search the room for escape routes.

Okay, I’ve finished my dissertation on the common. Unfortunately, I don’t have hours of time left in my day to twiddle my thumbs and do nothing. Most of life’s chores don’t involve words;  knowledge is only part of my journey.

I hope everyone has an imperfectly perfect day, filled with sufficient blessing to see the unique in everyone, even that slightly off-center person reflected in the mirror.

(pic from The Optimism Revolution)

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There’s no limit to how much you’ll know, depending how far beyond zebra you go. (Dr. Seuss)

Balloons belong at a kid’s birthday party the way salt belongs in sea water. The thin latex globes are inexpensive, create a rainbow that doubles as an indoor sport, and provide a mini sonic boom when popped. Of course the cheaper the balloon, the harder it is to inflate.

I bought some for five-year-old Rebe’s party that are so cheap it takes super-human effort to turn the thumb-sized toys into a ball or pear shape. My husband manages to inflate three before I finish one. However, the kids’ enthusiasm makes the effort worthwhile.

I have always drawn a distinction between holy and unholy noise. As long as the kids aren’t screaming so loud you can’t hear a jet-engine, and their play includes cooperation and positive action, it’s holy. (Of course at that frequency it needs to be directed outdoors.) Unholy noise leads to fights and tears.  It is not welcomed.

Eight-year-old Kate serves her balloon volleyball-style; it sticks to the living-room ceiling—and stays there. Intriguing. I tried showing her how to attach a latex balloon to a wall at an earlier party—without success, then blamed it on made-in-China quality.

But, my granddaughter discovered some temporary bond. Hmmn, maybe she’s onto something. I decide to Google it: http://www.ehow.com/how_6871311_explain-balloon-sticking-wall.html Ah, the old rub-a-sweater-or-your-hair-then-stick-to-a-wall trick. Guess I didn’t use enough friction.

One pink balloon left. The positive and negative charges work this time.

Sure I have plenty to clean. The sink is full of dishes and the princess-patterned table cloth is covered with melted chocolate ice cream.  I need a few minutes rest before I tackle the job. I go to Google again and discover that the rubber balloon was invented by Michael Faraday in 1824. Since then, it has evolved and taken on more than air or helium. inventors.about.com/library/inventors/blballon.htm

Unfortunately, my granddaughters and their two friends have gone home. There are no more kids around to show age-old tricks.

Well . . . I did teach something. As my granddaughters’ friends were leaving, one of them asked me to tie the end of a balloon. I thought the bag was empty.

“Sure, you want to take it home with you.”

“No, I want to leave it here.”

“Have you ever seen what happens when you let it go?”

She shakes her head.

“It flies all over the place, like a bat or a moth.”

“Okay.”

Amazing how delightful a six-second flight can be. However, I suspect my son’s drive home with four noisy girls in his van felt longer than it really was. Sorry, dear. Next time maybe you can stay and play, too. It isn’t good to grow up all the way.

(pic from the Optimism Revolution)

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What is straight? A line can be straight, or a street, but the human heart, oh, no, it’s curved like a road through mountains. (Tennessee Williams)

Two people smile at one another. One is three years old, the other ninety-two. A little girl and an older woman. The little girl, my granddaughter, blows kisses. The older woman, my mother-in-law, accepts them. A large portion of the day my mother-in-law sleeps, lost in day-long snoozes. I’ve often witnessed these in my father’s nursing home. Except this woman is in a house miles from where my family lives. Some of us have been traveling for hours to get here—through a hundred miles of construction zones, over two states.

Our little one is a good traveler. But she needs to expend pent-up energy now. Her excited voice and antics amuse her great grandmother. Ella is excellent medicine, joy in size three-toddler stretch pants.

But Great-Grandmother has been sick the past few days. What is enough company? What is wearing for both the elder and younger?

“How are you?” we adults ask.

“I’m fine,” Great-grandmother answers. “Tired.”

But then her eyes meet the spirit of three-year-old Ella, and together their hearts run across mountains the rest of us don’t see. We are mired in the duties and responsibilities of living, the middle of the journey with its endless road work and detours. They know the beginning and the end, the segments closest to God.

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What you do makes a difference, and you have to decide what kind of difference you want to make. (Jane Goodall)

Our youngest granddaughter politely coughs into her hand. Her hand is full of blue chalk, but it’s the thought that counts. I smile at her blue face and she smiles back before she goes back to filling the chalkboard with her spontaneous creation.

She pauses and hands me a piece of yellow chalk. I get a turn, too, albeit short.

Ella has spent her first overnight with us. I’m amazed at how smoothly it went. I’m even more amazed at her mommy and daddy, Sarah and Steve. They are busy talking to Steve’s daddy right now, in our living room after Sunday breakfast. Steve and Sarah have no idea what words I’m conjuring about them—about what a blessing they are.

It isn’t always easy to care for a child who not only needs physical and occupational therapy, but has medical concerns as well. (Of course Ella helps in her own way. She has the personality of at least three angels and the heart of four.) Nevertheless, it takes time—and money to be the parent of any child with exceptional needs. My son and daughter-in-law both work; then they volunteer for the Down Syndrome Association.

This past summer Steve and Sarah earned over seven-thousand dollars and placed seventh among contributors in Greater Cincinnati for the Down Syndrome Association. Of course they had help from friends and family. My assistance was minimal. I painted a few cups for a raffle. Jay and I babysat while the more organized folk prepared a huge festival.

However, it’s the simple, everyday dedication I love most about my own family, the fact that our little one has learned to cough into her hand instead of into the air, the way she waves good-bye at preschool with three-year-old independence, the fact that she is learning the alphabet with enthusiasm.

Her development is a direct reflection on her parenting, on two of the most wonderful people in the world. Ella is blessed, and so am I.

photos taken at the Buddy Walk

at Sawyer Point in Cincinnati on September 8, 2012

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